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Assembly Select Committee on Bioethics, Medicine and Technology

Assembly Select Committee on Bioethics, Medicine and Technology. Michael Kalichman University of California, San Diego Director, UCSD Research Ethics Program Co-Director, San Diego Center for Ethics in Science and Technology California Council on Science and Technology Council Meeting

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Assembly Select Committee on Bioethics, Medicine and Technology

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  1. Assembly Select Committeeon Bioethics, Medicine and Technology Michael KalichmanUniversity of California, San Diego Director, UCSD Research Ethics Program Co-Director, San Diego Center for Ethics in Science and Technology California Council on Science and Technology Council Meeting Sacramento, CA February 2, 2006

  2. Bioethics Focus Group Meeting December 2, 2005 Scripps Institution of Oceanography Goal:Priorities and parameters for the Assembly Select Committee on Bioethics and a statewide advisory panel on bioethics

  3. Bioethics Focus Group Meeting Participants • Mildred K. Cho, Associate Director, Stanford University Center for Biomedical Ethics • Lawrence Cooper, Legislative Director • Thomas Day, President Emeritus, San Diego State University • Danny DeCillis, Research Associate, California Council on Science and Technology • Susan Hackwood, Executive Director, California Council on Science and Technology • Sari Hamerling, Legislative Representative • Lawrence M. Hinman, Director, The Values Institute, University of San Diego • Michael Kalichman, Director, Research Ethics Program, University of California San Diego • Charles Kennel, Director, Scripps Institution of Oceanography • Jennifer Lahl, National Director of the Bay Area, Center for Bioethics and Culture • Assembly Member Lori Saldaña

  4. Framework for Bioethics • Ethicscompeting interests, minimize harms, maximize benefits • ApproachesEthicists (who and what); Judges vs. Facilitators • DomainsMedical ethics, bioethics, research ethics, science & technology ethics  Some of the most challenging and important problems of our time

  5. California • National leader in science and technology • Very little infrastructure in ethics • Unlike other countries, U.S. legislators only rarely have technical backgrounds • Stem cell initiative

  6. What are the goals? • Anticipate rather than merely react • Opportunity for much needed national leadership(national issues, rarely addressed) • Ethics as a part of rather than apart from research

  7. What are the problems? Examples • Pre-implantation and prenatal genetic diagnosis • Therapy vs. enhancement • Genetic technology and privacy • Trust, fear, memory, truth • Human-machine interface • Buying and selling of eggs • Social justice and new reproductive technologies • Clinical research policy • Research ethics education

  8. What are the constraints? • What limits should we place on these new developments? • What kind of society are we aiming for? • Resistance in research community because:a. poor understanding of publicb. poor reporting by media

  9. What can we do? • Training of researchers • Education of public • Increased dialogue involving research community, public, and media • Central home for science & technology policy in California • Regulations: Prohibitions, guidelines for conduct of research

  10. Possible first steps for Select Committee • Town Hall meetings:series of meetings around the state to develop bioethics agenda • Work groups:bioethicists and researchers – what do we have, what do we need?

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