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International Perspectives on Spinal Cord Injury (IPSCI)

International Perspectives on Spinal Cord Injury (IPSCI). Background . Guided by Convention on the Rights of Persons with Disabilities Building on WHO/World Bank World report on disability Will support the WHO global disability plan of action 2014 – 2021 . Aims of the Report .

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International Perspectives on Spinal Cord Injury (IPSCI)

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  1. International Perspectives on Spinal Cord Injury (IPSCI)

  2. Background • Guided by Convention on the Rights of Persons with Disabilities • Building on WHO/World Bank World report on disability • Will support the WHO global disability plan of action 2014 – 2021

  3. Aims of the Report • To bring together the best-available information on SCI, in particular epidemiology, services, interventions and policies; • To reflect the lived experience of people with SCI across the life course and throughouttheworld; • To make evidence-based recommendations for action.

  4. How was the Report developed? • Involvement of a large number of stakeholders: • advisory and editorial committees; • over 200 contributors from low, middle and high income countries. • Review process: regional consultation, peer review. • People with spinal cord injuries and their organizations central to the process • Swiss Paraplegic Research (SPF) provided support to WHO and ISCOS for report's development

  5. What does the Report tell us? • 250 000 – 500 000 • More men than women ratio 2:1

  6. Causes • Up to 90% are traumatic causes • Main three causes: road traffic crashes, falls and violence • Non traumatic injuries are growing in number

  7. Impacts • 2 to 5 times more likely to die prematurely • high costs to individuals and society. • indirect costs generally exceed direct costs. • costs of SCI are higher than for comparable conditions • much of the costs are born by individuals • lower rates of school enrollment and economic participation

  8. Key messages Spinal cord injury is: • preventable; • survivable; • liveable.

  9. What works to increase survival • Timely, appropriate pre- hospital care • Acute care

  10. What works to improve health and participation • Access to ongoing health care, • Access to rehabilitation and mental health services • Access to appropriate assistive devices • Specialized knowledge and skills • improve access to education and economic participation  

  11. Content Overview • Understanding SCI • A global picture of SCI • Prevention of SCI • Health care and rehabilitation needs • Health systems strengthening • Attitudes, relationships and adjustment • SCI and enabling environments • Education and employment • The way forward

  12. Main recommendations • Improve health sector response to SCI • Empower people with SCI and their families • Challenge negative attitudes to people with SCI • Ensure that buildings, transport and information are accessible • Support employment and self-employment • Promote appropriate research and data collection

  13. Summary • 250,000 – 500,000 people annually • SCI is preventable, survivableand liveable • The Report shows us how • Success is within reach

  14. Contact details Alana Officer – officera@who.int Doug Brown – doug.brown@thesri.org Jean-Jacques Wyndaele – Jean-Jacques.Wyndaele@uza.be Per von Groote – per.vongroote@paraplegie.ch

  15. Thank you

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