“The Year of the Family Caregiver”-Celebrating a Decade of Caring

1. “The Year of the Family Caregiver”-Celebrating a Decade of Caring Fifth National Conference for Caregiving Coalitions April 27, 2011 San Francisco, CA U.S. Department of Health and Human Services, Administration on Aging, Washington DC 20201 PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov| WEB www.aoa.gov

2. The National Family Caregiver Support Program

3. The National Family Caregiver Support Program (NFCSP) Created in the 2000 Reauthorization of the Older Americans Act Focus on Caregiver vs. Care Recipient General Provisions of Title III Apply Services delivery system Organization and structure (SUA, AAA, LSPs) Intrastate Funding Formula

4. The NFCSP – 10 Years of Growth Gradual increases in funding $125 million initial appropriation $154 million for FY 2010 $192.2 million for FY 2012 (requested) Projects of National Significance & Innovation New approaches Effectiveness of programs Quality and improvement through evaluation, training, TA and research 2006 Amendments Care Recipients with Alzheimer’s Disease of any age Lowered age for grandparents/other relatives to 55 Inclusion of older caregivers (55+) of individuals with disabilities (18-59)

5. Program Impact Who Do We Serve? 675,000 caregivers 1/3 work full time Primarily Women (73%) Elderly themselves 54% age 60+ 22% age 75+ 17% live in rural areas Grandparents 81% female 84% age 60-74 What They Tell Us? 84% receive respite 45% said respite was most helpful 75% reported less stress 85% reported caregiving was easier 95% reported service quality as good to excellent

6. NFCSP 10th Anniversary November 17, 2010 – 10th Anniversary Celebration Year of the Family Caregiver www.celebratingfamilycaregivers.org Calendar National, State, Local Events Tools, resources Video Testimonials

11. Looking Ahead:National Family Caregiver Support Program Vice President’s Middle Class Task Force – Caregiver Initiative Focuses on Specific Caregiver Needs Integrates Caregiver Supports with other HCBS FY 12 Budget Request NFCSP (III E) - $192.2 million Title VI C - $8.388 million ADSSP - $11.46 million Lifespan Respite - $10 million

12. The Lifespan Respite Care Program

13. Lifespan Respite Care Program What are Lifespan Respite Care Programs? Defined by the Lifespan Respite Care Act of 2006 (PL109-442) as: Coordinated systems of accessible, community-based respite care services for family caregivers of children or adults with special needs 13

14. Program Implementation Authorized in 2006 Funded in 2009 and 2010 at $2.5 Million President’s FY 12 Request: $10 Million Competitive Grant Process 12 States funded in FY 2009 12 States funded in FY 2010 FY 2011 Program Announcement Up to $200,000 for three year projects TA Activities – ARCH National Respite Network & Resource Center 14 14 14

15. Lifespan Respite Care Program States 2009 Alabama Arizona Connecticut District of Columbia Illinois Nevada New Hampshire North Carolina Rhode Island South Carolina Tennessee Texas 2010 Delaware Kansas Louisiana Massachusetts Minnesota Nebraska New York Oklahoma Pennsylvania Utah Washington State Wisconsin 15 15

16. Looking Ahead:Lifespan Respite Care Program 2011 Respite Summits – GA, MT, OH, VA FY 2011 Program Announcement Lifespan Respite Program Reauthorization 2011 National Respite Conference Glendale, AZ November 1-4, 2011 2nd Annual Grantee Meeting

17. Looking Ahead:Supporting Family Caregivers Health Care Reform Provisions Incentives to states to increase access to Medicaid HCBS Training for family and home care workers Expand access to care coordination and transitional care services

18. Contact Me Greg Link, MA U.S. Administration on Aging Washington, DC Greg.link@aoa.hhs.gov U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC 20201 PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov| WEB www.aoa.gov