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Self-care & Retention. June, 2012. Self-care and Retention. Pop-up Question. What do we mean by Self Care?. Visit Potent ARTs have transformed HIV into a chronic manageable disease

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Self-care &


June, 2012


Self-care and Retention

Pop-up Question

What do we mean by

Self Care?


Potent ARTs have transformed HIV into a chronic manageable disease

Many similarities to other chronic diseases but also important differences (stigma, drug resistance)

HIV therapy is life long

Treatment strategies must be sustainable

HIV patients have day-to day responsibilities for their care

Providers must support motivation, tools, and skills

Aberg J. The Changing Face of HIV Care: Common Things Really Are Common. Ann Intern Med. 2006;145(6):463-65

Self-care and Retention

HIV as a Chronic Condition

“The ability of patients with chronic illnesses, in a complementary partnership with their health care providers, to manage the symptoms, treatment, lifestyle behavior changes, and the many physical and psycho-social challenges that they face each day.”

A composite of definitions in the literature

Self-care and Retention

What is self-care?

Learn about their HIV disease

Develop effective communication skills

Actively partner with providers in decision-making

Practice action-planning and problem solving

Self-monitor symptoms and follow treatment directions

Seek expert medical care and advice

Use family, peer, and community support resources

Maintain emotional and psychological balance

Practice health-enhancing behaviors

Self-care and Retention

What is self-care for people with HIV/AIDS?


Self-care and Retention

Pop-up Question

Do you practice self care? How?



Self-care and Retention

Self-care and Retention in HIV Care

  • Personal.

[e.g. disease knowledge, perceived illness, acceptance]

  • Structural

[help remembering appointments, transportation]

  • Financial

[insurance, public support – housing, food, etc.]

For more information about self-care, visit the NQC web site:


Self-care and Retention

Things You Can Do to Improve Self-Care – Personal Changes

  • Improve knowledge about HIV; dispel negative beliefs
  • Improve your health literacy – your understanding of HIV care
  • Connect with others who can share information, answer questions and provide support

Visit – “Resources Tab”

to learn about effective retention initiatives.


Self-care and Retention

Things Others Can Do to Support Your Self-care

  • Reminder calls or texts
  • Transportation or other supports
  • Insurance that enables routine access to health care; know how to use care

Visit – “Resources Tab”

to learn about effective retention initiatives.


Self-care and Retention

Pop-up Question

What do you do to improve your ability to take care of yourself?

How do you engage others to support your self-care efforts?



Self-care and Retention

Check Out the

“Making Sure” Curriculum

  • It’s free
  • Avilable through the National Quality Center
  • Use if for your group of HIV+ peers

Download “Making Sure” at

Order Copies: [email protected]


Self-care and Retention

A Tool to Help

Improve Self-Care

  • Learn how to define “quality.”
  • Learn about “clinical indicators” to measure quality care.
  • Learn problem-solving and communication skills.
  • Learn to be your own self-care advocate.

Download “Making Sure” at

Order Copies: [email protected]


Self-care and Retention

Connect with Partners in+care

  • Learn about retention in HIV care
  • Learn about self-care
  • Link to and learn from others living with HIV/AIDS

Click the Partner Tab


Self-care and Retention

Join the Partners in+care Network

  • Email notices and updates about Pi+c and in+care Campaign
  • Provide advice [Pi+c surveys]

+Sign up to Be a Partner in Care

Visit – “Partners” Tab – Partners in+care Toolkit


Self-care and Retention

Directly Connect through Partners in+care on Facebook

  • Share tips, stories, experiences & resources
  • Community of people living with HIV/AIDS and allies
  • Secure and confidential
  • Join. Send email to [email protected] – Facebook in subject line

Visit Web - “Partners” tab

Sign up for Pi+c – “Partners” tab

Join Facebook

Send email to [email protected] – “Facebook” in subject line

Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floor

New York, NY 10007Phone 212-417-4730