Advocacy is:

2. Advocacy is: • When people support, speak or act on their own behalf, or on behalf of someone who asks for assistance. • A means to obtain information, services and resources, as well as the cooperation of health and social service professionals. • Not an adversarial approach, but an assertive and cooperative strategy.

3. Attitudes • Cooperation • Flexibility • Patience • Positive thinking • Persistence

4. Skills • Listening • Communication • Resourcefulness • Assertiveness • Self-care, such as taking holidays as needed

5. Resources • Family • Social support network (formal and informal – community groups) • Access to internet and other information sources

6. Knowledge • of hepatitis • of community agencies • of treatment processes • of self • of community support groups

7. The Rewards of Advocacy • Being able to influence other decision-makers such as health and social service providers and family members. • Conserving personal time and energy. • Learning new techniques to improve your people skills. • Knowing the difference between what you can and cannot change.

8. REMEMBER Plan ahead and try to take a break before stress symptoms appear. Knowing Yourself • Positive Responses • Stress and Breaks

9. Times Not to Advocate • When you are very tired or feeling overwhelmed. At these times, others can take on your advocacy role for you. • When the terms or rules of the health or social service organization are not delegated to the person you are dealing with.

11. Barriers to Advocacy • Being unprepared • Fearing retaliation or worrying that others will think you are ridiculous • Being aggressive • Being unaware of your rights • Having unrealistic expectations

12. Barriers to Advocacy • Being unwilling to listen to other people or to explore alternate solutions • Feeling inferior or less educated than those with whom you have to deal • Having English as your second language

13. Be Assertive Not Aggressive

14. Being Assertive is: • Knowing your limitations but focusing on your strengths • Being your real self • Labelling your feelings • Identifying and breaking down your own defences

16. Specific Skills • Listening • Being aware of your body language • Connecting feelings with behaviours • Expressing your feelings

17. Specific Skills • Avoiding sarcasm,character assassination or absolutes • Giving alternate behaviours • Learning to say no • Learning to avoid manipulation • Learning to see how others evade your assertive requests

18. UnproductiveAdvocacy Styles • Passive or Submissive • Aggressive • Passive-Aggressive • Manipulative

19. Control Your Feelings • Be positive • Inventory your feelings

21. UnderstandNegotiating Styles • Fighters or Attackers • Appeasers or Converters • Those who flee or dither • Analysts • Truth Seekers

22. REMEMBER Be Willing to Listen A person may be willing to compromise or give you something that you need under certain circumstances if you can make what they have to offer match what you need. If you listen carefully to what he or she has to say, you may be able to detect what these circumstances are. Don’t assume you already know a person’s reaction to what you will propose. As part of your listening, ask them for clarification: “It would help me if you could put in a nutshell your thoughts on what I’ve just said?”

23. Negotiate Methodically • Ask the person why he or she has said no to your request, and ask him or her to write the reason down for you on paper. • Ask the person what advice he or she would give you to achieve the solution you want. • Ask the person what solution he or she would recommend as an alternative.

24. Negotiate Methodically • If this alternative is acceptable, ask him or her when you can expect it to happen and ask him or her to write the solution and date it is expected to happen down for you. • If you disagree with the solution, tell the person your own ideas. If the other person disagrees with your ideas, return to #1.

25. Negotiate Methodically • Know your BATNA, or Best Alternative To a Negotiated Agreement. Can you walk away if you don’t get this? What other choices do you have? What are the pros and cons of each choice? Also consider what the other person’s BATNA might be. • Ask what are your best and worst case scenarios, and aim for the area in between during negotiations. Don’t drop below your worst, as you will later feel resentful and angry.

26. Negotiate Methodically • Stick to the problem, and to the facts of the situation. Do not attack the person’s intelligence, competence or sense of fairness. • If you find yourself becoming argumentative, angry or withdrawn, leave the conversation and come back another time when you are not upset. Say, “I am feeling that a bit of time may be helpful for me to reflect on what we have both said. When can we meet again to talk about this?”

27. Negotiate Methodically • Ask for a second opinion. If the other person agrees with the solution, ask him or her to write it down, including an expected date for it to occur. • Document all your meetings and telephone calls, including the date, to whom you spoke, and what was said.

28. REMEMBER Don’t give up because one person says no. Review your documents and determine if you need to change something in your plan. You may have to change your plan several times, but keep focussing on your goal! Negotiation is a process, not a one-time event.

29. Know Your Rights • Personal Bill of Rights • I have the right to ask for what I want. • I have the right to refuse services or resources that don’t meet my needs. • I have the right to change my mind. • I have the right to express my feelings, whether positive or negative. • I have the right to determine my priorities. • I have the right to advocate for myself. • I have the right to feel scared or afraid. • I have the right not to justify my decisions.

30. Know Your Rights • Personal Bill of Rights • I have the right to be treated with dignity and respect. • I have the right to play and be frivolous. • I have the right to experience honesty from others. • I have the right to take breaks from advocating and ask for help. • I have the right to feel angry. • I have the right to say that I am not ready or am unable to meet the demands and expectations of others. • I have the right to receive copies of anything I sign.

31. Observing Chainsof Command Answers:

34. Overall Principles • Plan ahead • Research all relevant literature about available resources • Write down your notes and questions before meeting representatives • Be clear about your requests

35. Overall Principles • Talk to the appropriate people • Write letters or e-mail • Make appointments • Plan for the worst case scenario • Remember that you are a valuable member of the team

36. Before a Meeting • Request a written agenda • Inform the group with which you are meeting that you would like to bring a tape recorder or another person with you when you are advocating for yourself • Timing is critical

37. During a Meeting • Keep meetings short and to the point • Say what you have to say and then stop • Be trustworthy, tell the truth, keep confidences and honour your promises

38. Writing Letters