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CLAHRC East of England. Integrating comprehensive, active PPIR in CLAHRC- EofE : building impact and relevance. Fiona Poland (UEA), Patricia Wilson (UH), Sarah Rae (CLAHRC PPI) CLAHRC- EofE PPI Theme. Bridging lives and evidence.

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integrating comprehensive active ppir in clahrc eofe building impact and relevance

CLAHRC East of England

Integrating comprehensive, active PPIR in CLAHRC-EofE: building impact and relevance

Fiona Poland (UEA), Patricia Wilson (UH), Sarah Rae (CLAHRC PPI)


bridging lives and evidence
Bridging lives and evidence

Research develops in lived contexts and has lived consequences

Every research stage works better when informed by real life-views (PPIR) not just research concepts

PPIR can voice concerns and values beyond those of the researchers

PPIR enables extended conversations and actions to be reflected in research – queries, analysis, feedback on user-friendliness

CLAHRC-EofE: an extended case study/ “natural experiment” to enhance and share PPIR

ppir as context specific no generic standards
PPIR as context specific – no generic standards

Senior management/organisation commitment to embedding PPIR

Adequate resourcing – PPIR capacity development

Defined PPIR roles, responsibilities and objectives

Good partnership working that leads to co-production

Effective evaluation of PPIR and sharing lessons

Feedback to people involved

Health Research Authority 2013 consultation paper

national links
National links
    • Tricia Wilson (UH)
    • AmanderWellings (PPIRes)
  • National research in PPIR
    • EVOC
  • Developing collaborations
    • Synergistic PPIR across AHSN as well as CLAHRC EoE
    • National evaluation of PPIR in AHSN/CLAHRCs (Tricia Wilson)
    • Promoting community research capacity via

ARVAC (Fiona Poland)

LEAD across the National Institute for Health Research

Influence research POLICY and PRACTICE


Build and share the EVIDENCE BASE

operationalising ppir infrastructure
Operationalising PPIR: Infrastructure

Multi-level systematic support, development review of relevance, quality and impact of NHS research:

PPI Board members

PPI–specific theme to coordinate, evaluate and support

Theme PPI leads and support

PPIR Core and Reference Groups

Project PPIR components (with 5% costs)

PPIR Implementation Action Research to examine, refine implementation objectives, share lessons


PPIR Board members


PPIR –specific theme

Theme PPIR leads and support

Theme PPIR leads and support

PPIR Implementation Action Research

operationalising ppir research projects
Operationalising PPIR: Research Projects

Implementing PPI in an NHS Research Programme: Evaluating the PPI contribution to CLAHRC research implementation

Patients and SUs as research partners: best models for patient experience in long term conditions services?

How to theorise rehabilitation therapies as part of a human rights-based multi-disciplinary approach to improving DP quality of life?

What PPI role in Systems Modelling & Simulation Research?

All other-theme projects to have PPIR components – each enacting PPIR in context of different topics and designs

operationalising ppir the implementation study
Operationalising PPIR: The Implementation Study

Aim –knowledge of “normalising” PPIR development and outcomes tracked across CLAHRC-EofE

Methods – Normalisation Process Theory (NPT) to identify, evaluate ,inform 2 Action Research cycles at programme and project levels. Surveys, focus groups, consensus events

PPIR - integral to all stages to include SU researchers

Integrated and enhanced PPIR across CLAHRC EofE

Outputs - NPT-informed evaluation of PPIR processes, experiences and impacts; case studies; accessible materials; knowledge network; peer-reviewed publications


CLAHRC East of England PPIR – sharing best practice and resources

Patient and Public Involvement in Research group (PPIRes)

Service Users Advisory Group(SUAG)

  • Region wide
  • Healthwatch
  • Voluntary groups with research agendas and experience e.g. Age UK, MIND, Alzheimer’s Society, Equal Lives

patIeNt and Public Involvement in REsearch (INsPIRE)

Service Users Reference Group (SURG)

Public Involvement in Research Group (PIRG)

NHS Trusts (e.g. Addenbrookes), CRN’s (e.g. DENDRON)

Popay et al 2013 involvement impact Assessment Framework (PiiAF)
developing an impact assessment plan
Developing an impact assessment plan

CLAHRC EOE basic principles

Project specific &

Normalisation Process Theory

PPIR Implementation Action Research

clahrc eofe natural experiment
CLAHRC-EofE: “Natural experiment”

PPIR to emerge and deepen across projects and partnerships – over 5 years prospective study

Lessons can be shared across and between PPIR participants, researchers, stakeholders

Resources (training, support, networks) can be built and tested

Review processes can refine processes and evaluate impact of PPIR and CLAHRC-EofE

Roles, “expertise” and power can be shared – with what effects on overall programme relevance?

clahrc eofe embedded ppir
CLAHRC EofE: Embedded PPIR

What will PPIR look like set in a richly-connected and grounded research programme context?

How acceptable is PPIR for diverse stakeholders in research?

How can PPIR enhance research experiences, robustness and impact?

This CLAHRC will provide rich, fine-grained and well-tested evidence from a regional test-bed