100 likes | 255 Views
Themes of presentation. BackgroundMethodologyConsultations with PLHIVDialogue meetings between PLHIV and providersLessons learned OutcomesNext stepsQuestions . Background. What is the Alliance?What are the Alliance programmes?PreventionCare
E N D
1. People living with HIV’s perceptions of care & treatment Damani Prevatt GoldsteinCHART Principals & Partners MeetingFebruary 02, 2007
2. Themes of presentation Background
Methodology
Consultations with PLHIV
Dialogue meetings between PLHIV and providers
Lessons learned
Outcomes
Next steps
Questions
3. Background What is the Alliance?
What are the Alliance programmes?
Prevention
Care & Support
Advocacy
Capacity Development
What is the Alliance role in CHART?
What was the purpose of 2006 activities in support of CHART?
4. Methodology Caribbean regional workshop on access to care & treatment
Design of treatment journey methodology
Consultations with PLHIV facilitated by support group leaders (Grenada, St Vincent, Barbados)
Presentation and discussion between PLHIV, providers, clinic managers, NAPs
Documentation
Follow up
5. Methodology Led by PLHIV using care & treatment services
Spark for discussion – not comprehensive
Communication & negotiation skills
Recommendations as well as perceptions
Shared responsibility for quality
Mixed group discussion – not ‘us and them’
Partnership building
Follow up commitments - support
6. Consultations with people on treatment Location of care & treatment services
Confidentiality
Overburdening of few specialists
Psychosocial & economic needs; not just medication
Information on treatment, incl. side effects
Client-provider communication
Participation of PLHIV in service delivery
7. Dialogue meetings between service users & providers Confidentiality
Adherence support
Client-provider communication
Treatment information
Integration of services
Greater involvement of PLHIV in care & treatment planning, training and delivery
8. Outcomes of process Presentation to junior doctors at hospital on service users experiences of care & treatment (Barbados)
Peer adherence support - training & implementation
Integration of AIDS clinic into general services (St Vincent)
Layout of pharmacy section revised to increase privacy (St Vincent)
9. Lessons learned Demand exists for greater dialogue between service users and providers
Engagement with CHART NTCs & NAPs from start of process
PLHIV role in identification of training needs of service providers
PLHIV role in training of service providers
Peer adherence support – training and systems development
Use waiting times – posters, leaflets, talks
Client-provider communication
10. Next steps Partnering with NACC Care & Treatment Sub-Committee
Consultation with service users and dialogue with providers - Trinidad
Assisting development of peer adherence support system in Barbados
Follow up support to implement commitments from dialogue meetings
11. THANK YOU!Questions? Contact Beverly Edwards at bedwards@alliancecarib.org.tt for more information and country reports