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Peer Support: What is the evidence?. Why has peer support emerged? What is it? What forms does it take? What is the evidence? Why does it work?. History. Family. Values & Beliefs. Friends. PERSON. Work. Hopes & Dreams. Education. Spirituality. Sexuality. Politics. 2. Family.

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peer support what is the evidence
Peer Support: What is the evidence?
  • Why has peer support emerged?
  • What is it? What forms does it take?
  • What is the evidence?
  • Why does it work?
slide2

History

Family

Values & Beliefs

Friends

PERSON

Work

Hopes & Dreams

Education

Spirituality

Sexuality

Politics

2

slide3

Family

History

Work

Politics

Friends

Values

Mental

Illness

Education

Spirituality

3

peer support as a reaction and creative response to
PEER SUPPORT AS A REACTION AND CREATIVE RESPONSE TO
  • Loss of Sense of Self
  • Loss of Connectedness
    • Guilt
    • Shame
    • Isolation
  • Loss of Power
  • Loss of Valued Role
  • Loss of Hope

Spaniol et al 1999

4

impact of illness
Impact of Illness

People are trying to cope with:

Trauma from the illness and loss of sense of personal identity

Being (initially at least) a passive recipient of mental health services

Dealing with stigma/”the helping relationship”

Peter Ryan March 2013

5

historical and policy context
Historical and Policy context
  • Service User/Consumer/Survivor Movement of 1980s and 1990s
  • Self help, empowerment, advocacy
  • New Zealand, USA, UK
  • The Emergence of Recovery: power of Service user narratives e.g. Patricia Deegan

Recovery as a Journey of the Heart (1996)

Recovery; the Lived Experience of Rehabilitation(1998)

development of peer support
Development of PEER SUPPORT

By the turn of the 21st century, the push for recovery and the use of peer support services accelerated across the UK, Canada, United States New Zealand and Australia as Peer Support initiatives matured, diversified, and increased in numbers.

In UK: 2008 onwards - Emergence of ‘Recovery Centres’

7

the arrival of new policy
The arrival of new policy
  • Securing our Future Health – Wanless 2002
  • Mental Health and Social exclusion 2004
  • Our Health, Our Care, Our Say 2006
  • The Next Stage Review 2008 –personal health budgets
  • The NHS Constitution 2008 –rights to respect and choice
  • Ireland –A vision for a recovery model in Irish mental health services (2005)
  • Scotland –Rights, Relationships and Recovery (2006)
  • No Health without Mental Health (2011)
recovery and peer support
Recovery and peer support

Same core values?

Peer support builds upon the value system which has evolved in the ‘recovery movement’

Peer support puts this into practice in terms of activities, services and modes of delivery

9

core values for recovery peer support
CORE VALUES FOR RECOVERY/PEER SUPPORT

Recovery/peer support is about building a meaningful and satisfying life, as defined by the person themselves, whether or not there are ongoing or recurring symptoms or problems

Represents a movement away from pathology, illness and symptoms to health, strengths and wellness

About discovering - or re-discovering a sense of personal identity, separate from illness or disability - The language used and the stories and meanings that are constructed have great significance as mediators of the recovery process – the power of narrative

Hope is central to recovery and can be enhanced by each person seeing how they can have more active control over their lives (‘agency’) and by seeing how others have found a way forward

Self-management is encouraged and facilitated.

recovery peer support
RECOVERY/PEER SUPPORT

The helping relationship between clinicians and service users moves away from being expert/patient to being ‘coaches’ or ‘partners’ on a journey of discovery

Clinicians are there to be “on tap, not on top”

People do not recover in isolation. Recovery/peer support is closely associated with social inclusion and being able to take on meaningful and satisfying social roles within local communities, rather than in segregated services

what is peer support
What is peer support?

Whilst a shared lived experience of mental distress is fundamental to peer support, it also needs to address other shared experiences, identities and backgrounds.

Peer support has to be based on certain values and ethos, including empathy, trust, mutuality and reciprocity, equality, a non-judgemental attitude.

Contexts and support that people describe as ‘peer support’ do not always fit neatly into definitions of ‘intentional’, ‘formal’, ‘informal’ or ‘naturally occurring’ peer support. (Faulkner, 2011)

who is a peer
Who is a peer?

75%: more than a shared personal experience of mental distress in common with them

Of these:

76%: shared ideas about what recovery means

73%: shared understandings of specific diagnoses and their effects

58%: shared views about medication and other treatments

55%: shared gender, ethnic background, sexual orientation, age groups, faith etc.

For respondents from BME groups, 66% said shared ethnic/cultural background; understanding of marginalisation and barriers

a peer is
A PEER IS…

“ someone who has had their own experience that resonated with mine and so we can support each other in a way that is personally useful… Someone who can help me think through what is happening to me rather than tell me what is happening to me based on their experience.”

peer support models
PEER SUPPORT Models

Varies widely in the forms it takes. Can include:

Self-help/self management groups

Drop-in centres

Specialised peer services (ward based/crisis, unemployment, homelessness)

WRAP groups

Lifelong Learning groups (eg EMILIA)

Peer phone/facebook/twitter initiatives

16

peer support common ingredients
PEER SUPPORT Common Ingredients

While many of the details of peer support models appear to be different, at the heart of them is a common set of peer structures, beliefs, and practices that are intended to recognize and nourish personal strengths and personhood and support a quality life for participating peers.

The systematic identification of cross-cutting elements common to peer programmes produced a list of “common ingredients” and an objective rating system to measure program fidelity and conduct quality improvement (Holter, Mowbray, Bellamy, MacFarlane, & Dukarski, 2004; Johnsen, Teague & McDonel Herr, 2005).

17

peer support common ingredients1
PEER SUPPORT Common Ingredients

Programme characteristics

Service user operated

Service user-centred

Operate in socially inclusive ‘normative’ settings

But not always – eg peer support on wards

Values

Embrace the principles of choice, hope, empowerment, recovery, diversity, spiritual growth, and self help/self management

Programme elements

Encourage participants to “tell their stories” of illness and recovery – the power of narrative

Engage in formal and informal peer support

18

peer support programme elements cnt d
PEER SUPPORT Programme ELEMENTS (cnt’d)
  • Mentoring and become mentors/or leaders
  • Learning self-management and problem-solving strategies
  • Learning a ‘recovery strategy’
  • Expressing themselves in innovative and creative ways
  • And advocating for themselves and other peers
  • In socially inclusive, ‘normative’ environments
a distinguishing feature
A DISTINGUISHING Feature

Lifelong learning approaches as a key, core process –

Learning opens possibilities of the ‘power of narrative’

Learning doesn’t assume a mental health services context.

Learning together doesn’t assume one of you is an ‘professional expert’

Everyone learns from the basis of their own lived experience

Designed AND delivered by peers

To peers

Or to peers and professionals

20

does it work peer support research
DOES IT WORK? PEER SUPPORT RESEARCH

Until recently, mental health services research has focused primarily on the effectiveness of traditional mental health modalities and programs to treat mental illness.

Mental health services research has neglected to consider peer support as producing positive outcomes that lead to recovery for persons with mental illness.

21

1 peer support consumer operated services program cosp multi site research initiative
1) PEER SUPPORT Consumer operated services program (COSP) Multi-site Research Initiative

After a decade of research on eight peer support programmes located across the United States (1998–2008) (Goldstrom, Campbell, Rogers, Lambert, Blacklow, Henderson & Manderscheid, 2005).

4: peer support drop in centres

2: peer support lifelong learning and advocacy programmes

2: peer support approaches to individuals and groups

22

cosp study results
COSP Study Results

Analysis of more than 1,800 participants in the randomized, controlled trial revealed that those offered peer support services as an adjunct to their traditional mental health services showed significant gains in well-being—hope, self-efficacy, empowerment, goal attainment, and meaning of life—in comparison to those who were offered traditional mental health services only.

http://www.promoteacceptance.samhsa.gov/

23

change in well being over time
Change in Well-being Over Time

* COSP = Consumer-Operated Service Programs

TMHS = Traditional Mental Health Services

http://www.promoteacceptance.samhsa.gov/

24

cosp study results1
COSP Study Results

The greatest gains in well-being were found for the participants who used the peer support services the most.

Variations in well-being effects across sites were unrelated to formal COSP models of peer support service delivery.

Most important, analyses of COSP common ingredients and outcome results established evidence of a strong relationship between key peer practices that support inclusion, peer beliefs, self-expression, and an increase in well-being outcomes.

25

well being improved by intensity of cosp use
Well-being Improved by Intensity of COSP Use

http://www.promoteacceptance.samhsa.gov/

26

conclusion
CONCLUSION?
  • As an adjunct to traditional mental health services (TMHS), participation in COSPs by adults with serious mental illness had positive effects on participants’ subjective well-being
  • Analyses of COSP common ingredients and outcome results established evidence of a strong relationship between key peer practices that support inclusion, peer beliefs, self-expression, and an increase in well-being outcomes.
2 wrap intervention study cook j copeland m schizophrenia bulletin march 2011

2) Wrap intervention study: cook j & copeland m schizophrenia bulletin march 2011

Intervention lasted for 8 weeks

Met for 2 and ½ hours every week

Followed a highly standardized curriculum designed by Mary Ellen Copeland

Facilitator curricular innovations discouraged

Used a detailed Facilitators Manual and Overhead Slides

wrap wellness recovery action plan
WRAP (wellness recovery action plan)

Wellness Toolbox

Daily Maintenance Plan

Triggers and an action plan

Early warning signs and an action plan

When things are breaking down and an action plan

Crisis Planning

Post Crisis Planning

wrap curriculum

WRAP CURRICULUM

Session 1: Key concepts of WRAP & recovery

Session 2-3: Identify personalized wellness strategies. Engage in exercises to enhance self-esteem, build competence, & explore benefits of peer support.

Session 4: Create daily maintenance plan (simple, inexpensive strategies) to stay emotionally and physically healthy. Create plan for recognizing & responding to symptom triggers.

Session 5: Identify early warning signs and how these signal a need for additional support

Session 6-7: Create crisis plan specifying signs of impending crisis, names of individuals willing to help, & types of assistance preferred.

Session 8: Create plan for post-crisis support & learn how to retool WRAP plan after a crisis to avoid relapse. Graduation ceremony

wrap study design

WRAP Study Design

Recruited at CMHC & peer support programmes

Subjects were randomised to receive WRAP right away or 9 months later

Telephone interviews at study entry (baseline), 2 months post-baseline, & 8 months post-baseline by (blinded) interviewers

outcomes

Outcomes

Recovery – Recovery Assessment Scale

Empowerment – Empowerment Scale

Self-Advocacy – Pt. Self-Advocacy Scale

Social Support – Medical Outcomes Study

Hopefulness – Hope Scale

Quality of Life – WHO QOL

Symptoms – Brief Symptom Inventory

Coping – Brief Cope Scale

Stigma – Mental Illness Stigma Scale

Physical Health Perceptions – MOS

study process

Study Process

  • 850 individuals screened for Waves 1-5
    • 680 eligible & agreed to participate
    • 555 (82%) completed Time 1 interviews
  • 276 randomized to E group, 279 C group; 7% combined attrition; E=251, C=268
  • Ss attended average of 5 classes (out of 8)
    • 53% attended 6+ groups; 16% attended 0 groups (still counted as receiving WRAP)
  • Average fidelity=91% over all waves (90% wave 1-92% wave 5; no site differences)
study participant characteristics

Study Participant Characteristics

  • 66% female, 34% male
  • Average age: 46 years, range from 20-71 years old
  • 63% White, 28% Black, 2.9% American Indian/Alaskan Native, <1% Asian/Pacific Islander, 7% other
  • 4.8% Hispanic/Latino
  • 82% High school graduate/GED or more
  • 88% unmarried
  • 67% living in their own home or apartment
  • 76% had been hospitalized for psychiatric reasons
  • Most common self-reported diagnoses: 38% bipolar disorder; 25% depression; 21% schizophrenia spectrum
  • 85% not employed; 51% expected to work next year

No sig. differences by study condition

wrap outcomes

WRAP Outcomes

In a multivariable longitudinal random-effects regression analysis, WRAP recipients improved more than controls from T1 to T3 on multiple outcomes:

Reduced psychiatric symptom severity

Increased hopefulness

Decreased coping through self-blame

Increased quality of life

Increased self-advocacy

Increased recovery

Increased empowerment

additional findings

Additional Findings

The greater the % of WRAP classes attended, the greater WRAP participants’…

Reduction in overall symptom severity

Reduction in depressive symptoms

Reduction in symptoms of anxiety

Increased quality of life

Increased sense of recovery

3 emilia ryan et al 2012 empowerment lifelong learning and recovery in mental health palgrave
3) EMILIARYAN ET AL (2012) EMPOWERMENT, LIFELONG LEARNING AND RECOVERY IN MENTAL HEALTH PALGRAVE
  • Empowerment of Mental Illness service users: Life Long Learning, Integration and Action
  • European Framework 6 funding 3.4 million Euros
  • 18 centres across Europe
research in emilia
Research in EMILIA
  • 8 case control-follow up
  • Basic structure: baseline and follow up at 10 and 20 months
  • two strands: organisational and individual
  • Organisational: demonstration sites as Learning organisations
  • Service Use (CSSRI)
  • Individual: quality of life assessment (SF-36) and interviews
  • @ Middlesex: Sense of coherence scale (SOC)
emilia life long learning packages
EMILIA Life Long Learning packages
  • Developed by service users forservice users
  • Taught by service users
  • No entry requirements
  • Recovery *
  • Strengths Approach*
  • User Leadership – Powerful Voices*
  • Research Skills*
  • Teaching Skills *
  • * Accredited courses at Middlesex University
cnt d
CNT’D

Working with post traumatic stress (PTSD)

Social Network Support

Suicide Prevention

Social and community Competences

Dual Diagnosis

Employers and Colleagues

Working with Families

*******

Personal Development Planning online

Training the Trainers

Website:

http://www.entermentalhealth.net/EMILIA_2/emilia.html

the middlesex lifelong learning intervention
The Middlesex Lifelong Learning Intervention
  • Service User roles as:
  • Trainers\educators
  • Researchers\auditors
  • Students/learners
impact
Impact
  • An increase from 7.3% in competitive paid employment at baseline to 14.6% at 20 month follow-up and there were similar increases in voluntary employment
  • Significant increase in disposable income, and a marginal increase in the participants’ mental health-related quality of life at 20 month follow-up
  • Increase in average number of paid hours normally worked in a week from .3 of an hour at baseline and to 3.23 hours at 20 month follow-up
  • Significant reduction in mean number of days of admission in a psychiatric hospital at baseline was 14 and at the 20 month follow-up it was reduced to 7 days.
salutogenesis sense of coherence
SALUTOGENESIS: SENSE OF COHERENCE
  • “a global orientation that expresses the extent to which one has a pervasive, enduring though dynamic feeling of confidence that one’s internal and external environments are predictable and that there is a high probability that things will work out as well as can reasonably be expected” (Antonovsky 1987)
soc sense of coherence
SOC: Sense of Coherence
  • Results revealed that there was a significant increase in SOC-13 scores from baseline (M=29.54, SD=12.23) to a 10 month follow-up point (M=34.82, SD=10.80), t(21)=-2.58, p<.05 (two-tailed). The mean increase in SOC-13 scores was 5.36 with a 95% confidence interval ranging from -9.69 to -1.04. The eta squared statistic (.24) indicated a large effect size.
sense of coherence
Sense of Coherence
  • The relationship between sense of coherence (measured by the SOC-13 scale) and mental health related quality of life (measured by the SF-36V2 scale) was investigated by using Pearson product-moment correlation coefficient There was a strong positive correlation between SF-36V2 mental health related quality of life and SOC-13 scores at both baseline r = .689, n = 22, p < .0005 and follow-up r = .792, n = 22, p < .0005.
conclusion peer support the evidence does it work
CONCLUSION: Peer Support – the evidence –does it work?

Peer support study results suggest a promising

evidence-base

Peer support approaches promote well-being, and a reduced use of mental health services

When offered as an adjunct to the treatment of mental illness, they promise mental health service users a more stable, meaningful and coherent (connected) life in the community.

46

why does peer support work the power of the narrative
WHY DOES PEER SUPPORT WORK? The power of the Narrative
  • People make sense of the world through stories (Mischler, 1986)
  • The “self” is viewed as socially constructed and formed through shared language (DeSocio, 2005)
  • Self is seen as “an unfolding reflective awareness of being-in-the-world” (Ochs & Capps, 1996)
narrative construction of self
NARRATIVE CONSTRUCTION OF “SELF”
  • As our narratives shape how we remember events, our beliefs about what is important to our “selves”

are shaped and formed.

  • In addition to representing fragments of experiences, narratives represent fragments of our “selves”. In the telling of a single narrative, we only evoke certain aspects of “self” to represent specific beliefs, values, and experiences.
  • The “self”in a single narrative may be presented as public or private, past or present, subject or object, normal or abnormal (Ochs & Capps, 1996).
narrative construction of self1
NARRATIVE CONSTRUCTION OF “SELF”
  • The ability to create coherent narratives of past

experiences may play a pivotal role in resilience and

well- being

  • Much empirical research now supports the link between

narrative characteristics, such as coherence and emotionality,

and well-being

  • An increase in narrative coherence over time, as well

as a shift in focus to thoughts and feelings rather than

concentrating on the facts, is associated with less

distress and anxiety and also better physical health

(Foa, Molnar & Cashman, 1995; Pennebaker, 1997).

  • Baerger and McAdams (1999) have found that high levels of

coherence in life story narratives are associated with lower

levels of depression, higher life satisfaction, and more

happiness

slide51

Life event(s)

Illness

Recovery

Stress

Social Inclusion

Life Long Learning

Sense of Coherence

Hope

Interpersonal

relationships,

social support

Skills

references
References

Andresen R, Oades L, Caputi (2003) The experience of recovery from schizophrenia; towards an empirically validated stage model. Australian and New Zealand Journal of Psychiatry, 37, 586-594.

Anthony W A (1993) Recovery from mental illness; the guiding vision of the mental health service system in the 1900s. Psychosocial Rehabilitation Journal, 16, 11-23.

Craddock N. et al (2008) A wake up call for British psychiatry. The British Journal of Psychiatry, 193, 6-9.

College of Occupational Therapists (2006) Recovering ordinary lives the strategy for occupational therapy in mental health services 2007 – 2017. London: COT.

Davidson L, McGlashan TH (1997) The varied outcomes of schizophrenia. Psychiatric Services, 57, 642 – 645.

references1
REFERENCES

Deegan P (1996) Recovery as a journey of the heart. Psychiatric Rehabilitation Journal, 19 (3), 91-97.

Deegan P (1998) Recovery; the lived experience of rehabilitation. Psychosocial Rehabilitation Journal, 11, 11-19.

Hope R (2004) The 10 essential shared capabilities: a framework for the whole of the mental health workforce. London: DH.

Gould A, DeSouza S, Rebeiro-Gruhl KL (2005) And then I lost that life: a shared narrative of four young men with schizophrenia. British Journal of Occupational Therapy, 68 (10), 467-473.

National Institute for Mental Health in England (2005) NIMHE Guiding statement on recovery. Available at www.nimhe.org.uk

Shepherd G, Boardman J, Slade M (2008) Making recovery a reality. London: Sainsbury Centre for Mental Health.

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