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“DIGITAL LITERACY: The Citizen and the Patient”

“DIGITAL LITERACY: The Citizen and the Patient”. Strategic binoculars for a new landscape. “DIGITAL LITERACY: The Citizen and the Patient”.

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“DIGITAL LITERACY: The Citizen and the Patient”

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  1. “DIGITAL LITERACY: The Citizen and the Patient” Strategic binoculars for a new landscape Jean Wooldridge, MPH www.st-cloud.com

  2. “DIGITAL LITERACY: The Citizen and the Patient” “I know of no better repository for the knowledge and power of society than with the people themselves; if we think them not enlightened enough, we must inform their discretion.” ….the seeds of Jeffersonian democracy Michael D. McDonald, Ph.D. “The Public Health Communications Toolbox” 1995 Jean Wooldridge, MPH www.st-cloud.com

  3. “DIGITAL LITERACY: The Citizen and the Patient” “Nanotechnology, biosensors, body networks, and smart homes are combining to give consumers the tools to take control of their health and maintain their lifestyle. This emerging network of technologies can also help create a web of interpersonal relationships that reinforce healthy behaviors and medical compliance. The detailed, continuous and individual data from such a network is synergistic with advances in both human genome and conventional medical research, and offers the potential for creation of a data-rich, personalized, and preventative medical science . ” Alex Pentland and The Media Lab’s Health Special Interest Group, Massachusetts Institute of Technology Jean Wooldridge, MPH www.st-cloud.com

  4. Individual – BodyMedia, Smart Shirt, Money, RFID tags,Ambient Technologies Jean Wooldridge, MPH www.st-cloud.com images from www.bodymedia.com

  5. Community – Digital Dividends, Kurzweil & The Brain, Smart Money’s Map of the Market, The Boston Marathon Digital Dividends Smart Money Ray Kurzweil Jean Wooldridge, MPH www.st-cloud.com

  6. “DIGITAL LITERACY: The Citizen and the Patient” How can we be wise in using all of this data? …as citizens? …as patients? Jean Wooldridge, MPH www.st-cloud.com

  7. “DIGITAL LITERACY: The Citizen and the Patient” • Introduction • The Relationship between Citizen and Patient (and wellness-seeker) • Changing Definitions • Emerging Technologies & Trends • Bellwether Industries for health • finance, aviation, law • consortiums, graphic interfaces • The Far Horizon • our bodies, our communities, our planet Jean Wooldridge, MPH www.st-cloud.com

  8. “DIGITAL LITERACY: The Citizen and the Patient” Introduction: strategic binoculars for the new technology landscape: a landscape with sensors, networks, and the semantic web, an “aware and alive” environment of smart shirts, homes, RFID tags, WiFi where lots of conversation happens: people & people, people & things, things & things a new landscape in for opportunity and protection As Paulo Friere felt, literacy is a dynamic changing interactive experience. We are changed by our literacy. Jean Wooldridge, MPH www.st-cloud.com

  9. “DIGITAL LITERACY: The Citizen and the Patient” How can we be wise in our overlapping roles …as citizens? …as patients? Jean Wooldridge, MPH www.st-cloud.com

  10. “DIGITAL LITERACY: The Citizen and the Patient” The Relationship between Citizen and Patient We are all citizens. And we are all patients. We all seek the health of our families, and hopefully of our communities, our regions, nations, and our world. Roles overlap. Connectedness globally, SARS. Informed=Able Advocacy groups Responsibility - health and social problems Examples: e-government of Mexico, U.S. state of Wisconsin Jean Wooldridge, MPH www.st-cloud.com

  11. “DIGITAL LITERACY: The Citizen and the Patient” How can we be wise in our changing literacy? …as citizens? …as patients? Jean Wooldridge, MPH www.st-cloud.com

  12. “DIGITAL LITERACY: The Citizen and the Patient” Changing Definitions: 1990’s: Gilster and others focused on hardware & software and the ability to critically manage and produce information; computer-based, categories of competencies 2000’s: + cultural competency, responsibility in creation, digital society, possibilities of non-linear and other kinds of thinking Jean Wooldridge, MPH www.st-cloud.com

  13. “DIGITAL LITERACY: The Citizen and the Patient” Changing Definitions continued: The larger Digital Society: ITU (International Telecommunication Union) “2003 World Telecommunication/ICT Indicators Meeting” January 15-19, 2003, in Geneva, Switzerland white paper on “8 C’s of the Information Society” Connectivity, Content, Community, Commerce Capacity, Culture, Cooperation, Capital Jean Wooldridge, MPH www.st-cloud.com

  14. “DIGITAL LITERACY: The Citizen and the Patient” • Changing Definitions continued: • The larger Digital Society: • 21st Century Literacy Summit in Berlin, Germany (March, 2002) Technology literacy • Information literacy • Media literacy • Global literacy • Literacy with responsibility Jean Wooldridge, MPH www.st-cloud.com

  15. “DIGITAL LITERACY: The Citizen and the Patient” • Changing Definitions continued: • What is not being said? • Digital literacy as the ability to use technology to enhance and modify the individual’s genetically- and environmentally-determined thinking patterns and brain physiology. • (functional MRIs, biosensors) • Digital literacy as the ability to protect oneself and one’s data. Jean Wooldridge, MPH www.st-cloud.com

  16. “DIGITAL LITERACY: The Citizen and the Patient” What technologies and trends will affect us? …as citizens? …as patients? Jean Wooldridge, MPH www.st-cloud.com

  17. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends • Patient needs -> the centerpiece of health care (U.S. Institute of Medicine 2001 reports, “Informing the Future” and “Crossing the Quality Chasm”) • May03 Launch of www.askme3.org • (3 ?s: What is my main problem? What do I need to do? • Why is it important to do this?) • E-Government Initiatives (Mexico, U.S, others) for efficiency and responsiveness Jean Wooldridge, MPH www.st-cloud.com

  18. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued • Information Architecture, Semantic Web • Sensors, RFID chips, Bots (robots) • Agent technologies, Groupware • Affective and persuasive computing • Usability, Visualization tools • Simulations Jean Wooldridge, MPH www.st-cloud.com

  19. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued • “…I think it is difficult for people to conceive of an environment which is, of itself, intelligent and aware. We are quite used to the opposite: a "dumb" environment, in which we are safe and secure, where it takes almost superhuman effort and lots of money to get information in and out from wherever we might be. Who can imagine the opposite: an environment in which getting information in and out is almost omnipresent, and almost free? Even more shocking: one in which cameras and sensors are also ubiquitous, and in which embedded Radio Frequency IDs are, like their sensors, everywhere?…The space around you is no longer a buffer, but is a conductor. For the first time in the history of the planet, you will not be hidden by your environment, but connected by it.” • Mark Anderson, Strategic News Service 30 April 2003 (www.tapsns.com) Jean Wooldridge, MPH www.st-cloud.com

  20. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued • 1) The aging population – • great concern • increased burden of chronic disease • decreased tax base of shrinking workforce • strategies for “aging-in-place” Jean Wooldridge, MPH www.st-cloud.com

  21. …a note about home-centered health management… • The locus of health management will move back to the home • “Ironically, it’s beginning to seem that this period of apparently normal centralization [..to special facilities..] was a temporary aberration. A century later, gains in technology are moving care back to home settings.” • “…home-centered capability is expected to become a catalyst for a huge health paradigm shift from ‘last-minute heroic intervention’ to ‘consumer-driven individualized prediction, prevention, early detection, and maintenance’.” William Herman, Center for Devices and Radiological Health, FDA (U.S. Food and Drug Administration) Jean Wooldridge, MPH www.st-cloud.com

  22. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued • 2) The Wireless Landscape and the Semantic Web – • WiFi landscape is changing from “raisin muffin” to the “cooperative cloud” as the environment becomes alive and aware, generating its own data and interacting with other “things” as well as people. • The Semantic Web uses a multitude of technologies which make data easy to use by computing devices; devices talk with each other, work with software agents sent by you to find and analyze information, and speeds information flow to whatever person or device needs it. Within ten years. Defense into commerce. • . Jean Wooldridge, MPH www.st-cloud.com

  23. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued: • 3) The balance of access with privacy and liberty • As natural boundaries collapse for information and data, we will need to discuss what artificial boundaries we want to set – for other people, computing devices, and data. • Examples: • RFID tags need killer switches when we leave the store Smart fabrics that dispense vitamins, antifungal agents, or nutrients, need clear labeling Jean Wooldridge, MPH www.st-cloud.com

  24. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued: • 3) The balance of access with privacy and liberty cont. • Examples continued: • Data mining of marketers and government will need secure aggregation tools. • Programs such as HIPPA must protect both the flow of data and the privacy of data. Jean Wooldridge, MPH www.st-cloud.com

  25. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued: • 3) The balance of access with privacy and liberty cont. • Already problems from commerce and government: • Genetically modified foods in market with no labeling, in US. • Email spam -> national legislation. • Atlanta marketing firm is using functional MRIs to test. • In April, the state of Hawaii in the U.S. passed a resolution protecting the individual liberties of its citizens and calling for the repeal of certain provisions of the USA Patriot Act, rushed through Congress in the aftermath of 9/11. Jean Wooldridge, MPH www.st-cloud.com

  26. “DIGITAL LITERACY: The Citizen and the Patient” • Emerging Technologies and Trends continued: • And, of course, • “The dominant language… and economic driver…of this century… is going to be GENETICS….Those who remain illiterate in this language won’t understand the force making the single biggest difference in their lives.” • Juan Enriquez, As the Future Catches You, 2001 Jean Wooldridge, MPH www.st-cloud.com

  27. “DIGITAL LITERACY: The Citizen and the Patient” What bellwether industries will be our strategic binoculars? …as citizens? …as patients? Jean Wooldridge, MPH www.st-cloud.com

  28. Bellwether industries for health – strategic binoculars • Bellwether Industries for health – • strategic binoculars: • finance • aviation • law • and examples of consortiums, graphic interfaces Jean Wooldridge, MPH www.st-cloud.com

  29. “DIGITAL LITERACY: The Citizen and the Patient” • Bellwether Industries for health: • Characteristics: • Greatest information imbalances among stakeholders • Similar characteristics for consumer decisions • Use of new technologies in different ways and at different rates of adoption Jean Wooldridge, MPH www.st-cloud.com

  30. Example – Decision Tools in Wealth fidelity Jean Wooldridge, MPH www.st-cloud.com

  31. “The whole thing reminds me of the uncomfortable feeling I experienced when I first sought out investment advice….I concluded that I had to undertake the generalist’s job myself; I had to take the high-level management of my investments into my own hands. ” Andy Grove, Co-Founder and Chair, Intel Fortune, April 1996 “Taking on Prostate Ca” Jean Wooldridge, MPH www.st-cloud.com

  32. Example – Decision Tools in Health nexcura.com’s cancerfacts Jean Wooldridge, MPH www.st-cloud.com

  33. Jean Wooldridge, MPH www.st-cloud.com

  34. Example – Decision Tools in Aviation Richard Rockefeller, MD Health Commons Institute Jean Wooldridge, MPH www.st-cloud.com

  35. Jean Wooldridge, MPH www.st-cloud.com

  36. Example - Decision Tools in Law • 35 years ago, the legal self-help movement began with one book, How to Avoid Probate • Today, Nolo Press has 100+ titles, and over $13M in sales • U of Pittsburgh: free 47 cyber law courses • AZ set up a self-service center in 1995 for phone, web or in-person actions for domestic protection orders on the same day w/out lawyer • The Web is driving comprehensive services -> unbundled, tailored Jean Wooldridge, MPH www.st-cloud.com

  37. “DIGITAL LITERACY: The Citizen and the Patient” • Bellwether Industries for health – • strategic binoculars: • Consortiums and Graphic Interfaces Jean Wooldridge, MPH www.st-cloud.com

  38. Example of Collaborations – Intel’s Proactive Health Research Program • Eric Dishman and his team • Helping the elderly age gracefully at home with • sensor network, home network • activity tracking, ambient display “think big, think long-term”“ask the customer early and often” Jean Wooldridge, MPH www.st-cloud.com

  39. Example of Collaborations – Hybrid Vigor Denise Caruso and team “Virtual watering holes for a global network” Jean Wooldridge, MPH www.st-cloud.com

  40. Example of Collaborations – Medbiquitous • 40 professional societies from 5 continents • 5 journals • 17,000 surgeons • 50,000 unique visitors/month • Shared database and applications A single portal for Cardiothoracic Surgery information Jean Wooldridge, MPH www.st-cloud.com

  41. Example of Graphic Interfaces - World Resources Institute idea capsules Jean Wooldridge, MPH www.st-cloud.com

  42. World Resources Institute’s Digital Dividends Clearinghouse using Praja technologies Jean Wooldridge, MPH www.st-cloud.com

  43. Example of Graphic Interfaces – Kurzweil and The Brain dynamic spider web of relationships Jean Wooldridge, MPH www.st-cloud.com

  44. Example of Graphic Interfaces – Cancer Information Continuum presentation by St. Cloud Jean Wooldridge, MPH www.st-cloud.com

  45. Example of Graphic Interfaces - BodyMedia Jean Wooldridge, MPH www.st-cloud.com

  46. Example of Graphic Interfaces - Smart Money’s Map of the Market real-time dynamic interface with sophisticated graphic encoding of information Jean Wooldridge, MPH www.st-cloud.com

  47. Digital Literacy – The Far Horizon • Our Bodies • Our Communities • Our Planet • Symmetries, Transparencies and Symbiotic Stewardships Jean Wooldridge, MPH www.st-cloud.com

  48. Contact Information: Jean A. Wooldridge, MPH St. Cloud Communications Bellevue, WA Jean@st-cloud.com Earth photos courtesy of NASA Jean Wooldridge, MPH www.st-cloud.com

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