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Health Data in Ireland May 2019. Dr Claire Buckley, Specialist in Public Health Medicine, HSE Senior Lecturer, School of Public Health, UCC General Practitioner. Health Data. Much data generated Numerous sources. Health Data. Morbidity Health information systems
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Health Data in IrelandMay 2019 Dr Claire Buckley, Specialist in Public Health Medicine, HSE Senior Lecturer, School of Public Health, UCC General Practitioner
Health Data • Much data generated • Numerous sources
Health Data • Morbidity • Health information systems • Hospital In-Patient Enquiry Scheme • Computerised Infectious Disease Reporting • Community • Disease registers • EUROCAT • National Surveys • Healthy Ireland
Hospital In-Patient Enquiry • Hospital discharge data • All public hospitals in Ireland
Hospital In-Patient Enquiry • Administrative: • Hospital • Consultant • Length of stay • ICU usage • Type of admission • Type of discharge • Type of ward • Date of operation • Private/public bed usage
Hospital In-Patient Enquiry • Demographic: • Age (DOB) • Gender • Area of residence • Marital status • Medical card status • Health insurer • Clinical: • Up to 29 diagnoses • Up to 20 procedures
Routine Hospital Discharge Data • Potential Research Resource • Validity and Reliability • Validity • extent to which a measurement does what it supposed to do • Reliability • a reliable measurement is one that if repeated a second time will give the same results as it did the first time
Health Atlas • Health Intelligence Unit, HSE • Provides an analytical and display route to a range of datasets including HIPE • Access has to be sought and requested on a person-by-person basis
Computerised Infectious Disease Reporting Health Protection Surveillance Centre
Computerised Infectious Disease Reporting • Surveillance and Control of Infectious Diseases in Ireland • National Infectious Disease Legislation • International requirements
Methods of Notification Email: dph@hse.ie Tel: (021) 4927601
Notify to who? Health Protection Surveillance Centre Departments of Public Health Medical Officers of Health
Community Primary Care Re-imbursement Scheme
Primary Care Re-imbursement Scheme • Responsible for reimbursing GPs, Dentists, Pharmacists, Optometrists/Ophthalmologists and other contractors who provide free or reduced-cost services to the public across a range of community health schemes.
Primary Care Re-imbursement Scheme • Routine pharmacy reports detailing claiming patterns, claims rates and payments.
Disease Registers • Disease or patient registries are collections of secondary data related to patients with a specific diagnosis, condition, or procedure • Congenital Anomaly Registers
Congenital Anomalies • Congenital anomalies (birth defects) are a major cause of infant mortality, childhood morbidity and long-term disability • Occurring in 2-3% of live births and 14-24% of stillbirths • Anencephaly • Spina bifida • Encephalocele
Anencephaly • Absence of a major portion of the brain, skull, and scalp that occurs during embryonic development • Incompatible with life
Spina Bifida • Portion of the spinal cord protrudes through the vertebrae.
Encephalocele • Sac-like protrusion of the brain and the membranes that cover it through openings in the skull
Causes • Folic acid deficiency • Maternal illnesses Infectious diseases (e.g. rubella) • Exposure to certain medicines (e.g. anti-epileptic drugs) • Exposure to recreational drugs (including alcohol and tobacco) • Exposure to certain environmental pollutants
EUROCAT • 3 active regional congenital anomaly registers in Republic of Ireland • Cork & Kerry • Dublin • South East • All three registers are members of EUROCAT, the European network of congenital anomaly registers
Healthy Ireland • Government-led initiative aimed at improving the health and wellbeing of everyone living in Ireland
Healthy Ireland Survey • Annual survey of the health and wellbeing of the population • Up-to-date picture of the nation’s health
Healthy Ireland Survey • Questionnaire • General health • Smoking • Alcohol • Diet and nutrition • Physical activity • Weight management • Social connectedness • Wellbeing • Dementia • Sexual health
Healthy Ireland Survey • Third wave • 7,487 interviews conducted with a representative sample of the population aged 15 and older living in Ireland