Newborn Screening- who is doing what and why and where is it going?????. Sara Copeland, MD Department of Health and Human Services Health Resources and Services Administration Medical Officer, Genetics Services Branch. Public Health and Genetics. Timeline of Genetics in HRSA.
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Sara Copeland, MD
Department of Health and Human Services
Health Resources and Services Administration
Medical Officer, Genetics Services Branch
Title XXVI of the Children’s Health Care Act of 2000 (Title XI of PHS act)
Establishes a program to improve the ability of States to provide newborn and child screening for heritable disorders.
Three Sections establishing grant programs and the Advisory Committee on Heritable Disorders in Newborns and Children
NIH going?????Long-term Follow-up
Will be joining programs to develop networks and decrease the duplication of effort, get better data collection and development of best practices