National Cancer Survivorship Initiative. June 2010. The number of cancer survivors is growing. There are now 1.77 million people living in England having had a diagnosis of cancer - over 2 million in the UK. Of the 2 million -1.24 million had their diagnosis more than 5 years ago.
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Table 1: Estimated figures for 2010 and 2030
Estimated figures for 2010 and 2030 calculated based upon a 3.2% annual increase in cancer prevalence in the UK, based upon
estimates for 2008 J Maddams, D Brewster, A Gavin, J Steward, J Elliott, M Utley & H Moller, Br J Cancer 2009 101:541-547
Sex / Site
Cancer prevalence in the United Kingdom: estimates for 2008 J Maddams et al Br J Cancer 2009 101: 541-547Who are the two million cancer survivors? (2008, UK)
43% wanted more information and advice, 75% did not have
or did not know if they had a care plan, and 75% did not know who to contact for advice outside of office hours.
People living with and beyond cancer have a personalised assessment and care plan and are empowered to manage their condition, based on their needs and preferences. People are informed and prepared for the long-term effects of living with and beyond cancer. Health and care services are responsive to individual needs and ensure access to specialist care when needed.
The NCSI Vision document set out five key shifts to improve care and
The NCSI is seeking to demonstrate that:
A risk-stratified approach to managing those living following treatment for cancer
Range of evidence of the benefits of physical activity for cancer survivors on
improving quality of life, reducing recurrence and mortality:
Emerging evidence of efficiency benefits for NHS:
NHS Birmingham East and North Health Economy: Bridges
Brighton and Sussex University Hospital NHS Trust:
Multi-disciplinary Combined Cancer Clinic for lung cancer patients
Providing the Evidence and the updated version in September 2010.
Specific issues addressed at the workshops include:
- Risk stratification and personalised assessment
- Setting and follow-up (community, hospital, integrated pathway)
- Rapid return/re-entry into appropriate parts of the health system
- Automated surveillance, PROMS and PREMS
- Rapid review MDT for recurrent/progressive disease
- Smooth and timely transition to end of life care
- Methodology for generating treatment summaries and care plans
- Implications to services of decreased follow-up appointments
- Education requirements for workforce
- Role of one-to-one worker