Ellen Wright Clayton, MD, JD Craig-Weaver Professor of Pediatrics Director, Center for Biomedical Ethics and Society Vanderbilt University. Hot Topics in Genomics Research. Topics for today. Data Sharing Identifiability Return of research results. Data sharing. Why is this an issue?
Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.
What are we talking about returning?
“In deciding whether or not to participate,
how important would the following be to you?”
Health care benefits
Gas card or gift card
individual research results about:”
Strongly Disagree Disagree Agree Strongly Agree
“conditions that can be prevented or treated.”
“health risks, even if there is nothing I could do about them.”