barriers and solutions to neonatal follow up of high risk infants in the state of utah
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Barriers and Solutions to Neonatal Follow-Up of High Risk Infants in the State of Utah. Trainees: Juliana Briscoe, Sherrily Brown, Melissa Herzig, Kerry Prout, and Debbie Thomas. Author Note. The authors of this paper wish to acknowledge the faculty mentors for this project:

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barriers and solutions to neonatal follow up of high risk infants in the state of utah

Barriers and Solutions to Neonatal Follow-Up of High Risk Infants in the State of Utah

Trainees:

Juliana Briscoe, Sherrily Brown, Melissa Herzig, Kerry Prout, and Debbie Thomas

author note
Author Note

The authors of this paper wish to acknowledge the faculty mentors for this project:

  • Mentors: Sarah Winter & Vicki Simonsmeier
  • Family Consumer Consultant: Christine Evans
  • Core Faculty: Paula Peterson, JoLynn Webster, Gretchen Peacock, Heidi Lane, and Terry Pavia
problem
Problem
  • Low attendance rates at the Utah Neonatal Follow-Up Program (NFP)
  • Desire to know what is being done well in clinic
  • Desire to know what can be improved upon in clinic
goals
Goals
  • Identification of NFP attendance trends through quantitative data
  • Identification of NFP attendance barriers through qualitative data
  • Recommendations to the NFP team from research findings
quantitative method
Quantitative Method
  • Current attendance trends were identified via data analysis of the NFP follow-up rates from the five largest referral Utah NICU facilities in 2011.
qualitative method
Qualitative Method
  • Perceptions of program value
  • Identify potential barriers and solutions to NFP attendance
  • Baseline knowledge and value of program
  • Identify potential barriers and solutions to NFP attendance

Family Focus Group

(SLC & Ogden)

Professional Focus Group

(PCMC & McKay-Dee)

study limitations
Study Limitations
  • Lack of representation of target group families
  • Four focus groups with a small sample size
  • Lack of diversity
nfp attendance barriers
NFP Attendance Barriers
  • Lack of education provided to families & NICU staff
  • Lack of communication between facilities
  • Lack of NFP and NICU communication
  • Distance of clinic locations
  • Medical vs. developmental priorities
  • Lack of parental understanding that development needs evaluation over time
recommendations for improving nfp attendance
Recommendations for Improving NFP Attendance
  • Education provided to families & NICU staff
  • Communication between facilities
  • Improve NFP and NICU communication for family contact
  • Additional clinics
recommendations for improving clinic satisfaction
Recommendations for Improving Clinic Satisfaction
  • Provide a NFP presentation to PCMC Grand Rounds
  • Feasibility of providers
  • Check off sheet and check out process
  • Post-appointment summary
  • Strategic communication plan
  • Scheduling consideration
suggestions for further study
Suggestions for Further Study
  • Broaden the diversity of the focus groups
  • Target participants who are referred to the NFP, but do not attend or have not completed the program
  • Gather data from community pediatricians
trainee recommendations for the urlend program
Trainee Recommendations for the URLEND Program
  • Exposure to and problem-solving of systemic, billing and policy issues related to interdisciplinary clinics
  • Increase opportunity and exposure to clinic administration and operations
  • Additional emphasis on diagnoses i.e. CP/Down’s Syndrome
  • Increase family interaction in an informal setting
  • Increase clinical sites for URLEND trainees
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