Eastern Region Regional Workshop Summary “Moving to Consensus about Community Engagement”

1. Eastern RegionRegional Workshop Summary “Moving to Consensus about Community Engagement” Charles M Balch, MD, FACS Deputy Director for Clinical Trials and Outcomes Research -Co-Director Community Engagement Module Johns Hopkins Institute for Clinical and Translational Research

2. Objectives of the Regional Workshop To move toward consensus about Community Engagement, and… • promote institutional collaborations • identify best practices • discuss barriers • describe strategies …. ...for effective Community Engagement

3. Regional Workshop AgendaOct. 13, 2008 – University of Pennsylvania Registration and Continental Breakfast Welcome and Overview Welcome from host: Chanita Hughes Halbert, PhD Overview: Garrett Fitzgerald, MD, Director ITMT Keynote: Victoria Cargill, MD, MSCE Break Community Engagement Activities at CTSAs • Case Western Reserve University • John Hopkins University • Ohio State University • University of Pittsburgh • University of Pennsylvania Lunch Breakout Groups • Group 1: Theoretical versus Practical Aspects of Community Engagement • Group 2: Models and Initiatives of Community Engagement within a Research Environment Break Report from Breakout Groups and Discussion Next Steps / Future Directions Wrap-up and Adjournment

4. Goals of Community Engagement which are shared/similar among us • Foster long-term bi-directional relationships between researchers and the community • Bring the spectrum of clinical research content to patients treated in a community setting • Develop partnerships between researchers and the community • Promote collaboration among university organizations involved in Community Engagement • Educate the community re: research benefits, costs, process • Improve recruitment • Support and boost community health improvement efforts • Enhance public trust in research

5. Major Initiatives These initiatives are shared/similar among us. • Fundable research proposals using community/academic initiatives • CBPR Training programs, DVD, and web resources • Cultural Competency Research Training • Research Consult Services • Community Outreach Programs, e.g. health fairs, seminars, appreciation days, surveys • Research participant recruitment and retention strategies • Formation of and training for Speakers Bureau • CBPR small grants program • Pilot projects and conferences shaped through focus groups • Community Advisory Boards

6. Major Initiatives, cont. These initiatives are shared/similar among us. • Clinical Trials Network (Johns Hopkins) • Knowledge Translation Program (Johns Hopkins) • Education for Community Health (CWRU’s REECH program involves the arts) • Classification system for relevance of research studies to communities and clinicians (Ohio State) • Survey of base-line perceptions and participation in research (U Pitt) • Linking Community Organizations and Multidisciplinary Health Professional Groups (U Pitt) • Consortium to address health disparities (U Penn) • CBPR methods that link researchers, clinicians, trainees, communities, e.g. JH PCHP (new journal)

7. New Journal: Progress in Community Health Partnerships

8. Outcomes • Synergy created by realizing that we share goals and approaches to reaching them • Greater understanding of working across vertical silos and creating collaborations • Acknowledged need for greater focus and clearer definition of terms when discussing “community engagement” • Strengthened relationships among region’s key investigators and partners