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Promoting service user and carer empowerment in health and social care. International week at Laurea Tikkurila 1 st March 2010 Dr Mary Larkin De Montfort University Leicester. OUTLINE OF PRESENTATION. the concepts of ” service user” and “carer” the empowerment of service users

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promoting service user and carer empowerment in health and social care
Promoting service user and carer empowerment in health and social care

International week at Laurea Tikkurila

1st March 2010

Dr Mary Larkin

De Montfort University

Leicester

outline of presentation
OUTLINE OF PRESENTATION
  • the concepts of ”service user” and “carer”
  • the empowerment of service users
  • the empowerment of carers
  • the future promotion of service user and carer empowerment
definition of empowerment
DEFINITION OF “EMPOWERMENT”

“degrees of empowerment are measured by the existence of choice, the use of choice and the achievement of choice” (Alsop, R. and Heinsohn (2005:4)

1 the concepts of service user and carer
1. THE CONCEPTS OF ”SERVICE USER” AND “CARER
  • move away from institutional care to ‘community care’ in the 1980s - National Health Service and Community Care Act 1990
  • care for those in need which is based in their homes and mainly provided by families and friends on an informal basis, supported by formal care
  • creation of 2 new identifiable groups in society
2 the empowerment of service users
2. THE EMPOWERMENT OF SERVICE USERS

This has been shaped by:

  • the social equality and the modernisation discourses
  • policy initiatives
slide6

User involvement

Self-management

Personalised models

of care

user involvement
User involvement
  • involved in the planning and development of services
  • contribute to professional training and social work education
  • design and conduct research
  • have their own user-led organisations e.g. National Service User Network
  • hold positions in national social care organisations e.g. General Social Care Council
self management
Self-management
  • Expert Patient Programme (EPP) (Department of

Health,2001) (http://www.expertpatients.co.uk/)

  • individuals have more control over their health by managing it and their treatment in partnership with health care professionals
  • 6 week self care skills training course delivered by lay tutors
  • each patient is an expert about their own condition
  • use of patient expertise to build local support networks
personalised models of care
Personalised models of care
  • place the individual at the centre of the health and

social care process

  • foster independence more choice and controlover care
  • referred to as personalisation

(http://www.dh.gov.uk/en/SocialCare/Socialcarereform/

Personalisation)

  • central to personalisation is self directed support e.g.

- direct payments

- individual budgets

3 the empowerment of carers

3. THE EMPOWERMENT OF CARERS

This has been facilitated through:

legislative acts

carers movement

slide11

National

Strategy

for Carers (1999)

Employment

Relations Act (1999)

Carers and Disabled Children’s Act (2000)

The Child Support, Pensions and Social Security Act (2000)

Carers (Equal Opportunities) Act (2004)

National Carers Strategy (2008)

carers movement
Carers movement
  • growth the size and power of national and local carers organizations
  • advocacy role increased
  • government website for carers (http://www.carers.gov.uk)
  • Carers UK – “the voice of carers” (http://www.carersuk.org)
4 the future promotion of service user and carer empowerment
4. THE FUTURE PROMOTION OF SERVICE USER AND CARER EMPOWERMENT
  • emphasis on interdependency and empowerment of both service users and carers
  • evidence efforts to empower service users and carers continues (www.dh.gov.uk and www.sdo.lshtm.ac.uk)
  • criticisms
  • possible ways forward:

- address underlying attitudes

- learning from others

- collaborative working

- research

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