Mme Sally WYATT ROYAL NETHERLANDS ACADEMY & MAASTRICHT UNIVERSITY. Santé, internet, information. Intermediary – transports meaning without transformation – a black box counting for one
ROYAL NETHERLANDS ACADEMY & MAASTRICHT UNIVERSITY
Intermediary – transports meaning without transformation – a black box counting for one
Mediators – input never a good predictor of output – they transform, translate, distort & modify – however simple it may look, it can lead in multiple directions
Bruno Latour (2005:39) Reassembling the Social, OUP.
Sources of Health Information
Health Information Seekers’ Needs
How does the information match my previous knowledge?
How badly do I need the information?
What do I need it for? (e.g., making a specific decision; emotional support; corroboration of a diagnosis; etc.).
Is the information consistent with my beliefs and values?
How urgent is the situation?
How familiar am I with the topic?
How easy is it to apply the information to my situation?
Am I ready to believe what I find? Am I ready to act on it?
Do I the need information for myself or another person?
Info(r)mediators – visibility continuum – a black box counting for one
Friends, family, etc.
Internet Search Engines
Health Care Providers
Internet Content Filters
Community Health Workers
Types of health information seeker – a black box counting for one
Band-aid internet use
Looking up/checking out
Constraints experienced by patients
Patients reluctant to take on role
Lack of skills and competences for information literacy
Health care professionals reluctant to let patients take on role
What does this mean for policy agenda about ‘information for choice’?Emergence of the informed patient?
New patient responsibilities – a black box counting for one
Sharing health information
Sharing health experiences
Sharing experiences of health care provision
Who benefits? Evidence for what and for whom?
Legal and ethical constraintsWeb 2.0
Using the internet to find and share health information is not a linear process. Different ways of using the internet need to be understood in terms of different types of users and also in relation to different temporal and social trajectories. Health, well-being, ageing, changing jobs, moving house all affect how people, individually and collectively, use the internet.Vive la différence!