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National Physician & Family Referral (NPFR) Project

National Physician & Family Referral (NPFR) Project. Overview NPFR Project Pilot Project Approach Methodology Professional Surveyors Traditional Media Millennium Media Pilot Progress Pilot Statistics Pilot Summary (Chart) 2003 Millennium Media NPFR Database

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National Physician & Family Referral (NPFR) Project

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  1. National Physician & Family Referral (NPFR) Project • Overview • NPFR Project • Pilot Project • Approach • Methodology • Professional Surveyors • Traditional Media • Millennium Media • Pilot Progress • Pilot Statistics • Pilot Summary (Chart) • 2003 Millennium Media • NPFR Database • Phase 2 Project Coverage: USA • Summary

  2. 50 Hoops Corporate • 50 Hoops is a 501 ( c ) (3) organization with (2) components: • The National 50 Hoops Basketball Tournament and Health Fair • The National Physician and Family Referral (NPFR) Project • The 50 Hoops Health Fairs also include NPFR recruitment. • NPFR is a national physician, community and media outreach for African American prostate cancer patient & family recruitment. • 50 Hoops' function includes administration and recruitment for NPFR. The National Human Genome Center at Howard University will work with 50 Hoops to identify and assist in development of new approaches to recruitment in communities across the country and abroad. • Please see web site: http://www.npfr.resourcez.com.

  3. 50 Hoops Tournaments & Health Fairs The 50 Hoops Tournament & Health Fair includes the following components: • Prostate Awareness Basketball Tournaments for men 50 and over • Prostate Education (and Quality of Life) Health Fairs • On-Site Free Prostate Cancer Screenings with local collaborative follow-up • Prostate & Breast Cancer Awareness conferences and workshops for lay and professionals • Coordination of on-site support and recruitment for Prostate Cancer research and human genome studies • Slam Dunk Prize Box: The KEY to winning prizes is to attend and participate

  4. 50 Hoops Events Overview 50 Hoops is reaching a greater percentage of the underserved men than any other prostate cancer education program through our National Tournament and Health Fair. Education + Participation = Saved Lives Our purpose is to raise awareness about prostate cancer. Research, health education and early diagnosis is our focus. We serve as a national educational (fun) source for prostate cancer and health awareness. 50 Hoops is also a consumer information vehicle for participating pharmaceuticals, product sponsors, health and fitness professionals. Our goal is to educate, and recruit African American Families and to screen men 40 and over who may not otherwise have resources to get screenings and follow-up services.

  5. National Physician & Family Referral (NPFR) Project FIND THE CAUSE of Prostate Cancer through Genetic Research The NPFR Project is a new 50 Hoops acquisition Project Mission: Instill public awareness of prostate cancer research and recruitment of families who meet the criteria for national and international human genome research studies. Serve as community and media advocates and liaison for a national and international physician, community and media recruitment of African American families (and those of West African descent) who meet the criteria for human genome research studies. Project Goal: To identify prostate cancer survivors and family members that will act as "contacts" for the families in this human genome recruitment effort. To identify families who have family members (father, brother, uncle, cousin grandfather) who may have been diagnosed with prostate cancer and who meet the criteria for national human genome studies focusing on African Americans.

  6. Pilot Project MissionBegan 2001 Initially, to identify (up to 50) African American families (beginning in Northern California; expanding to Southern California and West Coast) who meet research criteria for African American Hereditary Prostate Cancer (AAHPC) Study of 4+ affected by the disease. To identify networks within the medical community for locating African American man/families with history of prostate cancer within the Western Region. This project supports, expands and enhances the AAHPC Study objectives to find 100 families who meet the criteria.

  7. Pilot Project Approach • Developed Methodic Approach/Plan (repeatable & measurable) • Created Forms, Checklists & Procedures • Employed Professional Telephone Surveyors • Conducted Staff Training • Utilized Traditional Media • Utilized Millennium Media • Focus on Quality not Quantity • Continuous Process Improvement

  8. Methodology Detailed Project Plan Defined Process Forms, Checklists & Procedures Associate Training Database Verification Process Improvement

  9. Professional Telephone Surveyors: Process Obtain Resource Contact Information from clinics, physician networks, hospitals and medical institutions, professional associations, universities, community health centers, Greek organizations, churches, support groups Contact Resources #1 –Number or Percent of African American Prostate Cancer Patients #2 – Distribute Promo Flyer.. Listed as Supporter..Patients Contact NPFR Directly via 800-677-8441 or web site: www.npfr.resourcez.com Contact Family Member/Patient Directly Populate Database

  10. RADIO Traditional Media PRINT Media packets were sent to publications, radio and TV stations on the west coast and nationally Direct Mail Networking

  11. Traditional Media Family Recruitment Flyers Distributed to physicians, support groups, churches and community organizations

  12. FAX BLAST EMAIL BLAST Millennium Media Promoted Website Links and networks were set up with prostate cancer and Black websites; online newsletters, physician sites, interactive medical and health related sites, newsgroups, online radio and conference sites contacted

  13. Pilot Phase Progress 30 Prostate Cancer Patients/Family 190 Doctors/Universities/Hospitals

  14. Pilot Phase Statistics • 73% of Doctors surveyed have African American Prostate Cancer Patients • 50% of Family Members surveyed are Patients themselves • 30% of Patients/Families surveyed had other diseases in family • Breast Cancer • Hypertension • Heart Disease • Asthma • Obesity • Alcoholism • Multiple of above

  15. Pilot Summary African American Hereditary Prostate Cancer (AAHPC) Study Criteria, P&E Mission, Methodology & Approach (guidelines) AAHPC Requirements (input) Physician & Family Contact Information, Demographics and Physician association (output) National Human Genome Projects Professional, Trained Staff (enablers)

  16. NEW!! Millennium MediaNEW!! http://www.NPFR.resourcez.com An Established Web Presence

  17. Millennium Media Online Survey!

  18. WEBSITE Reports Database Millennium Media Physician & Family Referral Database Our database houses vital access information to physicians that treat a high % of prostate cancer patients and families with a prostate cancer gene.

  19. Phase 2: FIND THE CAUSE Phase 2 Phase 1 (Pilot) Phase 3 Phase 4

  20. Summary Find the Cause Through Genetic Research The NPFR project enhances the total 50 Hoops Millennium concept: to educate communities, screen underserved men and recruit families who meet the criteria for significant African American Hereditary Human Genome Research.

  21. NPFR Project +

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