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Risk & Safety The Limits of Choice

Risk & Safety The Limits of Choice. Mark Peterson April 12, 2013 For the Minnesota Brain Injury Alliance. The Dilemma of Choice. Too much risk Get hurt Lost property Die …. Too much safety Stifled spirit Limited options Loss of rights …. Mark Peterson TheGriot@live.com.

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Risk & Safety The Limits of Choice

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  1. Risk & SafetyThe Limits of Choice Mark Peterson April 12, 2013 For the Minnesota Brain Injury Alliance

  2. The Dilemma of Choice • Too much risk • Get hurt • Lost property • Die • … • Too much safety • Stifled spirit • Limited options • Loss of rights • … Mark Peterson TheGriot@live.com

  3. When Choice is Limitedfor Jim & Jenna • Where I want to live • With whom I want to live • Where I want to work • Where I want to go • How tidy a housekeeper I want to be/or not • How I spend my money • … • … Mark Peterson TheGriot@live.com

  4. The Dilemma of Choicefor the State, for Providers, for Parents • Too much risk • Litigation • The Headline • Concern for Jim/Jenna • … • … • Too much safety • Increased cost • … • … Mark Peterson TheGriot@live.com

  5. Points of View • Rights • My choice • Risk • Benevolence • Care for • Protect • Safety Mark Peterson TheGriot@live.com

  6. An Evolving System • We’ve come a long way • Growth in choice • And, there are obstacles to making such an assertion normative Mark Peterson TheGriot@live.com

  7. OBSTACLES • IN LOCO PARENTIS • CONTROL • SAFETY CONCERN • “________ KNOWS BEST” • LEGAL LIABILITY CONCERN • THE HEADLINE • “WE’RE MAKING GRADUAL PROGRESS, REALLY.” • “WHEN YOU GET PUBLIC SERVICES, THERE ARE LIMITATIONS. WE HAVE RULES, AFTER ALL.” Mark Peterson TheGriot@live.com

  8. CURENT VALUE PROPOSITIONS • FROM REFORM 2020 • “BETTER INFORMED INDIVIDUAL DECISION-MAKING • “INDIVIDUALS WILL INCREASLINGLY DIRECT THEIR OWN SERVICES.” • “REFORM IN PHASES” Mark Peterson TheGriot@live.com

  9. OTHER VALUE PROPOSITIONS • FROM LSS: Choice and achievement of personal goals (should be) the driving forces for evaluating plans, and (should be) the values that drive licensing functions…” • My Life—My Choices • “For too long, it’s been: My Life—Your Choices” Mark Peterson TheGriot@live.com

  10. Deep Breath Mark Peterson TheGriot@live.com

  11. No PityPeople With Disabilities Forging a New Civil Rights Movement • “Our society automatically underestimates the capabilities of people with disabilities.” • “Self-advocacy is the new rights movement of…disabled people rebelling against being…deprived of choices, treated as eternal children and thought to lead lesser lives.” Mark Peterson TheGriot@live.com

  12. No Pity • “So people with retardation often need help in making the choices and judgments that constitute their own acts of self-assertion.” • “Ultimately, self-advocacy comes down to the issue that has always been at the heart of how we deal with people with retardation: how much protection do they need/ Is protection necessarily good, compassionate, and progressive?” Mark Peterson TheGriot@live.com

  13. No Pity • “There is a delicate blend of success and failure in any person’s life, but people with retardation are rarely trusted to handle either,” complains one self-advocate. Mark Peterson TheGriot@live.com

  14. Doing Good The Limits of Benevolence • Benevolence: • The exercise of power in disguise • The better-off doing for the worse-off Power “Power is the natural antagonist of liberty…” • Willard Gaylin, Glasser, et.al. 1978 Mark Peterson TheGriot@live.com

  15. CQL Research Findings • “Having greater choice does not affect an individual’s safety and only modestly affects an individual’s freedom from abuse and neglect.” • When “people choose where and with whom they live”, and “people choose where they work”, and “people choose services”, three times more likely to have the outcome of social roles also present. • “Maintaining close ties with natural support systems and having intimate relationships and friends may be the best predictor of personal safety and freedom from abuse and neglect.” Mark Peterson TheGriot@live.com

  16. May your first accident be a small one • How long the tail of that event? • How to judge the risk of risk? • Who gets to decide? Mark Peterson TheGriot@live.com

  17. The Limits of Choice • Just where is that limit? Mark Peterson TheGriot@live.com

  18. Zihuatanejo Rooster(Released) Mark Peterson TheGriot@live.com

  19. Zihuatanejo Sailfish(Released) Mark Peterson TheGriot@live.com

  20. Devil Track SteelheadInstead(also released) Mark Peterson TheGriot@live.com

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