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Active and Advanced Disease

Active and Advanced Disease. Today: Overview of priorities Look at our plans Get your feedback Steven Wibberley – Macmillan Cancer Support Amanda Whetstone – Service User Tariq White – Cancer Network nurse Director. Active and Advanced Disease. Our ideal world would look like.

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Active and Advanced Disease

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  1. Active and Advanced Disease

  2. Today: Overview of priorities Look at our plans Get your feedback Steven Wibberley – Macmillan Cancer Support Amanda Whetstone – Service User Tariq White – Cancer Network nurse Director Active and Advanced Disease

  3. Our ideal world would look like ... Everyone has a personalised care plan Easy access to support and rehab services Prompt and sensitive pathways back into the system EoLC decisions are made together by patients and professionals

  4. Priorities • Well-being - living with and beyond cancer • Coping, wellness, the ‘new normal’, relationships • Getting back into the system on recurrence • Self-referral, pathways from primary care, treatment by MDT, role of A&E • Transition to End of Life Care • Who decides and when, communications – early involvemnent of palliative care Ongoing assessment and care plans

  5. Well-being - living with and beyond cancer • Coping, wellness, the ‘new normal’, relationships Our plans..... Focus on “patient centred care” Link with the evidence review on “what makes a difference” Gather examples of good-practice around well-being (and navigation) in cancer and LTC. Develop models of care manager / navigator Patient info and pathways –directories of service info Produce principles and guidance for good practice.

  6. Getting back into the system on recurrence • Self-referral, pathways from primary care, treatment by MDT, role of A&E Our plans… • Identify current best practice • developing access pathways for suspected recurrence • multi-disciplinary approaches to treating recurrence and advanced disease • Through 3rd wave of test communities (late 2009) identify pilot sites for improvements in pathways and approach to treatment for patients with recurrence / active cancer. • Produce good practice guidance

  7. Transition to End of Life Care • Who decides and when, communications – early involvemnent of palliative care Our plans… Identify and work with test communities looking at assessment at the transition to EoL. Work with Dept of Health EoL team to identify understand implementation and issues for cancer survivors Produce good practice guidance

  8. Ongoing assessment and care plans Our plans… Involvement in next phase of test communities Evaluation of A&CP on later stages of pathway and transition to EoL Input into the final report to ensure recommendations relating to patients with advanced disease or at the transition to end of life are included.

  9. Questions… From what you have heard today, what is most important? What, if anything, has been left out? What will be the difficulties in implementation? How can we overcome these difficulties? What other points come out of this discussion?

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