Report to council from the 2004 chf nhmrc research project
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Report to Council from the 2004 CHF / NHMRC Research Project. Beth Micklethwaite Consumers’ Health Forum of Australia. The Statement on Participation. Collaborating to improve quality

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Report to Council from the 2004 CHF / NHMRC Research Project

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Report to council from the 2004 chf nhmrc research project

Report to Council from the 2004 CHF / NHMRC Research Project

Beth Micklethwaite

Consumers’ Health Forum of Australia


The statement on participation

The Statement on Participation

  • Collaborating to improve quality

  • Effective partnerships of researchers and consumers shaping decisions about research priorities, questions and design

  • Informing any participants and the wider community about research results

  • Resources for consumer participation

    CHF / NHMRC Statement on Consumer and Community Participation in Health and Medical Research

    www.nhmrc.gov.au/publications/synopses/r22syn.htm


Attitudes of researchers and consumers

Attitudes of researchers and consumers

  • Researchers

    • Some sceptical of consumer participation

    • Some willing but unsure of how to do it

    • Wary of ‘militant’ consumers

    • Lack of time and funds

  • Consumers

    • Interested but not necessarily familiar with research

    • Wary of ‘arrogant’ researchers

    • Suspicious of tokenistic involvement


Chf nhmrc research project

CHF / NHMRC Research Project

  • Implement the Statement on Participation at two pilot sites.

  • Model framework for consumer and community participation in research.

  • Resource pack to support consumer participation in research.

  • Promote the Statement on Participation to researchers and consumers

  • Progressive evaluation


Pilot sites qimr

Pilot Sites - QIMR

  • Queensland Institute of Medical Research

  • Starting point

  • Policy on consumer participation

  • Strong public relations

  • No real consumer input

  • Aiming for two-way communication


Qimr continued

QIMR continued

During the project

  • Consumer & Community Liaison Committee

  • Identifying consumers

  • Consumer workshop

  • Scientific Conference

    • Underlying concerns of researchers

    • Reflection on own practice


Pilot sites nari

Pilot Sites - NARI

National Ageing Research Institute

Starting point

  • Volunteer Network

    • Tai-chi

    • Volunteer lunches

  • Consumer member on Board

    • National President of Council on the Ageing


Nari continued

NARI continued

During the project

  • Consumer Participation & Priorities Workshop

  • Participation policy

  • Dissemination of results

  • Increased awareness of researchers


Model framework resource pack

Model Framework & Resource Pack

  • Model Framework – for researchers

  • Resource Pack – for consumers

  • “I think it is all very constructive and there is nothing wrong in pointing out weaknesses in a constructive way, especially if you want something to come from a report, not just for it to be shelved!”

    Basic researcher


Raising awareness

Raising Awareness

  • Articles in consumer and researcher newsletters

  • 10 articles about research in Issues 2 and 3 of The Australian Health Consumer , 2003 - 04

  • Workshops – NARI, QIMR, CHF, Mental Health

  • Conferences – QIMR, INVOVLE, AHMRC

  • Webpage – www.chf.org.au/projects/research


Where to now

Where to now?

  • Provide support for local partnerships

  • Build partnerships with active researchers at national level

  • CHF looks forward to renewing partnership with NHMRC in 2005

  • Improve strategies for consumer participation in deciding national research priorities

  • Fund research into agreed priority areas


Key contributors

Key contributors

Pilot Sites

Queensland Institute of Medical Research

National Ageing Research Institute

Reference Group

Christopher NewellChair (CHF)

Christopher Coyne AHEC

Elizabeth Grant Research Committee

Sophie Hill Health Advisory Committee

Michele KoskyCHF

Sue PluckCHF


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