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2009 – 2010 Quality Care Awards Arkansas Children’s Hospital &

2009 – 2010 Quality Care Awards Arkansas Children’s Hospital & University of Arkansas Medical Center Little Rock, Arkansas Kaiser Permanente Oakland, California. 2009 – 2010 Quality Care Awards Emory University Atlanta, Georgia Johns Hopkins University Baltimore, Maryland.

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2009 – 2010 Quality Care Awards Arkansas Children’s Hospital &

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  1. 2009 – 2010 Quality Care Awards • Arkansas Children’s Hospital & University of Arkansas Medical Center Little Rock, Arkansas • Kaiser Permanente Oakland, California

  2. 2009 – 2010 Quality Care Awards • Emory University Atlanta, Georgia • Johns Hopkins University Baltimore, Maryland

  3. 2009 – 2010 Quality Care Awards • Minnesota Cystic Fibrosis Center Minneapolis, Minnesota • University of Nebraska Medical Center Omaha, Nebraska

  4. 2009 – 2010 Quality Care Awards • University Hospitals Rainbow Babies & Children’s Hospital Cleveland, Ohio • Children’s Hospital of Wisconsin Froedtert & Medical College of Wisconsin Milwaukee, Wisconsin

  5. Richard J. Mattingly Executive Vice President Chief Operating Officer

  6. Outstanding Partnership AwardBetween CFF Care Center and Chapter Dartmouth-Hitchcock Medical Center Rush University Medical Center Minnesota Cystic Fibrosis Center

  7. Fundraising Innovator Award Medical College of Georgia

  8. Program Committee Co-Chairs: Raymond A. Frizzell, Ph.D. and Beryl J. Rosenstein, M.D. Members Frank J. Accurso, M.D. Cynthia L. Adams Nancy Alarie Rebecca J. Bathon,  M.S.W., LCSW Robert J. Beall, Ph.D. Julie A. Biller, M.D. Michael P. Boyle, M.D. Preston W. Campbell, III, M.D. André M. Cantín, M.D. J.P. Clancy, M.D. Richard C. Cohen, M.D. Jonathan Cohn, M.D. Mitchell L. Drumm, Ph.D. Antoinette Gardner, B.S.N., M.Ed., A.E.-C., CCRC Cynthia A. George, M.S.N., F.N.P., B.C. William B. Guggino, Ph.D. John W. Hanrahan, Ph.D. Leslie Hazle, M.S., R.N., C.P.N. Michelle S. Howenstine, M.D. Sandra K. Hurban, R.N., B.S.N., CCRC Elizabeth Joseloff, Ph.D. Michael W. Konstan, M.D. Robert J. Kuhn, Pharm.D. Amanda R. Leonard, M.P.H., R.D., C.D.E. John J. LiPuma, M.D. Bruce C. Marshall, M.D. Martin Mense, Ph.D. Peter J. Mogayzel, Jr., M.D., Ph.D. Catherine O’Malley, R.R.T. Christopher M. Penland, Ph.D. Raymond J. Pickles, Ph.D. Alexandra L. Quittner, Ph.D. Felix Ratjen, M.D., Ph.D. Kim Reno, M.S.W., L.S.W. Steven M. Rowe, M.D., MSPH Ronald C. Rubenstein, M.D., Ph.D. Kathryn A. Sabadosa, M.P.H. Lisa Saiman, M.D., M.P.H. Sarah Jane Schwarzenberg, M.D. Richard H. Simon, M.D. Christine M. Singh, R.N., M.S.N., C.N.P. Marci K. Sontag, Ph.D. Eric J. Sorscher, M.D. Elizabeth Tullis, M.D., FRCP(C) Michael L. Vasil, Ph.D. Jeffrey J. Wine, Ph.D.

  9. Young Investigator Awards Basic and Clinical Science Jennifer Bomberger, Ph.D. Dartmouth Medical School Abstract #167 Grace Wu, M.S. University of Wisconsin, Madison Abstract #411

  10. CF Foundation’s Meetings Team Cynthia Adams Olesya Lamb Kaitlyn Farrell Christie Goldstein Allison Oakes and other supporting staff

  11. Transforming CF Healthcare: Partnerships for Life October 23, 2010

  12. Bruce C. Marshall, M.D. Vice President for Clinical Affairs CF Foundation • Donald M. Berwick, M.D. Administrator Centers for Medicare and Medicaid Services • Kathy Sabadosa, M.P.H. Quality Improvement Program Manager Dartmouth and CF Foundation

  13. Framework for CF Care • Accreditation system • Multidisciplinary care • Peer review • Patient registry

  14. “I was shocked to see the variation in outcomes across centers. I knew this was important information that we would want to share with our committees.  More importantly, it was obvious that something needed to be done, but at the time I wasn’t sure what we should do.”Bob Beall President/CEO CF Foundation

  15. University of Utah

  16. Mountain West Cystic Fibrosis Consortium

  17. Our Three Wise Men

  18. CF Foundation QI Strategic Plan • Assertion • Years of life can be added… • Vision • Exemplary care at all care centers… • Key strategies • Worthy goals

  19. Our Three Wise Men Brent James

  20. Learning and Leadership Collaboratives 89 CF Centers 17,948 People with CF

  21. Benchmarking

  22. Benchmarking: Key Themes • Highly functional teams • Practice style • Proactive approach • Consistency on core care processes • Engaged patients/families • Well informed on disease management/rationale 3 L’s (Leadership, Longevity and Love)

  23. Our Three Wise Men Paul Batalden Brent James

  24. It’s All About Annie Honor Page, Jim Acton and Paul Bataldan October 17, 2004

  25. E-mail message to CFF From: xxxx xxxxx [mailto:xxxxxxxxx@yahoo.com] Sent: Monday, August 23, 2004 1:21 AM Subject: CFF accredited centers with best patient outcomes Our infant son was recently diagnosed with cystic fibrosis. We have been researching the disease and have come across several articles stressing differences in patient outcomes even among the CFF accredited treatment centers. However, we have been unable to find information that shows which centers have the best patient outcomes. Could you give us this information or let us know how we could find it? We want to make sure our son receives the best possible care.Your help is greatly appreciated. John and Jane, parents of an 8 week old

  26. Aha Moment! Partnering with our patients and families is important if we wish to accelerate improvement and….. partners share information freely!

  27. Insert screen shot of center data from cff.org

  28. …and now for the rest of the story. Paul Harvey

  29. Input from Key Partners • “We have an amazing group of people in our community… high level of commitment and passion for improvements for this disease” • “Need to celebrate how far we’ve come……phenomenal improvement” • “We are leading the charge and doing great things…… exciting”

  30. Input From Three Wise Men • Pursue a dual strategy: • Pull up those who are lagging & push forward the top • Patient/family as “captain of the ship” • Health care as a series of decisions made in conjunction with trusted counselors • Patient/family experience of care: • Powerful way to explore dimensions off the radar

  31. Our Three Wise Men Don Berwick Paul Batalden Brent James

  32. Bruce C. Marshall, M.D. Vice President for Clinical Affairs CF Foundation • Donald M. Berwick, M.D. Administrator Centers for Medicare and Medicaid Services • Kathy Sabadosa, M.P.H. Quality Improvement Program Manager Dartmouth and CF Foundation

  33. Bruce C. Marshall, M.D. Vice President for Clinical Affairs CF Foundation • Donald M. Berwick, M.D. Administrator Centers for Medicare and Medicaid Services • Kathy Sabadosa, M.P.H. Quality Improvement Program Manager Dartmouth and CF Foundation

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