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Research Data Collection

Research Data Collection. Oheneba Boachie-Adjei, MD Professor Orthopedic Surgery Weill Medical College of Cornell University Chief Scoliosis Service Hospital For Special Surgery, New York. FOCOS DATABASE History. Need for a comprehensive database for spine deformity data collection.

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Research Data Collection

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  1. Research Data Collection Oheneba Boachie-Adjei, MD Professor Orthopedic Surgery Weill Medical College of Cornell University Chief Scoliosis Service Hospital For Special Surgery, New York

  2. FOCOS DATABASEHistory Need for a comprehensive database for spine deformity data collection

  3. FOCOS Database v1 (2001) Purpose: RESEARCH REGISTRY AND DATABASE FOR NATURAL HISTORY AND OUTCOME STUDIES

  4. FOCOS Database v2 (2006) • Sponsored by DePuy Spine

  5. FOCOS Database v2. (2006) Purpose • Clinical registry • Data collection • Data retrieval • Reporting • Publications

  6. 2 Tabs: Main & Operative

  7. Medical History Demographics (entered initially) appear on every field. No need to enter more than Once.

  8. Neurologic Exam Drop down options Users must indicate an abnormal Sensation to enter data in this section

  9. General Exam • Main Sections: • Anthropometric • Vital Signs • Pulmonary Function Tests • General Exam Drop down options: Yes No Unk N/A

  10. Oswestry Questionnaire Automatic calculation Text Box SF-12 is Not captured in FOCOS Database v2

  11. Spine Exam

  12. SRS 22 Questionnaire Automatic Calculations

  13. Radiographic Jacket Drop down options for vertebrae

  14. Other Treatment

  15. Family History

  16. Diagnosis Deformity - Scoliosis

  17. Diagnosis: DeformityNeuromuscular Scoliosis

  18. Diagnosis: Sagittal Plane Deformity Age Group Options:

  19. Diagnosis: Syndrome/Other - Complications

  20. Syndrome/Other (Syndrome)

  21. Diagnosis: Degenerative - Spondylolisthesis

  22. Diagnosis: Degenerative

  23. Diagnosis: Fracture/Trauma

  24. Adding an Operative Report

  25. Surgery: Posterior

  26. Instrumentation

  27. Instrumentation: Screw Fixation

  28. Instrumentation: Hook Fixation

  29. Instrumentation: Interbody Cage

  30. Instrumentation: Connectors

  31. Instrumentation: Other Implants

  32. Surgery: Operative Details

  33. Surgery: Bone Graft

  34. Surgery: Spinal Cord Monitoring

  35. Surgery: Intra Op Complications

  36. Surgery: Post Op Complications

  37. Surgery: Complications leading to death

  38. Revision Surgery

  39. Surgery: Anterior/ Posterior

  40. Advantages of FOCOS Database v2 • User Friendly • Password Protected • HIPAA Compliant • Drop down fields are easier for reporting

  41. A database with a purpose… Generating A Report

  42. For Database users on server Accessing the data extraction tool via server login For Independent database users 2 Options

  43. FOCOS Database Data Extraction Tool Ability to choose data from Various sites who enter Data onto the database Server.

  44. Types of Reports Generated • Microsoft Access based • Back end • Tables for datapoints

  45. Creating a Query

  46. Advantages of Querying Tool

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