Key themes emerging camhs parent participation from parent consultation group
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KEY THEMES EMERGING: CAMHS & PARENT PARTICIPATION FROM PARENT CONSULTATION GROUP. NHS England have contracted YoungMinds to develop a toolkit to support the implementation of Parent Participation in CAMHS embedding CYP IAPT principles

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KEY THEMES EMERGING: CAMHS & PARENT PARTICIPATION FROM PARENT CONSULTATION GROUP

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Key themes emerging camhs parent participation from parent consultation group

KEY THEMES EMERGING:CAMHS & PARENT PARTICIPATIONFROM PARENT CONSULTATION GROUP


Context

NHS England have contracted YoungMinds to develop a toolkit to support the implementation of Parent Participation in CAMHS embedding CYP IAPT principles

Over 300 parents have registered interest to be involved in the development of the toolkit

Approx 10% have agreed to attend focus groups & returned supplementary information of their experiences

CONTEXT


Context1

Initial evidence gathering took place between April – June 2014 with

GIFT report on parent participation

CAMHS participation survey

NHS England CYP IAPT central team

CAMHS partnership meetings (through the 5 Learning Collaboratives)

Parents (4 telephone interviews & a pilot focus group)

CONTEXT


Five themes

We have grouped areas of current activity and are testing these with CAMHS embedding CYP IAPT principles & parents:

Communication

Equality & Access

Leadership & Service Development

Workforce Development

Methods

Five themes


What parents say what life is like

There is a knock-on affect in other areas of CYP life, in particular behaviour at school and in public places

WHAT PARENTS SAY – WHAT LIFE IS LIKE


What parents say communication

It can be an isolating experience and the opportunity to connect with other parents or access emotional support is vital

There is a negative impact when parents are excluded from assessment and treatments, exacerbated when treatment is not going well

Communication of service expectations is helpful (eg waiting times & process)

WHAT PARENTS SAY - COMMUNICATION


What parents say communication1

Blaming parents is not helpful

There could be advice for parents on what warning signs they could look out before symptoms escalate

Parents do not want to have to re-tell the problem and issues at every appointment or to every new professional

WHAT PARENTS SAY - COMMUNICATION


Key themes emerging camhs parent participation from parent consultation group

Building Resilience

“They should explain more to parents you know give the. Strategies for how we strengthen our child  I know my daughter self harms it would be good if they can explain to me how I can help her - I don't need to know why. They say we're part of the system when it comes to the problem but not the solution and that is what we want to be”


Key themes emerging camhs parent participation from parent consultation group

Systems Thinking

“My child’s behaviours were blamed on my child and not the system around him and that system is wider than the family”


What parents say access and equality diversity

Parent carers really want access to suitable services for their children

There are few options (often costly) if local services available are not adequate

The pathways need to be clear, eg GP knowledge & referrals

How can parents cope with the impact of stigma & CYP attending appointments

WHAT PARENTS SAY - ACCESS AND EQUALITY & DIVERSITY


Key themes emerging camhs parent participation from parent consultation group

Stigmatising Venues

“CAMHS need to operate more in local community setting – I work within CAMHS, even with my professional experience going into a hospital there is a power imbalance and there is still stigma sitting in a mental health hospital, which I hadn't appreciated before.”


What parents say leadership service development

Professional support is needed for families to support children & young people effectively – more than just initial one-off support but on an on going basis during treatment, especially where there are complex needs or challenging behavioural issues

Parents and carers should be involved, as experts, in treatment decision-making alongside professionals

WHAT PARENTS SAY - LEADERSHIP & SERVICE DEVELOPMENT


Key themes emerging camhs parent participation from parent consultation group

If the Transition to AMHS is disjointed, parents and carers are often left picking up the pieces with the CYP

A holistic approach to services is welcomed

WHAT PARENTS SAY - LEADERSHIP & SERVICE DEVELOPMENT


Key themes emerging camhs parent participation from parent consultation group

Session By Session Measures

“These have not been explained to me, they may have been explained to my child, but not me – I just understood that CAMHS worker needs to complete them.”

“You have just explained ‘ROMS’ to me and why they use them, I can't recall this ever being explained so in that way they have never made much sense to me - before it made no sense just more paper filling”


What parents say workforce development

There are vastly different experiences felt by parents who trust or do not trust the qualifications & knowledge of practitioners

Communication with parents as part of the support provision for CYP is a big factor in how a parent experiences a service

WHAT PARENTS SAY - WORKFORCE DEVELOPMENT


What parents say engagement methods

Parents are willing to engage with active local parent carer forums or dedicated CAMHS parent groups & also sit on local boards

Many parents welcome the opportunity to take part in consultations

There is a sense that if CAMHS just actively listens to parents, things will improve

Signposting to additional support services is welcome

WHAT PARENTS SAY – engagement METHODs


What parents say engagement methods1

Simple mechanisms can be helpful, eg leaflets, online signposting to other support, clear explanations

WHAT PARENTS SAY - engagement METHODs


Key themes emerging camhs parent participation from parent consultation group

Understanding our needs

“Sometimes, I think they make a judgment about our life without knowing the facts – CAMHS need to understand what our needs are”


Youngminds

  • Parents Helpline 0808 802 5544

  • Booklets for parents, professionals and children and young people

  • www.youngminds.org.uk

  • Training and consultancy [email protected]

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