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EDUCATING FAMILIES WITH CHRONIC DISEASE . Joanne Douthit RN MN CNS CPN College of Nursing University of Arizona Pediatric Pulmonary Center. Objectives. Recognize role of chronic disease in health care Discuss role of interdisciplinary care Identify components of educational process

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Educating families with chronic disease

EDUCATING FAMILIES WITH CHRONIC DISEASE

Joanne Douthit RN MN CNS CPN

College of Nursing

University of Arizona

Pediatric Pulmonary Center


Objectives
Objectives

  • Recognize role of chronic disease in health care

  • Discuss role of interdisciplinary care

  • Identify components of educational process

    • Developmental issues

    • Teaching methods

    • Learning styles

    • Barriers to learning


Chronic disease
Chronic Disease

  • Dominant health problem

  • Principal cause of disability

  • Consumes 78% of health expenditures

  • Significant transformation of role of patient


Acute vs chronic disease

Episodic

Passive role of patient

Usually cure

Returns to normal

Continuous

Patient is experienced

Rare cure

Behavioral changes to prevent worsening of disease

Acute vs Chronic Disease


Chronic disease1
Chronic Disease

  • Multiple facets of disease

    • Social concerns

    • Financial fears

    • Lower self esteem

    • Depression


Management
Management

  • Best provided by coordinated team of health care professionals

  • Interdisciplinary care

  • Individual discipline members provide service


Management1
Management

  • Patient involvement with multiple professionals/physicians

  • Continuity/integration of care critical

  • Specialists must understand overall plan


Role of patient in chronic disease
Role of Patient in Chronic Disease

  • Must adapt to ongoing therapy

  • Involves change in behaviors

  • Adjust to consequences of disease

  • Patient becomes a principal caretaker


Role of health care professionals

Provide Education!

About disease

Treatment

Prognosis

Interpret symptoms

Understand medications

Manage symptoms

Cope with emotions

Communication skills

Role of Health Care Professionals


Role of health care professionals1

Skills

Medication delivery

Spacer devices

Nebulizer use

Peak flow meters

Asthma action plan

Role of Health Care Professionals


Developmental stages
Developmental Stages

  • Toddler (1 to 3 years)

    • Curious

    • Eager to learn new skills

    • Understands simple connection between ideas

    • Likes to mimic others


Developmental stage
Developmental Stage

  • Elementary School Age (6 to 12 years)

    • More complex thought processes

    • Developing confidence

    • Has a need to achieve and succeed

    • Friends and school are important


Developmental stages1
Developmental Stages

  • Adolescents (13 to 18 years)

    • Peer influences

    • Separation from family

    • Development of personal identity

    • Rapid physical and sexual changes

    • Denial and immortality


Teaching methods
Teaching Methods

  • Games

  • Videos/CD/interactive computer

  • Role playing

  • Visual demonstration

  • Return demonstration

  • Written materials


Learning styles
Learning Styles

  • Visual

    • Must see skill demonstrated

    • Supplement with written material

      Auditory

      Hear explanation of skill

      Kinesthetic

      Hands on experience


Family education is not
Family Education is NOT

  • Didactic

  • Lists of “should do”

  • Lecturing

  • Waiting for request for help


Teaching should involve
Teaching Should Involve:

  • Respect for patient

  • Understanding of patient’s beliefs

  • Co-mangement – agree on goals

  • Demonstration/return demonstration of skills


Teaching should involve cont d
Teaching Should Involve (cont’d)

  • Keep it simple

    • Educate in increments

    • Involve all aspects of learning styles

    • Visual, Auditory, Kinesthetic

    • Repitition Repitition Repitition!!!

    • Reinforce


Barriers to learning
Barriers to Learning

  • Lack of knowledge or skills

    • Educational level

  • Lack of understanding

    • Long term consequences of uncontrolled disease

  • Poor communication between professionals and family

  • Lack of support

    friends,family,community, professionals


Barriers to learning cont d
Barriers to Learning (cont’d)

  • Differences in Health Beliefs

    • Cultural

    • Religious

  • Cost


Summary
Summary

Paradigm shift of responsibility towards the patient as primary caretaker

Understanding of developmental levels and learning styles necessary to develop educational methods

Identification of barriers to learning critical to success



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