Educating families with chronic disease
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EDUCATING FAMILIES WITH CHRONIC DISEASE. Joanne Douthit RN MN CNS CPN College of Nursing University of Arizona Pediatric Pulmonary Center. Objectives. Recognize role of chronic disease in health care Discuss role of interdisciplinary care Identify components of educational process

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EDUCATING FAMILIES WITH CHRONIC DISEASE

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Educating families with chronic disease

EDUCATING FAMILIES WITH CHRONIC DISEASE

Joanne Douthit RN MN CNS CPN

College of Nursing

University of Arizona

Pediatric Pulmonary Center


Objectives

Objectives

  • Recognize role of chronic disease in health care

  • Discuss role of interdisciplinary care

  • Identify components of educational process

    • Developmental issues

    • Teaching methods

    • Learning styles

    • Barriers to learning


Chronic disease

Chronic Disease

  • Dominant health problem

  • Principal cause of disability

  • Consumes 78% of health expenditures

  • Significant transformation of role of patient


Acute vs chronic disease

Episodic

Passive role of patient

Usually cure

Returns to normal

Continuous

Patient is experienced

Rare cure

Behavioral changes to prevent worsening of disease

Acute vs Chronic Disease


Chronic disease1

Chronic Disease

  • Multiple facets of disease

    • Social concerns

    • Financial fears

    • Lower self esteem

    • Depression


Management

Management

  • Best provided by coordinated team of health care professionals

  • Interdisciplinary care

  • Individual discipline members provide service


Management1

Management

  • Patient involvement with multiple professionals/physicians

  • Continuity/integration of care critical

  • Specialists must understand overall plan


Role of patient in chronic disease

Role of Patient in Chronic Disease

  • Must adapt to ongoing therapy

  • Involves change in behaviors

  • Adjust to consequences of disease

  • Patient becomes a principal caretaker


Role of health care professionals

Provide Education!

About disease

Treatment

Prognosis

Interpret symptoms

Understand medications

Manage symptoms

Cope with emotions

Communication skills

Role of Health Care Professionals


Role of health care professionals1

Skills

Medication delivery

Spacer devices

Nebulizer use

Peak flow meters

Asthma action plan

Role of Health Care Professionals


Developmental stages

Developmental Stages

  • Toddler (1 to 3 years)

    • Curious

    • Eager to learn new skills

    • Understands simple connection between ideas

    • Likes to mimic others


Developmental stage

Developmental Stage

  • Elementary School Age (6 to 12 years)

    • More complex thought processes

    • Developing confidence

    • Has a need to achieve and succeed

    • Friends and school are important


Developmental stages1

Developmental Stages

  • Adolescents (13 to 18 years)

    • Peer influences

    • Separation from family

    • Development of personal identity

    • Rapid physical and sexual changes

    • Denial and immortality


Teaching methods

Teaching Methods

  • Games

  • Videos/CD/interactive computer

  • Role playing

  • Visual demonstration

  • Return demonstration

  • Written materials


Learning styles

Learning Styles

  • Visual

    • Must see skill demonstrated

    • Supplement with written material

      Auditory

      Hear explanation of skill

      Kinesthetic

      Hands on experience


Family education is not

Family Education is NOT

  • Didactic

  • Lists of “should do”

  • Lecturing

  • Waiting for request for help


Teaching should involve

Teaching Should Involve:

  • Respect for patient

  • Understanding of patient’s beliefs

  • Co-mangement – agree on goals

  • Demonstration/return demonstration of skills


Teaching should involve cont d

Teaching Should Involve (cont’d)

  • Keep it simple

    • Educate in increments

    • Involve all aspects of learning styles

    • Visual, Auditory, Kinesthetic

    • Repitition Repitition Repitition!!!

    • Reinforce


Barriers to learning

Barriers to Learning

  • Lack of knowledge or skills

    • Educational level

  • Lack of understanding

    • Long term consequences of uncontrolled disease

  • Poor communication between professionals and family

  • Lack of support

    friends,family,community, professionals


Barriers to learning cont d

Barriers to Learning (cont’d)

  • Differences in Health Beliefs

    • Cultural

    • Religious

  • Cost


Summary

Summary

Paradigm shift of responsibility towards the patient as primary caretaker

Understanding of developmental levels and learning styles necessary to develop educational methods

Identification of barriers to learning critical to success


Thank you

THANK YOU!!


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