I Exist: The message from adults with autism in the UK. Amanda Batten & Sarah Redman. Overview of Presentation. During this presentation we will… Administer a short Quiz Examine the I Exist Report Explore what UK Governments are doing
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I Exist: The message from adults with autism in the UK
Amanda Batten & Sarah Redman
During this presentation we will…
Tell us if the following statements are True or False
Used 4 different methods for collecting data
1412 people completed the first section of the questionnaire.
1179 people completed the second part of the questionnaire.
773 parents and carers responded to the third section of the questionnaire.
Local Authority questionnaire
35% response rate
53 surveys completed
Primary Care Trust questionnaire
16% response rate
24 questionnaires completed
Improved understanding and record keeping is crucial
“We are currently not fully aware of local need or demographics. We need to undertake [this count] to enable uniform service provision”
Major barriers to social care and health services are significant
The needs of adults with ASD and their families may be misaligned with the service provision locally.
Social care staff and others need more training in ASD
What are the UK governments doing?
Scottish Executive set up an ASD reference group (PHISS report 2001)
The National Assembly for Wales: Welcomes the Welsh Assembly Government’s publication of an action plan for autistic spectrum disorders, but notes that without further work to tackle the specific difficulties that adults with autism face, they will remain isolated and ignored.
Independent Review into autism services in Northern Ireland chaired by Lord Maginnis reported in June 2008: The independent review of autism services in Northern Ireland described services for older adolescents and adults as almost totally absent
In May 2008, the Department of Health announced a major commitment to improving the lives of adults with autism
A small scale study led by Prof. Terry Brugha to give the first prevalence estimate of ASD in adulthood
Stage 1: Screening for ASD as part of the 3rd Adult Psychiatric Morbidity Survey of ‘intellectually able’ householders in England
Stage 2: Screening for ASD from a stratified random sample of 620 adults with learning disability from the Leicestershire LD register
Recruited an Autism Adviser to champion autism within the Department
Several other activities are underway
All of this is leading to...
A National Strategy for Adults with Autism?
Have your say about the National Strategy for Autism
e.g. What services should they include? What issues should DH consider?
e.g. Who should be involved/consulted?