Why are we the “untouchables”? A workshop about the stigma of dementia. Lynn Jackson and Christine Bryden Dementia Advocacy and Support Network International. Transformed into an “untouchable”. Diagnosis transforms us into labeled people, into society’s untouchables
Lynn Jackson and Christine Bryden
Dementia Advocacy and Support Network International
Leads to other S words:
The word dementia - "demented”, senile dementia
Any bodily sign denoting something bad.
A mark of disgrace, shame or discreditWhat’s in a name?
Provide all possible treatment options
Give patients, not carers, the diagnosis and prognosis
Mainstream dementia services
"If you live your life out of memory, you live out of history.That's what once was.If you live your life out of your imagination, you live out of potential. That's what can be"What can be done?
once a person has Alzheimer Disease, it doesn't mean you push them off.
one of my doctors said "don't (tell people)" because the more people who know, the more (I'm) put in a position of being on guard all the time.What about in Canada?
Stigma reinforces denial and minimization
Stigma is a powerful obstacle to seeking care and affects treatment adherence.
How about stigma and families?
Stigma has even more pernicious effects. Stigma kills.
We must watch our language - don’t call us “dementing” or “demented”!“He who conceals his disease cannot expect to overcome it.”