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FIFTH ANNIVERSARY OF THE INTERNATIONAL CONVENTION ON PERSONS WITH DISABILITIES, Madrid, 6/7 th May, 2013. Participation of children with disabilities, Gerison Lansdown. “ We need to believe in ourselves and challenge negative opinions by showing how able we are.”

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Presentation Transcript
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FIFTH ANNIVERSARY OF THE INTERNATIONAL CONVENTION ON PERSONS WITH DISABILITIES, Madrid, 6/7th May, 2013

Participation of children with disabilities,

Gerison Lansdown

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“We need to believe in ourselves and challenge negative opinions by showing how able we are.”

“We need to be arguing for our own rights – not just rely on non-disabled adults to do this on our behalf.”

“Disability is in the eyes of society. It is not in our eyes. If provided with opportunities, we can prove our worth.”

(Quotes from children with disabilities in Nepal)

overview
Overview
  • Understanding CRC and CRPD on participation of children with disabilities
  • Participation in practice
  • Addressing the barriers
  • Benchmarks for measuring the realisation of participation rights for children with disabilities
the context
The context
  • Inadequate data but estimates of between 100-150 million children with disabilities aged 0-18
  • Many in institutions - isolated and silenced
  • Out of school – where many opportunities for participation arise
  • Infantilised and excluded from participation because of assumptions of incompetence
  • Most initiatives exclude children with disabilities
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A virtuous circle

Children with disabilities

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Approaches to participation

Participation as an end or a means?

Individual or group participation?

Separate or inclusive participation?

where should participation take place
Where should participation take place?

In courts

In play and recreation

At home

In hospitals

In international forums

In conferences

In school

In local government

In local communities

In government policy

In culture and the arts

In other words, at all levels of society and in all settings

what are the barriers facing children with disabilities
What are the barriers facing children with disabilities?

Lack of training and skills

Attitudes and assumptions

Lack of accessible transport

Lack of funding

Physical environment

Failure to commit time

Lack of confidence

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The invisibility of children with disabilities

  • Children with disabilities are often hidden from view
  • Necessary to reach out to find them:
      • Disabled People’s Organisations (DPOs)
      • Children’s organisations
      • Community mapping
      • Situation analyses, research and surveys
      • Community-based services and institutions
moving towards entitlement
Moving towards entitlement

Participation as a legal right; recognition of evolving capacities; complaints, remedies and redress

Introducing a legal and policy framework

Training on participation for all professionals working with children with disabilities , as well as sensitization for parents

Raising adult awareness

Creating opportunities for political engagement

Opportunities to influence government policies at local and national levels

Information on rights and how to access them, access to different sources of information

Access to information

Opportunities to influence matters in day to day life

Involvement in family life, education, health care, community issues etc

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Conclusion

The right to be heard extends to every child, including children with disabilities

It will not happen unless explicit measures are taken to remove the barriers

BUT

It must be understood as an entitlement not a privilege

All duty bearers must take action to ensure its full realisation

THEREFORE

Participation is fundamental to the dignity and humanity of every child with a disability

Represents a WIN-WIN for each child and the society s/he lives in

AND

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