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Neurodevelopmental Testing Services through CTSI

Neurodevelopmental Testing Services through CTSI. Program overview. Testing available for all pediatric patients Infants to young adults All cognitive domains Formal testing performed by psychometrist with oversight by a licensed clinical psychologist

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Neurodevelopmental Testing Services through CTSI

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  1. Neurodevelopmental Testing Services through CTSI

  2. Program overview • Testing available for all pediatric patients • Infants to young adults • All cognitive domains • Formal testing performed by psychometrist with oversight by a licensed clinical psychologist • Does not provide psychologist as co-investigator • Study + budget planning • One time faculty consultation (no charge) • Recharge hourly rate for psychometrician’s time

  3. Psychologist oversight • Faculty, Developmental Medicine (Shannon Lundy PhD) • Consultation services (1 hour) • Develop/address study hypothesis/aims • Study design • Study planning + test selection • Study budgeting • Review + interpretation of test results • Psychometrist identifies concerning test results and/or emotional/ behavioral/social adjustment issues, psychologist reviews • Investigator notified of concerning results/responses • Investigator responsible for notifying family or PCP

  4. Study planning/test selection: domains • Overall Cognitive Ability • Attention • Executive Function • Language • Visual spatial • Memory • Fine motor • Academic Achievement • Autism spectrum disorder (ASD—ADOS-2)

  5. Study planning/test selection: other considerations • Broad age range • < 1 year – adult • Questionnaires—self-parent-other administered • Emotional/Behavioral/Social adjustment screening • Attention (ADHD)/Executive Functioning • Adaptive Behavior • PedsQL • Autism screening (e.g., MCHAT, SRS-2) • SRS-2 • Parenting stress index

  6. Budget + recharge • Hourly recharge—psychometrist time • Test administration • Test scoring • Report generation (study case report form/other) • Additional budget items • “Gold standard” certification • Other “start up activities” • Costs associated with use of non-standard instruments • Template for results disclosure, as needed

  7. Disclosure of test results • If plan is for disclosure of results to family, this needs to be formally addressed in informed consent, study protocol + IRB application and will clearly state this is a research assessment and not to be used for clinical purposes • PI will be notified of any concerning/abnormal results regardless • Brief summary of results will be released based on performance relative to normal curve • e.g., “average”, “below average”, etc. • Raw or standardized scores will not be released • Recommendations will not be provided

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