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Patient Navigation Center Disease Impact Overall Report. Methodology & Background. The Patient Navigation Center served 2,176 unique individuals during its first six months of operation
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Methodology & Background • The Patient Navigation Center served 2,176 unique individuals during its first six months of operation • Patient Navigators assisted patients through 5,252 interactions, comprising phone calls, emails, texts, website live chats, and Skype calls. • The Patient Navigation Center caseload has grown 328% since opening in February 2016 • Health education inquiries have grown 315% compared to the same time period during the previous year (2015)
Gender N= 2,175
Language Spoken N=1,205
Ethnicity n=147
Age N=654
Location: US N=1,310 Top 10 States:
Location: International N=2,175 9% of inquiries are international Top 10 non-US countries
Severity: Psoriasis N=590
Current Treatment N=1,114
Comorbidities n=786
Impact of Psoriatic Disease on Everyday Life My Psoriatic Disease Affects My Overall Emotional Well-Being N=387
Impact of Psoriatic Disease on Everyday Life I Feel Self-Conscious with Regards to My Psoriatic Disease N=389
Impact of Psoriatic Disease on Everyday Life I Have Physical Irritation From My Psoriatic Disease N=388
Satisfaction with Care and Treatment I am Satisfied with the Effectiveness of My Medication N=193
Satisfaction with Care and Treatment I am Satisfied with the Out-of-Pocket Costs of My Treatment N=383
Satisfaction with Care and Treatment I am Satisfied with the Care I Receive From My Doctor N=393
Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriasis N=390
Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriatic Arthritis N=365
Patient Engagement and Feelings of Empowerment I Feel Confident in My Ability to Maintain a Healthy Lifestyle and Manage My Disease N=393
Patient Engagement and Feelings of Empowerment I Have all the Information I Need to Make the Best Decisions about My Healthcare N=390
Patient Engagement and Feelings of Empowerment I Have the Ability to Participate in Getting the Best Care N=388
Patient Engagement and Feelings of Empowerment I Feel Ownership and Responsibility for My Health N=386
Stories from the Navigation Center • Emily • Newly diagnosed with guttate psoriasis • Under a lot of stress • In working with her Navigator, we were able to: • Connect her with a new doctor closer to home for her phototherapy appointments • Coached her through ways of making her phototherapy trips easier (travel with her dog, shopping, finding a park to walk, etc.). • Provided her with disease management and treatment information • Connected her with a volunteer in Psoriasis One to One
Stories from the Navigation Center • Beth • Contacted NPF seeking help in finding a rheumatologist • Has had significant inflammation and pain in her connective tissue and some nail changes in finger and toe nails. • Was diagnosed several years ago with PsA, but recently had the diagnosis removed and treatment suspended • In working with her Navigator, wee were able to: • Help her locate a new rheumatologist who reinstated her psoriatic arthritis diagnosis and created a long-term treatment plan for her • She is very happy with her new care teamand the level of attention they provide to her
Stories from the Navigation Center • Sally • Parent of a teen with psoriasis • Unsatisfied with current treatment • Suspected psoriatic arthritis • In working with her Navigator, we were able to: • Connect her with additional specialists in her area • Provide information about other treatment options and combination treatment plans • Provide her with information about how to get involved with local events in her area to meet other teens living with psoriasis
Stories from the Navigation Center • John • Has severe genital psoriasis • Feeling isolated, discouraged with treatment options • Contacted the Navigation Center for support • In working with his Navigator, we were able to: • Connect him with another volunteer living with genital psoriasis through the One to One support program • Help prepare him to discuss other treatment options with his dermatologist • Coached him through stress management strategies and positive ways to cope
Stories from the Navigation Center • Clara • Has had severe psoriasis all of her life • Negative experiences with health care providers in the past have led to fear and ambivalence about seeking treatment • Currently not treating or seeing a health care provider • In working with her Navigator, we were able to: • Utilize coaching and motivational interviewing strategies to help Clara overcome her anxiety about seeking medical care • Locate a qualified specialist in her area • Clara is now seeing a dermatologist for the first time in many years and is optimistic about treatment