Putting It Together
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Putting It Together Adventures in Autism Systems Change Nancy Cronin, MA Maine Developmental Disabilities Council. Ready?. Funded by Maine Children Special Health Needs. Get Set…. Go!. Types of Data. Programmatic Process Reports How many steps? How many plans? How long did it take?

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Putting It TogetherAdventures in Autism Systems ChangeNancy Cronin, MAMaine Developmental Disabilities Council


Funded by Maine Children Special Health Needs

Get Set…


Types of Data

Programmatic Process Reports

  • How many steps?

  • How many plans?

  • How long did it take?


  • How many? Where do they live?

  • Gender?

  • What co-morbid disabilities?

  • How do we compare to national?

    Service Reports

  • What services are being provided?

  • How much does it cost?

  • What does the national data say is evidence based?

Levels of Data Usage

Using Programmatic Process

to Step Up


  • Motivation

    Stakeholders – Buy In

  • Programmatic Process

    Lead Policy Makers

  • Cost Analysis

  • Programmatic Process

  • National Data

  • Co-Morbid Data


  • Demographic

  • National Data

  • Co-Morbid Data

  • More Motivation

Legislature – Motivation(Ready?)

Source: Maine DOE ChildCount Prepared by: Maine Developmental Disabilities Council

Programmatic Data(Get Set…)

Baseline Planning

Multi-Level Stakeholders Designed

Builds buy in from ground up

Informs what real change would look like

Eliminates political barriers by setting the stage for inclusion


Early Identification Value Stream Mapping

Maine Developmental Disabilities Council

Policy Makers (GO!)

  • Field Test of the Screening Tools (in 7 medical practices – over 3,500 children screened)

  • Creation, by Developmental Pediatricians, Parents and Advocates, of a DVD and supporting train-the-trainer curriculum (Over 500 distributed)

  • Over 150 Medical Professionals attend early screening presentations

  • Medical Home Care Coordination Pilot

  • Early Childhood/Physician Pilot

Programmatic Measurement (G0)

Southern Maine

QI activities reduced process by over one month

Legislature – Motivation(Ready?)

Thank You

If either of us can ever be of assistance, please do not hesitate to contact us.

Nancy Cronin, MA

Executive Director

Maine Developmental Disabilities Council

[email protected]


Alan Kurtz, PhD Candidate

Coordinator of Education and Autism & LEND Faculty

Center for Community Inclusion and Disabilities Studies, University of Maine

[email protected]


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