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www.cmvfoundation.org

www.cmvfoundation.org. BBM CMV Foundation: Leading the Way in CMV Awareness & Support. Public Awareness · Vaccine Research Support Working Together to Eradicate Congenital CMV. Who We Are.

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www.cmvfoundation.org

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  1. www.cmvfoundation.org BBM CMV Foundation: Leading the Way in CMV Awareness & Support Public Awareness · Vaccine Research Support Working Together to Eradicate Congenital CMV

  2. Who We Are Established in 2007, we were the first non-profit established worldwide dedicated to raising awareness of congenital CMV. We are the only non-profit worldwide dedicated to financially supporting CMV vaccine research. Our mission statement is to raise awareness of CMV, to financially support CMV vaccine research, and to affect change in the medical community so physicians begin to counsel woman about CMV prior to or during pregnancy.

  3. Board of Directors • Founder/President: Tracy McGinnis, whose 8 year old son, Brendan, is severely disabled and medically fragile due to CMV. Currently on our Board of Directors: • Dr. Mark Schleiss, University of Minnesota • Dr. Mike Cannon, CDC/NCBDDD • Dr. Michael McVoy, Virginia Commonwealth Univ. • Dr. Felicia Goodrum, University of Arizona

  4. What We Do We currently have 3 primary areas we focus our efforts. The culmination of these works have reached worldwide as we continue to provide a diverse array of support to the CMV community, both professionally within the research arena and personally within the network of CMV-affected families across the globe. CMV Vaccine Research Support CMV Awareness CMV Family Support

  5. CMV Awareness We have a number of CMV Awareness campaigns reaching not only nationally, but internationally. Since 2008, our Foundation has been holding CMV Awareness Walk-n-Rollathons across the country. Raising much needed awareness as well as vital donations to support our goals, these important events are hosted by CMV-affected families each Spring. This year we will hold our 5th annual nationwide events. To date, we have distributed over 26,000 of our tri-fold CMV informational pamphlets worldwide to the general public as well as to hospitals, physician offices, daycare centers, fitness centers, hair salons, schools, and other such centers of business. We offer these as a free public service as part of our CMV Awareness mission.

  6. CMV Awareness PSA figures to date are: Total airings: 3,035Total stations airing: 26 Total audience impressions: 1,038,385 Million viewers! PSAs: This year we produced 3 PSAs which have been distributed to all major television networks and many cable networks. PSAs range from 15-60 seconds in length and represent an extremely effective outreach intervention, capable of targeting a broad audience. Facebook is an important medium for our Foundation regarding CMV awareness and provides supportive outreach for CMV-affected families around the world. Since 2009, our CMV awareness ad on Facebook has had nearly 3 million impressions, underscoring the effectiveness of social networking in increasing knowledge about congenital CMV! You Tube: We have created a number of CMV Awareness videos, reaching over 17,000 viewers. These can be viewed on our You Tube Channel: CMV Foundation

  7. CMV Awarenessin the White House

  8. CMV Awarenessin the White House

  9. CMV Family Support Our Foundation has developed a support network for CMV-affected families around the world, as well as an annual conference gathering for CMV Families Making Tracks Together: 2013 will be the 4th annual gathering for families with children affected by CMV. This 4 day event includes expert guest speakers and parent speakers, as well as formal and informal gathering times. Family Outreach Committee: This committee is dedicated to lending timely and vital support to families affected by CMV by providing information, referrals and at times a simple shoulder to cry upon. Facebook: With over 500 CMV-affected families worldwide on a private group page, we lend daily support at any hour of the day or night.

  10. CMV Vaccine Research Support We recognize that there is only one way to eradicate CMV…a vaccine. With thousands…tens of thousands…of families being affected worldwide annually by CMV, we must continue to facilitate an exponential increase of funding for CMV vaccine research! With combined efforts and energies, we can work together with NIH, CDC, FDA and other agencies to help see that change occur.

  11. CMV Vaccine Research Support Award for Innovation in CMV Vaccine Research We are pleased to lead the way in the non-profit, grassroots effort to eradicate CMV with vaccine research support by presenting an annual award to innovative researchers in the CMV vaccine field. We are honored to be presenting our 2nd annual award this Fall at the 4th International Congenital CMV Conference in San Francisco.

  12. www.cmvfoundation.org We encourage all conference attendees to contact us so we may work together on these efforts, and we look forward to positive forward movement as we strive to develop a CMV vaccine and ultimately eradicate CMV. Email: mcginnis@cmvfoundation.org

  13. Brendan B. McGinnisCongenital CMV Foundationwww.cmvfoundation.org

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