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Children’s Medical Center Dallas . Implementation of a Family Advisory Council Lindy Moake, RN, MSN, PCCNP and Amy Selimos, RN, MS, P-CNS. Why are Family Advisory Councils important to the work you do?.

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Children’s Medical Center Dallas

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Children’s Medical Center Dallas

Implementation of a Family Advisory Council

Lindy Moake, RN, MSN, PCCNP and

Amy Selimos, RN, MS, P-CNS


Why are Family Advisory Councils important to the work you do?

  • Family Advisory Councils are the perfect forum for an exchange of ideas in a safe and objective setting

  • Partnering with your consumer in the current healthcare climate is vital to the survival of organizations.


Partnership and Engagement with your Family Advisory Council

  • Family Advisory Councils can provide:

    • An effective mechanism for receiving and responding to consumer input

    • Efficient planning to ensure that services really meet consumer needs and priorities

    • Offers a forum for developing creative, cost-effective solutions to problems and challenges faced by the program or organization

    • Supplies a link between the program, its surrounding community and community groups


Start-up Concerns and Surprises

  • Concerns

    • Personal grievance session for families

    • One family may try and monopolize conversations

    • No tangible outcomes

    • Time commitment

    • Cost

    • Involvement of non-English speaking families

  • Surprises

    • Families willingness to participate and see beyond their own personal experiences

    • Focus on opportunities for improvement

    • Innovative ideas expressed based on their experiences

    • Active participation with process changes

    • Requests to have more staff involvement


Improvements & Change we have seen in less than 1 year

  • Increased referral patterns

  • NRC Picker (Patient Satisfaction)Score Improvements

  • Better use of Information Technology

  • Active involvement my multidisciplinary team members

  • Improved communication within our hospital and with referring PCP’s and Cardiologists

  • Binder additions and revisions


Our Family Advisory Council’s Plans for the Future

  • Enhance family education

  • Matching families with newly diagnosed patients

  • Post-Glenn Program

  • Fundraising

  • Social Networking

  • Monthly dinners


Pearls of Wisdom

  • Start up requires more time than money

  • Meet with your administrators and leaders to discuss impact on Organizational Goals

  • Don’t let families who live at a distance discourage you

  • Work with translation services to include non-English speaking families


This is why………..


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