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Research Training Center on Service Coordination CFDA 84.324L

Center Principles. Collaborative model of integrated activities. Families are an integral component .Stakeholders contribute to all phases.Use of a Participatory Research Model.. . Center Framework. Family. I. Status. II. Outcomes. III. Recommended Practices. IV. Measurement. V. Training Model.

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Research Training Center on Service Coordination CFDA 84.324L

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    1. Mary Beth Bruder, Ph.D. University of Connecticut A.J. Pappanikou Center For Developmental Disabilities 263 Farmington Avenue, MC6222 Farmington, CT 06030 Phone: (860) 679-1500 Fax: (860) 679-1571 bruder@nso1.uchc.edu Website: www.uconnucedd.org Research & Training Center on Service Coordination CFDA # 84.324L

    2. Center Principles Collaborative model of integrated activities. Families are an integral component . Stakeholders contribute to all phases. Use of a Participatory Research Model.

    3. Center Framework

    4. IDEA Outlines Service Coordination Activities Coordinating the Performance of Evaluations and Assessments Facilitating and Participating in the Development, Review, & Evaluation of the IFSP Assisting the Family in Identifying Available Service Providers Coordinating and Monitoring the Delivery of Available Services Informing Families of Available Advocacy Services Coordinating with Medical & Health Providers Facilitating the Development of a Transition Plan

    5. Objective 1 Describe current models of service coordination. What we did: We conducted a series of surveys to describe and define service coordination.

    6. 1.1 Part C Survey Purpose: To describe current status of Part C service coordination models. Sample: ALL Part C coordinators in 57 states & territories.

    7. Part C Survey Findings 39 Part C coordinators reported lack of uniformity in how service coordination was provided in their state. 36 states used regional approach. Service coordinator case loads: Ranged from 9 – 70 with mean = 38. 17 states were changing service coordination models.

    8. 1.2 Curricula Survey Purpose: To identify training practices & competencies for service coordinators. Sample: Training personnel from 55 states territories.

    9. Curricula Survey Findings Information was obtained from 55 states & territories. Average length of training in 37 states: 2 –3 days. 49% (n= 27) states mandated service coordination training. 47% (n=26) states were in process of developing service coordination curricula.

    10. 1.3 Parent Leader Survey Purpose: To provide descriptions of families’ perceptions of their state’s model of service coordination. Sample: 319 parent leaders in 50 states & DC

    11. Parent Leader Findings 26% (n=83) of families did not learn who their service coordinator was until after the IFSP. 36% (n=118) of families felt service coordination was very helpful. 38% (n=121) of parents believed service coordination was very effective in developing IFSP’s that were responsive to child and family needs.

    12. 1.4 Parent ICC Phone Survey Purpose: To determine participant’s perceptions of service coordination models and practices in their states. Sample: Parent leaders in each of 50 states who serve on ICC boards.

    13. Parent ICC Findings 60% (n= 30) of ICC parent representatives considered themselves familiar with federal regulations. 64% (n=32) said ICC’s were familiar with federal regulations. 48% (n=24) were unsure if state had specific model for service coordination

    15. Outcome Focus Group Design

    16. Outcome Focus Groups

    17. Delphi Sampling

    18. Outcome Delphi Design

    19. Outcome Delphi Design

    20. Delphi Outcomes Children and families receive appropriate supports and services that meet their individual needs Children are healthy Children’s development is enhanced Children have successful transitions Families are involved in decision making Families are informed about resources and services People work together as a team

    21. National Outcomes Survey Parent/Practitioner Surveys

    23. Practice Focus Group Design

    24. Practice Focus Groups

    25. Delphi Practice Sampling

    26. Practice Delphi Design and Findings

    27. Practice Delphi Design and Findings

    28. Delphi Practice Themes Providing information Ensuring family understanding Being responsive to families Developing IFSPs Monitoring progress Ensuring family satisfaction Promoting child development Addressing healthcare and safety issues Completing administrative responsibilities Planning for transitions Collaborating with community organizations Engaging in professional development activities

    29. National Practices Survey Family Surveys

    30. Development of Practice Categories

    31. Development of Practice Categories

    33. Service Coordinator ToolKit Embedded Within Each Activity: Outcomes Practice Themes: Specific Tasks Tips, Resources, Documents, Videos

    34. Specific Outcomes for Coordinating Medical & Health

    36. During a conversation with the family, gather and provide information about their awareness and knowledge about: Child’s involvement with medical and health care providers Child’s history of hospitalizations Concept of a medical home Child’s nutritional needs Child’s mental health need Child’s environment and potential hazards Confidentiality & sharing of information Medical insurance An ongoing medical/health record system

    37. Educate service providers about child’s medical needs Facilitate the appropriate sharing of medical information among the child’s service providers (early intervention as well as health care) Identify and obtain additional medical/health services that may be needed for the child

    38. Obtain written consent from family to gather health and medical records Request child’s health and medical records from the appropriate sources Obtain written consents from family to share information Provide health and medical providers with EI evaluations and progress notes

    39. Feedback From Family: Disagree Somewhat Agree Strongly Agree My child receives care within a medical home I feel my child’s medical and health needs are met My child has the health insurance he or she needs My family’s confidential information is kept private My service coordinator is adequately coordinating my child’s medical and health services I have the support, knowledge and tools to coordinate the medical and health services for my child

    40. Next Steps Experimental study Control and Intervention groups of service coordinators Pre and post assessment of families and child development Intervention Group: Receives initial training on RTC model Web-based SC Tool Kits Professional Learning Communities Six-month intervention phase

    41. For More Information

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