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“ National Picture of Celiac Disease in Greece ”. Eleftheria Roma Professor of Paediatric Gastroenterology of Athens University. COELIAC DISEASE IN GREECE. Incidence: unknown (1:135 children from recent pilot study, unpublished) Under-diagnosed

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national picture of celiac disease in greece

“National Picture of Celiac Disease in Greece ”

Eleftheria Roma

Professor of Paediatric Gastroenterology

of Athens University

coeliac disease in greece

COELIAC DISEASE IN GREECE

Incidence: unknown (1:135 children from recent pilot study, unpublished)

Under-diagnosed

National cover of the cost for GF products

Need for:

collaboration of health professionals

registry of patients

more dieticians

Need for education about the disease of:

Patients

Food producers and restaurants

Schools and other services

Health care professionals with regard to the detection and management of CD

greek national task force

Greek National task force

Composed from 8 members:

4 Paediatric and an adult gastroenterologist, dietician, a coeliac patient member of the council of the HCS , and a representative of the Ministry of Health (dietician)

The plans:

Training and dissemination at national level all about CD

Effort to register all diagnosed coeliacs (children and adults )

Better follow up (especially adults)

Providing gluten-free menus in restaurants, schools

Arrangement for the proper cost of GF products provided by the Government

Effort for detection of asymptomatic or atypical CD

building national task forces which are the plans

Building National Task Forces : which are the plans

State of the art in the training and dissemination at national level

Information about CD by the media, local societies , schools

Work with Institution and Professional Societies

Communication with Hellenic :

Gastroenterology associations (Adult & Paediatric)

Paediatric Association

College of Paediatricians

Internal medicine association

Information and sensitization of medical students about CD

Dissemination tailored to the General Practitioners

Distribution by the government information about CD to GPs over the country

Seminars about CD

slide5

GREEK COELIAC SOCIETY

  • Members (children and adults): about 1300
  • Established in 1987
  • Activities
    • Annual meeting (600-700 participants)
    • Annual participation of council members to AOECDS meeting
    • Annually updated pamphlet with local and manufactured GF products
    • Site for information
    • Forum (chat between members)
    • Support information by members
    • Youth meetings (2-3/year, participants 16-30 years old)
    • Summer camp
slide6

The Association of European Coeliac Societies (AOECS) was founded in 1988.

  • AOECS is the umbrella organisation of European Coeliac Societies and is an independent non-profit association.
  • AOECS reviews problems of international importance, coordinates international activities and matters of common interest of the members and favours the exchange of information among the members for the benefit of Europeans affected by the coeliac condition or dermatitis herpetiformis.
  • Greek coeliac society is also a member of AOECS and CYE.
  • http://www.aoecs.org/
  • http://www.koiliokaki.com
  • Greek coeliac society
  • General information
  • Administration council
  • AOECS
the key components of the greek mediterranean diet
The key components of the Greek Mediterranean diet
  • The key components of the Greek Mediterranean diet includes many naturally gluten free foods such as fruits, vegetables, protein rich legumes-beans, fish and sources of monounsaturated fatty acids (olive oil) and polyunsaturated fatty acids (such as omega-3 fatty acids)
greek vegetable dishes
Greek vegetable dishes
  • Naturally gluten free Greek vegetable dishes are rich in fiber, vitamins and antioxidants.
traditional stuffed vegetable dish called gemista
Traditional stuffed vegetable dish called gemista
  • Traditional stuffed vegetable dish made with several different vegetables(tomatoes), rice, parsley, mint and olive oil.

Vine leaves stuffed with rice & parsley (dolmadakia)

traditional greek deserts are naturally gluten free
Traditional Greek deserts are naturally gluten free

Yogurt, walnuts & honey

Rice pudding

slide14
Greek desert made of honey and sesame seeds are naturally gluten free used by ancient Greek civilizations
the diagnostic guidelines actually working in the reality of our country

The Diagnostic Guidelines actually working in the reality of our country

How they are applicable in the country

T-TG, EMA, (AGA occasionally)

Biopsy

HLA typing (especially in atypical cases ) not in all centers

The status of contribution to the retrospective study

Available data concerning the above tests

training and dissemination in your country

Training and dissemination in your country

Medical students

General practitioners

Work with all institution and professional societies

Information by the media

starting a pilot study in the field far from reference centers

Starting a pilot study in the field far from reference centers

A stratified study funded by the Hellenic SPGHAN concerning detection of CD by whole blood quick test is on the way

Pilot data exist.

conclusion

CONCLUSION

Coeliac disease remains undiagnosed in the high proportion

Need for intervention:

education about the disease

screening the high risk groups

availability of GF products outside home

follow up for improvement of compliance to GFD

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