1 / 11

WP3 Progress to date and critiquing the questionnaires

WP3 Progress to date and critiquing the questionnaires. WP 3 Progress (1). 4 Focus Groups completed Naïve: people with stroke and carers Experienced: people with stroke and carers Carers Health Care Professionals Telephone interviews 4 budget holders 2 commissioners. WP 3 Progress (2).

Download Presentation

WP3 Progress to date and critiquing the questionnaires

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript


  1. WP3 Progress to dateand critiquing the questionnaires

  2. WP 3 Progress (1) • 4 Focus Groups completed • Naïve: people with stroke and carers • Experienced: people with stroke and carers • Carers • Health Care Professionals • Telephone interviews • 4 budget holders • 2 commissioners

  3. WP 3 Progress (2) • Additional data sources: • ACPIN meeting on Commissioning • Workshop with physiotherapists at National ACPIN conference • Review of Policy Documents • Raising awareness: • Poster dissemination at the World Congress for Neurorehabilitation • Workshop with physiotherapists at National ACPIN conference • Meeting with Local Different Strokes Group

  4. Focus Group findings:Patients and Carers – Service / system level failure • Frustration at lack of NHS provision • Transition between hospital and home • Recognition of the burden on carers (emotional and practical) • Prepared to purchase if they know it will work (try before you buy / lease purchase schemes) • Lack of information about rehabilitation • Perceived lack of engagement with technology from healthcare professionals • Fighting the system

  5. Focus Group findings:Patients and Carers – Devices • Desire for something which they can wear during daily life • Easy to put on / off, many current devices difficult • Prepared to purchase if they know it will work (try before you buy / lease purchase schemes) • Motivation to optimise recovery • Hope in technology – informed by knowledge of recovery and importance of practice • Belief in technology - because it’s designed for purpose • Issues around generalisability – one-size doesn’t fit all – awareness of others needs

  6. Focus group findings:Healthcare Professionals • Device practicalities – focus on use in hospital for both in & out-patients • Cost – initial and running • On/off and set-up time • Storage • Maintenance and cleaning • Knowledge, information and choice (NHS vs private approaches) • Not wanting to raise expectations of recovery and provision • Frustration at the system • Lack of evidence • Future role envisaged

  7. Interview findings:Budget Holders and Commissioners – System failure • Commissioners are there to buy service, but stroke upper limb is unacknowledged problem • Therapists are not selling device based services to commissioners • Lack of evidence of benefit • Don’t know the system • Don’t think they would be able to make good enough case for devices • Effort • No perceived clear route to market c.f. drugs • Devices are the remit of therapists. They have no budget.

  8. Questionnaire progress • Ethics – Substantial amendment to NHS submitted • Questionnaire review ongoing • Questionnaire distribution on ethics approval • Present findings of FGs and raise awareness of questionnaire at UK Stroke Forum (Dec) Workshop Thursday 2 December, 0800-0850 • How do we improve method of accessing commissioners of services?

  9. Critique of draft questionnaires – divide into 3 groups • Patients and carers (Ann-Marie) • Patient, Stroke patient rep • HCP (Jane) • Practicing clinicians / researchers • Budget holders and commissioners (Sara) • People responsible for managing or commissioning services If you have 2 hats please join the smaller group

  10. Providing feedback on draft questionnaires • Each individual to read and complete the questionnaire (30 mins) • Identify any questions that were ambiguous or unclear • Irrelevant – we would like to reduce the length by ~20% • Where we have duplicate questions identify preferred form • Additional questions that should be included • Mark-up your individual copy of the questionnaire with your comments • Collate main comments within your group on a flip chart (5 mins) • Present group feedback to the meeting (12 mins)

More Related