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CEREBRAL PALSY-WHAT DOES IT STAND FOR.

CEREBRAL PALSY-WHAT DOES IT STAND FOR. PUBLIC EDUCATION PROGRAM NATIONAL CEREBRAL PALSY DAY-2 ND & 3 rd OCTOBER-2011 NAGPUR. C-COMMUNITY AWARENESS-Children are human beings &not becomings- [A.Colver]. E-EARLYDIAGNOSIS &INTERVENTION. R- RESEARCH FOR ACTION & CARE. Orthotists. Orthopedic

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CEREBRAL PALSY-WHAT DOES IT STAND FOR.

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  1. CEREBRAL PALSY-WHAT DOES IT STAND FOR. PUBLIC EDUCATION PROGRAM NATIONAL CEREBRAL PALSY DAY-2ND& 3rd OCTOBER-2011 NAGPUR

  2. C-COMMUNITY AWARENESS-Children are human beings &not becomings- [A.Colver]

  3. E-EARLYDIAGNOSIS &INTERVENTION

  4. R- RESEARCH FOR ACTION & CARE Orthotists Orthopedic Surgeon Occupational Therapist Pediatrician neurologist Family Physio- Therapist- Teachers Special Educator Psychologist MANY IS NOT MERRY ALWAYS!- cohesive action & reality limitations.

  5. E-ENABLE, EDUCATE & EMPOWER

  6. B- BARRIER FREE ACCESS, A BIRTH RIGHT.

  7. R- REHABILITATION, A COLLECTIVE GOAL.

  8. A- AFFORDABLE ASSISTIVE TECHNOLOGY.

  9. L- LIFE SPAN HEALTH & LIVELYHOOD

  10. P- PARTICIPATION

  11. PREVENTION PATHWAYS- CASCADE –CUMULATIVE NEURONAL DEATH O2 ↓, Ca ↓ ,Glucose ↓ , Genetics ,Iodine ↓, substrate deficits,kernicterus Maternal health ( micro{Stress} & macro) ,Fac v Leiden , ApoE 3&4, Family history, Trauma, Intra uterine Infections, Placental inflammation. Menstrual irregularities, IUGR, Multiple pregnancies,IVF pregnancies, Breech presentation, Preterm births, Antenatal, Intranatal & perinatal care. • EXCITOTOXIC CASCADE –Confluence of multiple factors ->cumulative neuronal death

  12. ATTITUDINAL CHANGE. “The problem is not how to wipe out the differences but how to unite with the differences intact”. – RabindranathTagore

  13. ADVOCACY- Cohen2001 • Advocacy means pursuit for influencing outcomes; outcomes that affect people’s current lives. • Care is a learned attribute where as advocacyimplies active effort emerging out of strongscientific fundamentals

  14. LOOK AT OPTIMALITY THAN NORMALITY LOOK AT OPTIMALITY THAN NORMALITY-Therapists &Parents

  15. S-SCIENCE FOR DEVELOPMENT • STEM CELLS Physical therapy • surrogates-whole • body vibrators ,trans • cranial magnetic • stimulation, neuro • protection -receptor • specific molecules • Computer assisted & • robotic training

  16. Y- YEARS OF CREATIVE WORK IN NEURODISABILITY • FUNCTION. • FAMILY. • FRIENDSHIP. • FUTURE. • FITNESS . • ALL IN THE CONTEXT OF FUN [Dr.Gorter] • ENSURE THESE FIVE F’S

  17. Parenting with out pretensions Families with inadequate coping Positive families ROLE MODELS FENCE SITTERS Enmeshed families CHALLENGING

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