Advancing a quality of life agenda innovation ingenuity advocacy
Download
1 / 14

Advancing a Quality of Life Agenda: Innovation, Ingenuity & Advocacy - PowerPoint PPT Presentation


  • 151 Views
  • Uploaded on

Advancing a Quality of Life Agenda: Innovation, Ingenuity & Advocacy. Palliative Care and QOL Activities Engagement Rebecca Kirch, Director, Quality of Life & Survivorship Comp Cancer Coalitions Leader Summit – Atlanta 2012. “ What is important to you?”.

loader
I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
capcha
Download Presentation

PowerPoint Slideshow about ' Advancing a Quality of Life Agenda: Innovation, Ingenuity & Advocacy' - chin


An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.


- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript
Advancing a quality of life agenda innovation ingenuity advocacy

Advancing a Quality of Life Agenda:

Innovation, Ingenuity & Advocacy

Palliative Care and QOL Activities Engagement

Rebecca Kirch, Director, Quality of Life & Survivorship

Comp Cancer Coalitions Leader Summit – Atlanta 2012


What is important to you

What is important to you?”


Qol concerns are not raised or discussed in cancer clinical settings
QOL concerns are not raised or discussed in cancer clinical settings.

Q: After diagnosis and before starting treatment, did anyone on care team ask what is important to you in terms of your QOL?

2010 ACS CAN National Poll on Facing Cancer in the Health Care System (www.acscan.org)


Palliative Care Hits the High Notes settings.

Better health. Better care. Lower cost.

  • Palliative care sees the person beyond the cancer treatment.

  • Optimizes quality of life and survival by anticipating, preventing, and treating suffering.

  • Essential element of quality care from diagnosis and continuing throughout treatment, surveillance, survivorship, and, when applicable, bereavement.


What s in a name language matters
What’s in a name? Language matters. settings.

Palliative care…

  • Focuses on relieving symptoms, pain and stress of serious illness.

  • Improves quality of life for both patient and family.

  • Provided by a team who works with a patient’s other doctors to provide an extra layer of support.

  • Appropriate at any age and any stage and can be provided along with curative treatment.

Definition developed through consumer research by Public Opinion Strategies in 2011.


Chief barrier palliative care has an identity problem
Chief Barrier: Palliative care has an identity problem settings..

“I don’t want to achieve immortality through my work. I’d rather achieve it by not dying.” -- Woody Allen

  • Palliative care is a relative unknown among laypeople (92% really don’t know what it is)

  • Most health professionals equate palliative care with EOL and hospice – curative vs. palliative perspective


Give us the words to use to get the care we need

“Give us settings.the words to use to get the care we need”


People want palliative care
People Want Palliative Care settings.

Key Finding: People can understand and want palliative care if we use their words.

  • 95%say education is important for patients & their families about palliative care options available to them as part of treatment.

  • 92%report they would be likely to consider palliative care for themselves or their families if they had serious illness

  • 92%also said they believe patients should have access to palliative care at hospitals nationwide

Data from CAPC/ACS Public Opinion Strategies national survey of 800 adults age 18+ conducted June 2011. www.capc.org


Mission critical give them the words
Mission Critical: Give them the words settings.

What can I do?

Help everyone get in the QOL groove…

  • This QOL platform promotes personal choice about how patients want to be living – “the QOL formula”

  • Talk about palliative care as an “extra layer of support that is helpful at every point in care.”

  • Seize all opportunities to inform & empower others so we build palliative care awareness and understanding – make “what’s important to you” a priority.


Advance qol legislation
Advance QOL Legislation settings.

  • Pressing for QOL and person centered care

  • Federal suite is our starter course

    • 1. Patient-Centered Quality of Life Act (HR 6157)

    • 2. Palliative Care & Hospice Education and Training Act (HR6155/S3407)

  • QOL Model State Legislation Coming Soon

  • Balancing State Pain Policies

  • What Can I do?

  • Become familiar with the advocacy campaign and messaging at www.acscan.org/palliativecare

  • Join the QOL movement and take action!


  • Engage health systems new qol standards new opportunities
    Engage Health Systems settings.New QOL Standards, New Opportunities

    • Advanced Palliative Care Certification Program for hospitals (2011)

    • Palliative Care accreditation standard for cancer programs (2011)

    • Endorsed several new palliative care measures (2011)

    • Provisional Clinical Opinion on concurrent palliative care (2012)


    Enhance clinical communication skills trained professionals empowered patients
    Enhance Clinical Communication Skills settings.Trained Professionals, Empowered Patients.

    What can we do? Help health professionals know and use the right words…


    State comprehensive cancer coalitions can play key role promoting qol
    State Comprehensive Cancer Coalitions can play key role promoting QOL

    • What can I do?

    • Feature this topic and engage your CCC colleagues to educate and energize membership and motivate action…

    • Emphasize and enhance CCC role and plan content in promoting integrated palliative care/QOL and understanding about its definition and use

    • Use this platform to expand coalition’s organizational partner reach and cultivate new ties with health professionals and others


    Creating a qol movement for more and better birthdays
    Creating a QOL Movement… promoting QOL for more and better birthdays!

    Although the world is full of suffering, it is also full of the overcoming of it.

    -- Helen Keller, Optimism


    ad