2009 Marrow Failure and Myelodysplasia Conference
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2009 Marrow Failure and Myelodysplasia Conference Saturday March 28, 2009 - from 9 a.m. to 4:30 p.m. The Hospital for Sick Children Hollywood Theatre, Elm Wing, 1 st Floor 555 University Ave., Toronto

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2009 Marrow Failure and Myelodysplasia Conference

Saturday March 28, 2009 - from 9 a.m. to 4:30 p.m.

The Hospital for Sick Children

Hollywood Theatre, Elm Wing, 1st Floor

555 University Ave., Toronto

We are pleased to invite you to a day-long, interactive health-care meeting about bone marrow failure. This meeting is for patients with bone marrow failure disorders and myelodysplastic syndromes (MDS), patients’ families, as well as for health-care workers and others who are interested in learning more about bone marrow failure and contributing to this exciting event. It is also an ideal opportunity to network with other families, meet the medical team and guest speakers.

This year’s conference will focus on:

Characteristics and complications of bone marrow failure disorders and myelodysplastic, syndromes, overview of the treatment options and the need for regular follow-up, transfer of patients to adult haematologists, challenges and future directions from the perspective of the patients/families and the medical team, raising patients’ awareness about the existence of the support groups, the activities of the Marrow Failure and Myelodysplasia Program at SickKids, and networking opportunities for families.

Speakers:

Dr Yigal Dror, SickKids Hospital, Toronto Dr Conrad Fernandez, IWK, Halifax

Dr Adam Gassas, SickKids Hospital, Toronto Dr Jeff Lipton, Princess Margaret Hospital, Toronto

Dr Steve Meyn, SickKids Hospital, Toronto Dr Isaac Odame, SickKids Hospital, Toronto

Pat Canning, Marrow Failure and Myelodysplasia Nurse, SickKids, Toronto

Diana Cottingham, Social Worker, SickKids, Toronto

Nancy Pringle, Nurse, Princess Margaret Hospital, Toronto

Bone marrow failure and MDS disorders include:

Aplastic anemia; Fanconi anemia; Shwachman-Diamond syndrome; Congenital amegakaryocytic thrombocytopenia; Dyskeratosis congenita; Congenital hair hypoplasia; Pearson disease; Diamond Blackfan anemia; Sideroblastic anemia; Kostmann neutropenia; Cyclic neutropenia; Barth’s syndrome; Benign familial neutropenia; Glycogen storage disease type Ib; Myelokathexis; Thrombocytopenia with absent radii; Familial non-syndromic thrombocytopenia; Dyserythropoietic anemia with thrombocytopenia; Familial thrombocytopenia with propensity for leukemia; Myelodysplastic syndromes

Children are welcome. Children’s activities will be hosted by the Camp Quality volunteers.

For details and to register at no charge, please contact:

Philippa McCaffrey , Marrow Failure and Myelodysplasia Program

The Hospital for Sick Children, Toronto

416-813-8886 or [email protected]

Please note the number of participants is limited by the conference facilities, therefore we recommend early registration.

Lunch and refreshments are included, and parking discounts will be available.


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