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Working Together as Partners in+care Introducing the Partners in+care Toolkit. June 28, 2012. For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#. Welcome & Overview. This Partners in + care webinar is offered as part of the in + care Campaign.

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Working Together as Partners in+care Introducing the Partners in+care Toolkit

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Working together as partners in care introducing the partners in care toolkit

Working Together as Partners in+care

Introducing the Partners in+care Toolkit

June 28, 2012

For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#


Working together as partners in care introducing the partners in care toolkit

Welcome & Overview

  • This Partners in+care webinar is offered as part of the in+care Campaign.

  • The in+care Campaign is a national effort to improve retention in HIV care.

  • Webinars are one of many Partners in+care activities designed to engage people living with HIV/AIDS and their allies in the in+care Campaign.

  • This webinar introduces tools you can use to engage peers and consumers in the in+care Campaign.

Michael Hager

NQC Manager,

TA/Dissemination

New York, NY

[email protected]

For more information: www.incarecampaign.org


Working together as partners in care introducing the partners in care toolkit

This is a “public event.” If you have confidentiality concerns . . .

Your names appear on-line in the list of webinar registrants--consider just listing to the audio or to viewing the webinar at a later time, after it is posted at www.incarecampaign.org

All webinars are recorded--do not use identifying information when asking questions

Participation Guidelines

For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#


Working together as partners in care introducing the partners in care toolkit

Actively participate and write your questions into the chat area during the presentation; we will also have a “pop up” question exercise, and will pause for conversation during the webinar

Do not put us on hold

Mute your line if you are not speaking (press *6, to unmute your line press #6)

The slides and recording of this and other Partners in+care webinars are available for playback and group presentations at www.incarecampaign.org – “Resources” tab

Participation Guidelines

For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#


Working together as partners in care introducing the partners in care toolkit

Welcome, Overview, Participation Guidelines - 5 mins

Agenda, Learning Objectives, Introductions - 5 mins

Partners in+care Refresher, 20 mins

Opening the Partners in+care Toolkit, 20 mins

The Impact of Retention, 5 mins

Wrap-up & Evaluation, 5 mins

Conversation opportunities throughout webinar

Agenda

Bob Tracy, NQC

Peer Consultant

St. Paul, MN

[email protected]


Working together as partners in care introducing the partners in care toolkit

At the end of this webinar you will know . . .

How the in+care Campaign and Partners in+care fit together

What resources are available in the Partners in+care Toolkit

Why it is important to engage peers and consumers in our “push” to improve retention

Learning Objectives


Working together as partners in care introducing the partners in care toolkit

Partners in+care Refresher

Purpose for in+care Campaign

The purpose for the in+care Campaign is to improve health and prevention by keeping and getting more people living with HIV/AIDS in care.

We are doing this by facilitating local, regional and state-level initiatives to improve retention.

Visit www.incarecampaign.org


Working together as partners in care introducing the partners in care toolkit

Partners in+care Refresher

Five Parts of the in+care Campaign

Visit www.incarecampaign.org


Partners in care purpose

Partners in+carePurpose

Partners in+care Refresher

Successful results in HIV care depend upon partnership between consumers and their providers.

So does the in+care Campaign.


Working together as partners in care introducing the partners in care toolkit

Partners in+care Refresher

Purpose for Partners in+care CampaignEngage people living with HIV/AIDS as partners in the in+care Campaign

Increase Knowledge

Web “hub”

Webinars

Resources

National Network

Peer-to-peer exchange

Self Care

Peer-to-Peer

Engage in QI

Visit www.incarecampaign.org – “Partners” tab


Working together as partners in care introducing the partners in care toolkit

Partners in+care Refresher

Pop-up Question

How have you been involved with the in+care Campaign?

Signed-up for in+care Campaign?

Participated in webinars?

Worked with a regional coach?

Involved with a regional learning group?

Signed up for Partners in+care?

I’m new. Today is the first.

Other?

Select all that apply.

Visit www.incarecampaign.org


Working together as partners in care introducing the partners in care toolkit

Partners in+care Refresher

What has Partners in+care offered, to date?

  • November – Pi+c work group formed

  • February - Launched Pi+c web site and introduced the Pi+c network *

  • March – Webinar introducing retention and Pi+c

  • April – Webinar on self-care and retention

  • May – Webinar on retention and peer-to-peer outreach & support

  • June - Introduced the Pi+c Facebook page; exchange tips, stories, information & experiences **

  • June – Pi+c Toolkit launch & introductory webinar

* Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab

** Send email to [email protected] – “Facebook” in subject line


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Introducing the Pi+C Toolkit

A set of resources to reach peers and consumers that are easy-to-find on the Partners in+care web page that you can use to:

  • Support knowledge about retention

  • Promote involvement in Pi+c

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

What’s in the Pi+C Toolkit

  • “How To” guide

  • Pi+c awareness and promotional tools

  • Web resource links

  • Key articles

  • Short Powerpoint presentations

  • Webinar archive

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Using the Pi+C Toolkit

Getting what you need from the Pi+c web site to take the Pi+c experience beyond the web

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Where to find the Pi+C Toolkit

www.incarecampaign.org

Click the “Partners” tab

Open the Pi+c Toolkit

Partners in+care

Toolkit

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Awareness Tools

  • in+care Campaign video

  • Promotional flier [PDF]

  • Palm card [PDF]

  • Tear sheet [PDF – updated to promote next Pi+c webinar]

  • Tip Sheet [messages for email, FB & Twitter]

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Awareness Tools

Have you used any of the Pi+c awareness tools?

Tell us how you have used the tools and about your experiences in the chat room.

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Resources to Share

  • Key HIV Terms [HRSA]

  • Ryan White Services [HRSA]

  • Living History [HRSA]

  • HIV self-care [HRSA]

  • Info about HIV [CDC]

  • Self Care [The Body]

  • Consumers & QM/QI [NQC]

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

More Resources to Share

Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1500-1502.

Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1493-1499.

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Things You Can Show

Short Powerpoint Presentations & Discussion Tools

  • Pi+c overview

  • Retention: What It Means for You

  • Retention & Self-care

  • Retention & Peer-to-Peer Support

  • Retention & Consumer Involvement in Quality Management & Improvement

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Things You Can Watch

Pi+c Webinar Archive

  • Retention: Partners Make It Happen

  • It Starts with One: Retention & Self-care

  • Reaching Out to Share the Benefits of Care: Retention & Peer Advocacy

  • Other in+care Campaign webinars available @ www.incarecampaign.org

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Ways To Connect

Pi+c Network

  • Email notices and updates about Pi+c and in+care Campaign

  • Provide advice [Pi+c surveys]

+Sign up to Be a Partner in Care

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Ways To Connect

Pi+c Facebook Community

  • Share tips, stories, experiences & resources

  • Community of people living with HIV/AIDS and allies

  • Secure and confidential

  • Join. Send email to [email protected] – Facebook in subject line


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Ways To Share

  • Share your experiences.

+ Tell Us Your Improvement Stories

  • Share your resources. Send them to [email protected]

  • Join Pi+c work group.

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

Send email to [email protected] – “Work Group” in subject.


Working together as partners in care introducing the partners in care toolkit

Partners in+care Toolkit

Raise Your Hand

Are you connected with Partners in+care?

How many have signed up for the Pi+c network through the Pi+c web page?

How many have joined the Pi+c Facebook page?

Who wants to join?

Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab

Send email to [email protected] – “Facebook” in subject line


Working together as partners in care introducing the partners in care toolkit

Our Goal

What We Want to Change

1/3 to 2/3 of PLWHA in US are not in regular care

17-40% of PLWHA who know status are not in regular care

40% of patients newly diagnosed did not see provider within 6 months


Working together as partners in care introducing the partners in care toolkit

Our Goal

The Value of Retention

  • Stay in care / Return to care

  • Retention –having a routine for seeing your doctor/health care provider on a regular schedule

  • Doing this persistently – year-after-year-after-year

There is a relationship—a seemingly obvious relationship—between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010]


Working together as partners in care introducing the partners in care toolkit

Our Goal

Continuum of Engagement


Working together as partners in care introducing the partners in care toolkit

Our Goal

Partners in+care: Providers & Consumers Coming Together to Overcome Retention Challenges

  • Self-care – learning more

  • Reaching out to others – peer-support, peer navigators, friends and family

  • “Systems” that work with us by working with them

Visit www.incarecampaign.org – “Partners” Tab


What we will accomplish

What We will Accomplish

Our Goal

Create a network of 1000 consumers ready to be engaged in retention through Pi+c.

Identify 100 consumers ready to become Pi+c leaders & advisers.

Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab

Send email to [email protected] – “Facebook” in subject line


Working together as partners in care introducing the partners in care toolkit

Our Goal

What We will Accomplish

  • Share what we know so we all get better at:

  • Seeing our doctor and HIV care providers on a regular basis

  • Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits

  • Making sure we all get the full benefit of care and treatment in order to improve our health


Working together as partners in care introducing the partners in care toolkit

Will You Join Pi+c?How Can You Use the Pi+c Toolkit?

Visit www.incarecampaign.org - “Partners” tab

Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab

Send email to [email protected] – “Facebook” in subject line


Working together as partners in care introducing the partners in care toolkit

Visit Web / Open the Toolkitwww.incarecampaign.org - “Partners” tab

Sign up for Pi+c Networkwww.incarecampaign.org – “Partners” tab

Join Facebook

Send email to [email protected] – “Facebook” in subject line

Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floor

New York, NY 10007Phone 212-417-4730


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