It s so strange south asian carers views of various places of care for their relative with dementia
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“It’s so strange”: South Asian Carers’ views of various places of care for their relative with Dementia. Divya Chadha Doctoral Researcher University of Birmingham. Why is this interesting?.

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It s so strange south asian carers views of various places of care for their relative with dementia

“It’s so strange”: South Asian Carers’ views of various places of care for their relative with Dementia

Divya Chadha

Doctoral Researcher

University of Birmingham


Why is this interesting
Why is this interesting? various places of care for their relative with Dementia

  • South Asian (SA) carers were unaware of various places of care/services suitable for their relative with dementia

  • Help was wanted but declined when offered

  • Understanding of what makes SA carers access/not access services for their relative with dementia


Background research
Background Research various places of care for their relative with Dementia

  • The ageing SA population Increase of dementia prevalence

  • Policy context= Dementia UK Report (2007) National Dementia Strategy (2009)

  • Dementia service uptake amongst the SA community is poor

  • No research looking at SA carers views on the various types of care places


Method
Method various places of care for their relative with Dementia

  • Qualitative analysis most suited

  • IPA not chosen as research not centered around personal experiences

  • Grounded Theory seen as an appropriate method

  • Best method to answer the question

  • Iterative + allows theory generation


Method1
Method various places of care for their relative with Dementia

  • Kathy Charmaz’s Constructivist version of Grounded Theory

  • Best fit with researcher’s epistemological position

  • 10 interviews completed + transcribed

  • Interviews completed with “decision makers” rather than hands-on carers of the person with dementia


Participants
PARTICIPANTS various places of care for their relative with Dementia


Preliminary analysis
Preliminary Analysis various places of care for their relative with Dementia

  • The concept of “strange”

    “ It’s a strange environment, with strange people and strange rules of living”

    “Why would I want strangers in my house touching my mum?”

    “It’s just so strange”

    “Every little thing which is important to him is different and strange in the day centre”


Preliminary analysis1
Preliminary Analysis various places of care for their relative with Dementia

  • “It’s all about the bonding”

    “I have this feeling of…not duty or anything but a sense of feeling too close to mum to consider those options”

    “the greater the sense of attachment, lesser the chances at looking at extra support”

    “I feel I am attached to him, receiving the extra support makes me feel I am cutting off this attachment”


Preliminary analysis2
Preliminary Analysis various places of care for their relative with Dementia

  • “Comparisons with home”

    “No NHS or care facilities exist back in India-why do we expect it here?”

    “Back home its all about keeping the loved one in the community- no old age homes for us!”

    “Why is there such an emphasis in providing such detailed care services here- it’s like a luxury here compared to Pakistan”


Discussion
Discussion various places of care for their relative with Dementia

  • Difference in opinion amongst different “decision makers”

  • Effect of acculturation

  • Problems in identifying the “decision makers” within the family system


Future research
Future Research various places of care for their relative with Dementia

  • What are the factors which predict access to health services amongst SA carers for their relative with dementia

  • What services would the SA carers prefer for their relative with dementia?


Thank you for your time
Thank you for your time various places of care for their relative with Dementia

Divya Chadha

516 School of Psychology

University of Birmingham

B15 2TT

Tel: 01213012068

Email: [email protected]


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