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CSAG II Research into the impact of the reorganisation of cleft services (NIHR) PowerPoint PPT Presentation


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CSAG II Research into the impact of the reorganisation of cleft services (NIHR). Jonathan Sandy. CSAG I – why did it happen?. Royal Colleges Department of Health Clinician Groups Parent and Patient Groups. Jonathan Sandy.

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CSAG II Research into the impact of the reorganisation of cleft services (NIHR)

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Csag ii research into the impact of the reorganisation of cleft services nihr

CSAG II

Research into the impact of the reorganisation of cleft services (NIHR)

Jonathan Sandy


Csag ii research into the impact of the reorganisation of cleft services nihr

CSAG I – why did it happen?

Royal Colleges

Department of Health

Clinician Groups

Parent and Patient Groups

Jonathan Sandy


Evidence not much but eurocleft comparison of 6 european centers

Evidence – not much but Eurocleft –Comparison of 6 European Centers

Data published in 1991


The clinical standards advisory group cleft lip and palate

The Clinical Standards Advisory Group Cleft Lip and Palate


Csag ii research into the impact of the reorganisation of cleft services nihr

  • Process data

  • Outcomes

  • Patient and Parent views


Csag twelve year olds

Data is prior to 1998

CSAG Twelve Year Olds

I

II

III


Alveolar bone grafting

Alveolar Bone Grafting

CSAG

Oslo

n=157


Uk csag

Data is prior to 1998

UK CSAG


Speech

Speech

Intelligibility5 year olds12 year olds

Normal19%47%

Different30%34%

Provokes Comment32%15%

Unintelligible19% 4%


Csag ii research into the impact of the reorganisation of cleft services nihr

Patient and Parent Satisfaction


Csag ii research into the impact of the reorganisation of cleft services nihr

Published in 1998


Csag ii research into the impact of the reorganisation of cleft services nihr

CSAG

  • Compelling evidence from a detailed and meticulous study

  • Recommendations unanimous

  • Recommendations accepted by Government

  • Recommendations consistent with centres from abroad


Recommendations

Recommendations

  • 57 cleft units to be concentrated in 8-15 centres


Csag ii research into the impact of the reorganisation of cleft services nihr

Audit from 3 Regions

Data from 2003


Csag ii research into the impact of the reorganisation of cleft services nihr

Audit from 3 Regions

Data from 2003


Csag ii research into the impact of the reorganisation of cleft services nihr

Mike Wake

Annals of The Royal College of Surgeons

Increased volume

=

Improved Outcomes


Research strategy

Research Strategy

  • CFSGBI – Research and Audit Leads

  • Workshop in RCTs – March 2005

  • Funding opportunities – Healing Foundation


Research leads

Research leads

Andy NessSteveThomas

Lifecourse DeterminantsNutrition and Cancer


The research team

The Research Team

Sam Leary Charlotte Atkinson Andrea Waylen Alex Griffiths Martin Persson

Statistics Nutrition Psychology StatisticsProject manager

More posts with NIHR programme…


Csag ii research into the impact of the reorganisation of cleft services nihr

NIHR programme

  • Workshops and strategy

  • Systematic reviews

  • Care and outcomes for cleft children


Csag ii research into the impact of the reorganisation of cleft services nihr

CSAG-II

  • Concentrate on 5 year olds for outcomes

  • Speech, hearing, oral health, dento – alveolar relations etc

  • Parental and team questionnaires

  • Process and infrastructure


Csag ii research into the impact of the reorganisation of cleft services nihr

Funding

  • Bill Shaw $6 million NIH

  • Andy Ness £3 million NIHR

  • Healing Foundation £2 million

  • MCRN support costs – Sally Davies


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