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CSAG II Research into the impact of the reorganisation of cleft services (NIHR)

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CSAG II Research into the impact of the reorganisation of cleft services (NIHR). Jonathan Sandy. CSAG I – why did it happen?. Royal Colleges Department of Health Clinician Groups Parent and Patient Groups. Jonathan Sandy.

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slide1

CSAG II

Research into the impact of the reorganisation of cleft services (NIHR)

Jonathan Sandy

slide2

CSAG I – why did it happen?

Royal Colleges

Department of Health

Clinician Groups

Parent and Patient Groups

Jonathan Sandy

evidence not much but eurocleft comparison of 6 european centers
Evidence – not much but Eurocleft –Comparison of 6 European Centers

Data published in 1991

slide6

Process data

  • Outcomes
  • Patient and Parent views
speech
Speech

Intelligibility 5 year olds 12 year olds

Normal 19% 47%

Different 30% 34%

Provokes Comment 32% 15%

Unintelligible 19% 4%

slide13
CSAG
  • Compelling evidence from a detailed and meticulous study
  • Recommendations unanimous
  • Recommendations accepted by Government
  • Recommendations consistent with centres from abroad
recommendations
Recommendations
  • 57 cleft units to be concentrated in 8-15 centres
slide15

Audit from 3 Regions

Data from 2003

slide16

Audit from 3 Regions

Data from 2003

slide17

Mike Wake

Annals of The Royal College of Surgeons

Increased volume

=

Improved Outcomes

research strategy
Research Strategy
  • CFSGBI – Research and Audit Leads
  • Workshop in RCTs – March 2005
  • Funding opportunities – Healing Foundation
research leads

Research leads

Andy Ness SteveThomas

Lifecourse Determinants Nutrition and Cancer

the research team

The Research Team

Sam Leary Charlotte Atkinson Andrea Waylen Alex Griffiths Martin Persson

Statistics Nutrition Psychology StatisticsProject manager

More posts with NIHR programme…

slide21

NIHR programme

  • Workshops and strategy
  • Systematic reviews
  • Care and outcomes for cleft children
slide22

CSAG-II

  • Concentrate on 5 year olds for outcomes
  • Speech, hearing, oral health, dento – alveolar relations etc
  • Parental and team questionnaires
  • Process and infrastructure
slide23

Funding

  • Bill Shaw $6 million NIH
  • Andy Ness £3 million NIHR
  • Healing Foundation £2 million
  • MCRN support costs – Sally Davies
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