Texas School for the Blind & Visually Impaired Outreach Department. Presents TETN # 30,238 Usher Syndrome: An Overview. Events in February. February 1-2 nd - Mentor Training at TSBVI February 13 th - TETN O&M for Babies Who Are Non-Mobile
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Presents TETN # 30,238
Usher Syndrome: An Overview
Kate Moss, Statewide Staff Development Coordinator
Edgenie Bellah, Family Specialist
With Special Guest, Linda Carter
3-6% congenitally deaf or hard of hearing Department
50% of all cases of deafblindness; leading cause of combined vision & hearing loss in USA
Type 1 - 90% of all Usher (most common)
Type 2 - 10% of all Usher
Type 3 – seems to account for about 40% of Usher in eastern Finland;Statistics on occurrence
Ophthalmological exam that includes field testing as well as acuity testing
Boys Town Research Hospital
Dr. William Kimberling, Center for the Study & Treatment of Usher SyndromeBoys Town National Research Hospital – Omaha
Phone – 402.498.6713email - [email protected]How is it diagnosed?
“What’s My Role?” A Comparison of the Responsibilities of Interpreters, Interveners, and Support Service Providers
by Susannah Morgan
May produce a wide-based gait although vision loss contributes
Certain sports may be difficult for the students
Infants and toddlers may be delayed in acquiring certain motor skills and may crawl with a “5 point stance”.Educational Issues
S clumsinesstand too close when fingerspelling, signing, speaking
Wave at the person from the sides to get attention
Point at another person who may want the attention
Grab the person’s arm to guide in the dark
Conversed with light coming directly behind you
Use large, wide-movements while using sign language
Attempt to carry on conversation in poor or dim light
Point vaguely in general direction of what you talk about.
Assume that person sees low obstacles.
Be afraid to ask if help is needed.DON’Ts for Usher Syndrome
Thanks for clumsiness