DELIVERING BETTER OUTCOMES FOR PEOPLE WITH DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE LONDON CENTRE FOR DEMENTIA C

1. Maria S. Parsons Executive Director London Centre for Dementia Care University College London DELIVERING BETTER OUTCOMES FOR PEOPLE WITH DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE LONDON CENTRE FOR DEMENTIA CARE

2. Dementia in the UK • 2008 estimated 700,000 people with dementia • 2021 rise of 38% to just over 1,700,000 • 68% over 80 • 62% Alzheimer’s disease • 66.5% live in the community • 36.5% in care homes • 36% of estimated £18 billion costs of care borne by families • No cure -it helps to understand dementia as a disability

3. Fig 3. People aged 65 in Sutton predicted to have dementia 2008 - 2025 1400 1200 1000 65-69 70-74 800 75-79 600 80-84 85+ 400 200 0 2008 2010 2015 2020 2025 London Borough of Sutton

4. Challenges in London • Increases in prevalence of dementia in London boroughs estimated as circa 10% (Inner) and 32% (Outer) over next 17 years. • Disparities of income and wealth – groups dependent on public services & ‘self payers’ • Cross cutting inequalities – dementia + low health status, social deprivation, ethnicity and discrimination, social isolation and living alone. • Diversity of workforce • Low level of skills and specialist knowledge • Complexity/gaps in health and social care services • Cost pressures

5. Drivers and levers • Demographic pressures • Overall low quality services and integration patchy • November 2006 Supporting People with dementia and their Carers in Health and Social Care NICE/SCIE - evidence base • February 2007 Dementia UK Alzheimer’s Society – major report – prevalence and costs • 4 July 2007 Improving services and support for people with dementia and their families, NAO – services poor value for money • August 2007 Ivan Lewis announces work on National Dementia Strategy (NDS)

6. NDS programme and timescale • DH Lead David Behan, Director General of Social Care • Professor Sube Banerjee, Professor of Mental Health and Ageing at the Institute of Psychiatry, King's College London, & Jenny Owen, Executive Director of Adults, Health and Community Wellbeing in Essex joints lead • Neil Hunt, CE, Alzheimer's Society chairs programme's External Reference Group - main ‘core group’ & 3 ‘sub-groups’ • 3 key themes: Raising Awareness, Early diagnosis and intervention and quality of care

7. NDS Timetable • Listening and Engagement Exercises December – March 2008 • Report from work streams to Minister March 2008 • Formal consultation on the draft Strategy between June and August 2008 • The final National Dementia Strategy and Implementation Plan will be published in Autumn 2008 • Must dos? • Who will provide leadership at regional level?

8. Improving Awareness • Developing a better understanding of dementia by public and professionals alike • Ensuring that better information is provided on how to seek help and what help and treatment is available; and • Tackling the stigma and misunderstandings that currently exist • Not confined to general public – low in health services particularly acute sector

9. Early Diagnosis and Intervention • GPs reluctant to diagnose or misdiagnose • Only a third of people with dementia receive a formal diagnosis at any time in their illness. • Late diagnosis reduces ability to plan and make choice. • Early diagnosis and intervention services not universal or comprehensive • Inherent tension between early diagnosis and social services as stringent eligibility criteria of CSSRs mean those deemed eligible for services have critical needs/severe dementia

10. Improving the Quality of Care for People with Dementia • Quality of care • Commissioning • Supporting the workforce • Monitoring and regulation • Care pathways • Acute hospital care • Liaison and links • Whole systems/integration

11. London Centre for Dementia Care • Established 1998 at University College London • A Dementia Services Development Centre for the capital (DSDCs provide information, education, consultancy and research for professionals and care staff • Executive Director: Maria Parsons. Chair of Strategy Group: Professor Martin Orrell + CEs and senior managers from statutory & voluntary sector and academia • 2006 for dementia provided 2 year Strategic Partnership grant

12. Vision The London Centre for Dementia Care will promote and facilitate the dissemination and implementation of best practice in dementia care

13. Strategic Aims • Act as a hub and portal for professionals and care staff to information and knowledge in dementia care • Contribute to developing a skilled workforce • Facilitate the transfer of knowledge from research • Provide expertise to commissioners and providers

14. LCDC Development and events • 2007 Feasibility study • 2008 Business Plan, Governance and Fundraising Strategy Spring 2008 • What works in dementia care? April 8, UCL • Dementia Summer School July 1 UCL • Programme of development includes website and database of good practice • Dementia Network

15. LCDC Services and activities • Information and inquiry service • Dissemination of research • Quarterly Margaret Butterworth Care Homes Forum • LCDC Newsletter (1000 circulation) 3 times a year • Quarterly Dementia Education and Training Network (DETN) with fordementia • Seminars and conferences • Consultancy projects

16. Current projects • DBA Inclusive Challenge (Dementia) with Helen Hamlyn Centre, RCA • Sutton Council population needs and services • DementiaSpace and Dementia Forum – workforce development for national care home company

17. People at the London Centre for Dementia Care • Professor Martin Orrell, UCL, Chair, LCDC Strategy Group • Barbara Stephens, Chief Executive, for dementia Vice Chair, LCDC Strategy Group • Maria Parsons, Executive Director, LCDC

18. Do contact us Maria S. Parsons Executive Director London Centre for Dementia Care University College 67-73 Riding House Street London W1W 7EJ m.parsons@ucl.ac.uk T 0202 7679 9588 M 07801 509993 www.ucl.ac.uk/dementia