1 / 59

The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned

The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned. by Fred B. Wood, Gale Dutcher, Angela Ruffin, Paul Theerman, and Patricia Tuohy, NLM Conference of Native American Health Information Services Albuquerque, NM – July 20-21, 2006. Outline.

bern
Download Presentation

The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. The National Library of Medicine’sNative America Outreach Portfolio:Overview and Lessons Learned by Fred B. Wood, Gale Dutcher, Angela Ruffin, Paul Theerman, and Patricia Tuohy, NLM Conference of Native American Health Information Services Albuquerque, NM – July 20-21, 2006 NLM@ABQ7-20-06v5.ppt

  2. Outline • Overview—Fred Wood • Sacred Root—Gale Dutcher • NN/LM Lessons Learned—Angela Ruffin • MHA Systems—Paul Theerman • Native Healing Exhibit—Patricia Tuohy NLM@ABQ7-20-06v5.ppt

  3. Native Outreach PortfolioThumbnail Sketch by Fred Wood, OHIPD/NLM • Tribal Connections NN/LM, OHIPD • I (Pacific Northwest) PN RML • II (Pacific Southwest) PN RML • III (3 Northwest sites) PN RML • IV (Four Corners NM, AZ, UT, CO) 3 RMLs, 4 RLs NLM@ABQ7-20-06v5.ppt

  4. Native Portfolio, Cont’d • Sacred Root Native Internship Project, SIS • Tribal College Outreach and Librarianship Projects, NN/LM & SIS • Tribal Community Outreach Projects, NN/LM • Tribal Powwow Participation, NLM & NN/LM NLM@ABQ7-20-06v5.ppt

  5. Native Portfolio, Cont’d • Intertribal Collaboration, e.g., NCAI Health Information Task Force, SIS • Listening Circle Project, NLM, OHIPD • Health Information Web Sites -- Tribal Connections, PN RML -- Native American Health on MedlinePlus, LO/PSD -- Arctic Health, SIS -- American Indian Health, SIS NLM@ABQ7-20-06v5.ppt

  6. Native Portfolio, Cont’d • Native Hawaiian Community Project, Miloli’i and Waimanelo, OHIPD • Native Hawaiian Healing Materials Project, OHIPD • Tribal Economic Development Project, MHA Nation, OHIPD, HMD, SIS • Native Health & Healing Exhibit, HMD NLM@ABQ7-20-06v5.ppt

  7. Underlying Outreach Strategies • Improving information infrastructure and technical capabilities • Employing communication methods that are culturally sensitive and appropriate—Native consultation is key • Building effective partnerships with Native community groups and national organizations NLM@ABQ7-20-06v5.ppt

  8. Strategies, Cont’d • Training Native health and information professionals, and community leaders and members • Increasing the scope of NLM’s information products and services to cover more Native-related material • Emphasizing capacity building in Native communities where possible NLM@ABQ7-20-06v5.ppt

  9. Strategies, Cont’d • Making site visits to assure direct interactions, full understanding, and effective working relationships • Fine tuning outreach planning and evaluation for Native community-based projects • For more info, see JMLA Vol. 93, No. 4, Supplement on Community-Based Health Information Outreach NLM@ABQ7-20-06v5.ppt

  10. Some Native Inspiration • All my relatives (family, friends, peoples, and intelligences) • Let every day be a good day • Live in harmony with the Medicine Wheel and Sacred Tree • With the wisdom, foresight, and strength of the Eagle • For the good of the Next Seven Generations NLM@ABQ7-20-06v5.ppt

  11. Sacred Root Native American Information Fellowship by Gale Dutcher, Head, Outreach & Special Populations, SIS/NLM NLM@ABQ7-20-06v5.ppt

  12. Purpose of Fellowship Program • Develop capacity of native communities • Improve access to health information • Develop relationships NLM@ABQ7-20-06v5.ppt

  13. How it Works • Two year program • Two participants from each group • Mid-career professionals • Health and/or technology backgrounds • Funding • Stipend • Travel • Training • Laptop computer • Local project NLM@ABQ7-20-06v5.ppt

  14. Activities • Initial two weeks at NLM • Online training classes • Orientation to NLM • Focused meetings with staff • Training/Conferences • Dependent upon specific needs/interests • Connection with RML and NN/LM • Additional activities possible NLM@ABQ7-20-06v5.ppt

  15. Project Development • Culminating activity • Proposal writing • Funding provided by NLM NLM@ABQ7-20-06v5.ppt

  16. Origins of Fellowship Program • Co-funding by the NCMHD – end of 2001 • Meeting with Tex Hall, Chairman, MHA Nation • Creation by NCAI of President’s Task Force on Health Information NLM@ABQ7-20-06v5.ppt

  17. Current Status 2002 – Interns from MHA Nation - Richard Mayer and Deborah Thompson • Internship completed • Project implemented • Training relationship Univ. North Dakota HSL • Project Expansion • Ongoing NLM-MHA activities NLM@ABQ7-20-06v5.ppt

  18. Status, continued • 2003 –Nez Perce Tribe – Tina Bullock and Jim Pond • Year one completed 2004 • Project underway NLM@ABQ7-20-06v5.ppt

  19. Nez Perce Project • Tablet PCs and Hand-held devices for clinicians • Access health information with patients NLM@ABQ7-20-06v5.ppt

  20. 2004 • Native Hawaiian Fellows • Papa Ola Lokahi • LorrieAnn Santos and Momi Fernandez NLM@ABQ7-20-06v5.ppt

  21. Hawaiian Projects • Support for Cancer project • Development of game • Promotional materials • Develop GIS capacity • Training • Implementation of Health Equity Review • Data users group NLM@ABQ7-20-06v5.ppt

  22. Plans • Continue to work with NCAI Task Force • Next group will start in the fall • Evaluation of program • Continue to build upon these relationships NLM@ABQ7-20-06v5.ppt

  23. Reflections on NN/LM Outreach By Angela Ruffin, Head, NNO/NLM • Outreach to Minority, Underserved and Native Communities • Lessons learned through the years • Enhanced lessons learned • 2006 – 2011 Priorities NLM@ABQ7-20-06v5.ppt

  24. Earlier Lessons Learned -Pre Web Access • Time to plan and implement project • Identify information needs of target population • Identify onsite contact person • Tailor training to audience NLM@ABQ7-20-06v5.ppt

  25. Earlier Lessons Learned Electronic AccessOutreach • Getting out • Cultural competence • Training • - Demonstration/Training • Training content • Customize • Hands-on • Basic computer skills • Train the trainer • Location of training (onsite/offsite) • Follow-up training NLM@ABQ7-20-06v5.ppt

  26. Earlier Lessons LearnedElectronic AccessProject Administration • Planning • Delays • Staffing • Flexibility NLM@ABQ7-20-06v5.ppt

  27. Earlier Lessons LearnedElectronic AccessAssessing Information Needs • Not a one-time exercise • Needs vary by group and readiness NLM@ABQ7-20-06v5.ppt

  28. Earlier Lessons LearnedElectronic AccessObjectives and Outcomes • Objectives follow from assessing needs • Identify key players/community leaders at site • Continued presence & communication • Stay poised to alter course • Outcomes • Raise awareness • Increase access • Affect use & effectiveness • Change in information seeking NLM@ABQ7-20-06v5.ppt

  29. Earlier Lessons LearnedElectronic AccessCollaborations • Leadership/Key on-site contacts • Diverse expertise • Commitment • Communication • Sustainability NLM@ABQ7-20-06v5.ppt

  30. Earlier Lessons LearnedElectronic AccessPartnerships • Require common needs, mutual goals, mutual respect, shared resources • Communication NLM@ABQ7-20-06v5.ppt

  31. Enhanced Lessons LearnedCommunity Based Outreach • Understand the community - Language - Culture, beliefs, traditions - What they think & worry about - Information needs & uses - What/who are their communication channels - What/where are their cultural and friendship centers • Meet them on their turf and ‘where they are’ - Telecommunication infrastructure - Information skills NLM@ABQ7-20-06v5.ppt

  32. Enhanced Lessons LearnedCommunity Based Outreach • Participatory planning • Asset-based versus solely needs-based approach • Relationship building • Creativity • More community engagement • Community partners as empowerment NLM@ABQ7-20-06v5.ppt

  33. 2006-2011 RMLs and Centers University of Washington University of Illinois, Chicago • National Training Center and Clearinghouse (NTCC) – New York Academy of Medicine • Outreach Evaluation Resource Center (OERC) – University of Washington • Web Services, Technology Operations Center (Web-STOC) – University of Washington University of Massachusetts University of Utah University of California, Los Angeles New York University Houston Academy of Medicine – Texas Medical Center University of Maryland, Baltimore NLM@ABQ7-20-06v5.ppt

  34. Priorities for 2006-2011 • Outreach • Community partnerships, CBOs • Regional evaluation experts • Dissemination of best practices • Encourage/identify cross regional opportunities • Proposal writing assistance • Health information literacy • Expanded scope of technology conferences NLM@ABQ7-20-06v5.ppt

  35. The Outreach Evaluation Resource Center 2001-2006 Instruction, consultation, and planning support based on Measuring the Difference: Guide to Planning and Evaluating Health Information Outreach, …plus three new booklets to update the Guide! NLM@ABQ7-20-06v5.ppt http://nnlm.gov/evaluation/

  36. NN/LM Funding Mechanisms • Major outreach/consumer health projects • “Express” outreach awards • Outreach Planning awards • Outreach Follow-up awards • Partnership planning awards • Technology improvement/Internet connections awards • Training awards • Technology awareness conferences • Exhibit awards NLM@ABQ7-20-06v5.ppt

  37. MHA Systems and NLM’s History of Medicine Division Collaboration in Library Work: A Learning Process by Paul Theerman Head, Images and Archives History of Medicine Division National Library of Medicine NLM@ABQ7-20-06v5.ppt

  38. MHA Systems and NLM’s History of Medicine Division • MHA Systems— • A tribal business of the Mandan-Hidatsa-Arikira Nation, the “Three Affiliated Tribes” of Fort Berthold Reservation, New Town, North Dakota NLM@ABQ7-20-06v5.ppt

  39. MHA Systems and NLM’s History of Medicine Division • Background • Listening Circle established through NLM’s Office of Health Information Programs Development (OHIPD), Elliott Siegel, Director, and Fred Wood as principals • NLM’s Director, Dr. Donald A. B. Lindberg, met with Mr. Tex Hall, Chairman of MHA Nation, to begin a project to build tribal IT capacity and to provide NLM with digitized data NLM@ABQ7-20-06v5.ppt

  40. MHA Systems and NLM’s History of Medicine Division • Specific Steps • MHA Systems to scan and mark-up books and manuscript materials from the History of Medicine Division • NLM to assist MHA in assessing technical needs—skills, technology, work flow, quality control, and with business management training • NLM to secure appropriate training and provide oversight • Move to production after training period NLM@ABQ7-20-06v5.ppt

  41. MHA Systems and NLM’s History of Medicine Division • What was scanned? • Wyndham Miles’s History of the National Library of Medicine • Minutes of the Library’s Board of Regents meetings • NLM Annual Reports • NLM Technical Bulletins • What was produced? • PDF files and XML mark-up for web display NLM@ABQ7-20-06v5.ppt

  42. MHA Systems and NLM’s History of Medicine Division • Who were involved from NLM? • Fred Wood—Office of Health Information Programs Development, NLM • John Rees, Curator of Manuscripts, Images and Archives Section, History of Medicine Division • Paul Theerman, Head, Images and Archives Section, History of Medicine Division • Susan Schreibman, Assistant Dean and Head of Digital Collections, University of Maryland Libraries—technical training and assistance NLM@ABQ7-20-06v5.ppt

  43. MHA Systems and NLM’s History of Medicine Division • Who were involved from MHA? • Rosie Johnson, and then Richard Mayer—MHA Systems CEO • Chris Rabbithead and then Jonathan Berryhill—project directors • Joan Zavalny—MHA Systems • Jerry Stai—Minot State University School of Business, advisor • Many scanners and coders from MHA Nation NLM@ABQ7-20-06v5.ppt

  44. MHA Systems and NLM’s History of Medicine Division • Timeline • Materials sent fall 2004 • Site visit in December 2004—Theerman, Rabbithead, Zavalny, Johnson, and Rees (Wood photographing) NLM@ABQ7-20-06v5.ppt

  45. MHA Systems and NLM’s History of Medicine Division • Timeline • Training in April 2005—Rees and Schreibman, Theerman and Wood as assistants/observers NLM@ABQ7-20-06v5.ppt

  46. MHA Systems and NLM’s History of Medicine Division • Successful Trainees NLM@ABQ7-20-06v5.ppt

  47. MHA Systems and NLM’s History of Medicine Division • Timeline • Into production in the second half of 2005 • Materials added to NLM’s website, “NLM Archives,” in 2005-2006 http://www.nlm.nih.gov/hmd/manuscripts/nlmarchives/index.html • Total amounts • A 525-page book • 40 sets of Regents’ Minutes • 52 Annual Reports • 271 issues of Technical Bulletins NLM@ABQ7-20-06v5.ppt

  48. MHA Systems and NLM’s History of Medicine Division • New Projects • New project in 2006: scanning printed materials to provide an on-line guide to a very large NLM collection on the Food and Drug Administration (FDA) • 60 volumes of materials to be scanned prior to OCR and data extraction • Project will go into 2007 NLM@ABQ7-20-06v5.ppt

  49. MHA Systems and NLM’s History of Medicine Division • Experience—some hesitations • Staff turnover was high. • Tension between a turn-key operation and one with stronger input from MHA. • Difficulties in working half a continent away. NLM@ABQ7-20-06v5.ppt

  50. MHA Systems and NLM’s History of Medicine Division • Experience—some positives • Technology not a barrier, and was a help. • Great pleasure in the training and in seeing the project take off. • It works! NLM@ABQ7-20-06v5.ppt

More Related