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Data Access Framework (DAF) S&I Initiative Update

Data Access Framework (DAF) S&I Initiative Update. June 19 th , 2014. Overview (Recap). BlueButton initiatives enabled patients to access to their own data DAF is similar, except it is focused on enabling providers to access their patient’s data using modular and substitutable standards

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Data Access Framework (DAF) S&I Initiative Update

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  1. Data Access Framework (DAF)S&I Initiative Update June 19th, 2014

  2. Overview (Recap) • BlueButton initiatives enabled patients to access to their own data • DAF is similar, except it is focused on enabling providers to access their patient’s data using modular and substitutable standards • Within their own Local Organization (Local DAF) • From another Targeted Organization (Targeted DAF) • Between multiple Organizations (Federated DAF – Future phases)

  3. Challenges to Address Data Access Complexities include: • Ability to access data within and across organizations using standards • Ability to access patient’s data using document metadata paradigm • Get latest Lab Report for a Patient so that I can check her HBA1C levels • Get CCD’s for the last 3 years for a patient • Get the last History and Physical Note for the patient • Ability to access patient’s data based on discrete data elements captured within a patient record • Get latest lab report for a patient where HBA1C > 7% • Get me all patients < 5 years who are due for an immunization • Get me all patients > 75 years with HBA1C > 7% • Enable both Patient level (Local and Targeted ) and Population level data (Data about multiple patients – only for Local)

  4. Out Of Scope DAF does not address the following: • Trust establishment between organizations for Targeted Query • Could leverage all the trust work happening in Direct • Discovery of End Points for Targeted Query • Patient Matching rules and algorithms that organizations may implement • Policies that allow/dis-allow disclosure of patient data

  5. Current State • S&I/IHE PCC DAF White Paper • Describes how to use existing IHE profiles to meet DAF needs and identifies gaps that need to be filled (Both new profiles and change proposals) • Gaps being prioritized to inform upcoming IHE Planning Cycle. • Currently under Public Comment periodhttp://www.ihe.net/Public_Comment/#pcc • S&I Document Metadata Based Access Work Group • Allows ability to access patient data using document metadata paradigm • Finished Candidate standards analysis • Creating an Implementation Guide around the standards • S&I Data Element Based Access Work Group • Currently performing standards analysis • Completed FHIR, working on others identified by the community (HL7v2, QED, HQMF etc) • S&I DAF Direct Transport WG (Community/Volunteer driven WG) • Working on a solution using all the content models from Document and Data Element Based Access Work Groups but changing the Transport from SOAP/HTTP to Direct/SMTP.

  6. Notional Project Timeline S&I Lifecycle (Discovery  Pilot & Evaluation) July August September October November December DAF/IHE White Paper Published Data Element IG Consensus Document IG Consensus Implementation (DAF/IHE Community) IHE Activities WP Comment Period DAF IHE/ S&I Joint Work Group Implementation (S&I Community) Pilots & Testing TWG 1: Document Metadata based access for LDAF & TDAF Create IGbased on existing standards Creating Operation Plan for Pilot Testing Pilots and Testing Balloting Activities Pilots & Testing Implementation (S&I Community) TWG 2: Data Element based access for LDAF & TDAF Candidate Standards Analysis Finalize Actors + Transactions + Technology Stacks and Standards Create IG Creating Operation Plan for Pilot Testing Pilots and Testing Balloting Activities

  7. IHE/S&I Joint White Paper

  8. Document Metadata Based Access Overview Query Query Requestor Query Responder Query Results • Query Stacks Required • SOAP or RESTful • Query Stacks Required • SOAP and RESTful

  9. Document Metadata Based Access Query Stacks * - Specifying profiles for Targeted DAF only, Local DAF choices left to the organization ** - IHE working on finalizing IHE MHDv2 which aligns with FHIR this summer – DAF will reanalyze once it is published

  10. Data Element Based Access Query Query Requestor Query Responder Query Results • Query Stacks Required • Under Analysis • FHIR - Initial Analysis performed • Query Stacks Required • Under Analysis • FHIR - Initial Analysis performed • Data Elements for Constructing Queries and Query Results • Started from MU Stage 2 ToC/VDT data elements + community input • Current Data Element Spreadsheet

  11. Data Element Based Access(Potential FHIR Query Stack) Note: Query Stack Components for Document Metadata based Access and Data Element based Access share same components except for Query Structure and Query Results.

  12. Questions

  13. Useful Links • DAF Homepage • http://wiki.siframework.org/Data+Access+Framework+Homepage • DAF Initiative Signup • http://wiki.siframework.org/Data+Access+Framework+Join+the+Initiative • DAF Charter • http://wiki.siframework.org/Data+Access+Framework+Charter+and+Members • DAF Standards, Harmonization and Implementation Activities • http://wiki.siframework.org/DAF+Standards+Harmonization+and+Implementation

  14. Initiative Support Leads • For questions, please feel free to contact your support leads: • Initiative Coordinator: John Feikemajohn.feikema@siframework.org • ONC Sponsors: Mera Choi mera.choi@hhs.gov • Support Team: • Project Management: • GayathriJayawardenagayathri.jayawardena@esacinc.com • Technical Support: • Dragon (Nagesh) Bashyamnagesh.bashyam@drajer.com • Standards SME: • Ed Larsen ed_larsen@comcast.net • Standards Support: • Angelique Cortez angelique.j.cortez@accenture.com • Vocabulary and Terminology Subject Matter Expert: • Mark Roche, MD mrochemd@gmail.com

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