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At the heart of the dialogue Improving the patient - professional interaction in decision making

At the heart of the dialogue Improving the patient - professional interaction in decision making Janneke Elberse Msc, Ma Janneke.elberse@falw.vu.nl Athena Institute Vrije Universiteit Amsterdam. Introduction. Current situation in the Netherlands Bottom up Individual projects

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At the heart of the dialogue Improving the patient - professional interaction in decision making

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  1. At the heart of the dialogue Improving the patient - professional interaction in decision making Janneke Elberse Msc, Ma Janneke.elberse@falw.vu.nl Athena Institute Vrije Universiteit Amsterdam

  2. Introduction • Current situation in the Netherlands • Bottom up • Individual projects • Slowly more involvement government

  3. Patient participation project • Different initiatives have taken place • Diabetes Foundation • Burn Foundation • Asthma Foundation • Identify and prioritize research topics • Partnership is created between different stakeholders • Special attention for care user group • Dialogue meeting

  4. Project Heart Foundation • Partnership • Shared research agenda • Short time span

  5. Project Heart Foundation

  6. Dialogue meeting Reflection presentation by PO Plenary feedback Work session Reflection presentation by expert Prioritizing and mutual understanding Dialogue meeting Presentation Care users’ perspectives Work session Problem→ Research topic Presentation experts’ perspectives Dialogue research topic list

  7. Project Heart Foundation Dialogue meeting • Asymmetrical relation between care users and researchers • Inclusion strategies applied

  8. Project Heart Foundation Outcomes • Clear research topics • Participants very enthusiastic • Mutual respect created but • Researcher based research topics • Inclusion /exclusion care users’ perspectives • Behaviour • Verbal interaction

  9. Identified obstacles • Asymmetrical relation between stakeholder groups leads to exclusion • Lack of sense of urgency • Care users not empowered enough to speak up

  10. Recommendations • How to improve the dialogue between care users and researchers? • Decrease asymmetry • Increase visibility • Empower care users • Select care users/ researchers • Increase coherency

  11. Conclusion Dialogue was a first step in the right direction! but Improvement is needed!

  12. Contact Janneke.elberse@falw.vu.nl

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