Being part of the conversation privacy and disability
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Being part of the conversation: privacy and disability. Katrine Evans. 6 December 2010. Privacy supports partnerships. Partnerships between: providers and clients clients and whanau/caregivers providers and whanau/caregivers . “Health information”.

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Being part of the conversation: privacy and disability

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Being part of the conversation:

privacy and disability

Katrine Evans

6 December 2010


Privacy supports partnerships

Partnerships between:

  • providers and clients

  • clients and whanau/caregivers

  • providers and whanau/caregivers

    .


“Health information”

  • Not just health information as such – also information about disabilities and disability services

  • And a “health agency” includes an agency providing disability services

    Health Information Privacy Code, clause 4.


Privacy is an important right in your toolbox

But what does “privacy” mean?

Focus of HIPC – protection of information about people

(Code of Consumer Rights - physical privacy)


Managing information well = partnership

.

Purpose

Explanation

Trust

“PET” also = “Privacy Enhancing Technology” …


Purpose is often not a problem

  • But worth checking

    Health Information Privacy Code, rule 1.


Explanation and involvement is more usually the missing factor

  • Case study: What do fire wardens need to know?

  • council flats; information released to fire wardens about residents’ disabilities

  • fire wardens were just residents


Transparency leads to trust

.

  • notification when collecting – what is being collected and why, and where’s it going

  • giving access to personal information

  • formally noting views if there is a difference in opinion


Some other points to watch

.

  • storage and security

  • accuracy


Contact:

.

Phone free: 0800 803 909 (general advice about Act and Code; info about making a complaint)

Email: enquiries@privacy.org.nz

Website: www.privacy.org.nz

katrine.evans@privacy.org.nz


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