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ACT on Alzheimer’s Disease Curricula. Module III: Societal Impact. Learning Objectives. Upon completion of this module the student should: Identify the challenges that families and caregivers experience when caring for someone that has Dementia

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Act on alzheimer s disease curricula

ACT on Alzheimer’s Disease Curricula

Module III: Societal Impact


Learning objectives
Learning Objectives

  • Upon completion of this module the student should:

    • Identify the challenges that families and caregivers experience when caring for someone that has Dementia

    • Gain insight into the cost, risks and stressors that affect families and caregivers.

    • Raise awareness of the anticipated increase and impact Alzheimer’s disease will have in the future.


Societal impact of alzheimer s disease
Societal Impact of Alzheimer’s Disease

  • Alzheimer’s disease has a serious impact on many facets of society

    • The burden of Alzheimer’s disease has a profound impact on patients, families and caregivers

    • The disease jeopardizes the financial well-being of patients and families as well as puts strain on public budgets

    • Alzheimer’s disease has placed, and will continue to place, an increasing burden on the overall healthcare system



Impact on families and caregivers1
Impact on Families and Caregivers

  • 15 million Americans provide unpaid care to a person with Alzheimer’s disease or other dementia

  • Unpaid caregivers are primarily family members

  • In 2011, these caregivers provided an estimated 17.4 billion hours of unpaid care at an estimated value of $210 billion


Impact on families and caregivers2
Impact on Families and Caregivers

  • Caring for a person with dementia poses special challenges

  • Caregivers experience high levels of stress and negative effects on their own health, employment and financial security

  • Caregivers are at a heightened risk for psychological and physical illness


Impact on families and caregivers3
Impact on Families and Caregivers

  • Frequent issues experienced by families and caregivers include:

    • Denial

    • Anger / Frustration

    • Guilt

    • Loss & Grief

    • Letting Go

    • Financial Stress

    • Role Reversals

    • Social Isolation


Impact on families and caregivers4
Impact on Families and Caregivers

  • Caregivers report high levels of stress over the course of providing care

    • 61% rated the emotional stress of caregiving as high or very high

    • 33% report symptoms of depression


Impact on families and caregivers5
Impact on Families and Caregivers

  • Caregivers are at risk for becoming “secondary patients”

    • The physical and emotional stress of caregiving is estimated to result in $8.7 billion of additional health care costs in the United States

    • 75% of caregivers reported that they were somewhat to very concerned about their own health while serving as a caregiver



Financial and healthcare impact1
Financial and Healthcare Impact

  • As the population grows and ages, there is a growing need for healthcare workers

    • The United States will need another 3.5 million health care providers by 2030 to maintain the current ratio of provider coverage

    • The number of trained geriatricians is very low and the need is growing in the medical, nursing and social work fields


Financial and healthcare impact2
Financial and Healthcare Impact

  • People with Alzheimer’s disease and related dementias have three times as many hospital stays as do others

  • Medicare beneficiaries with Alzheimer’s are more likely than those without to have other chronic medical conditions

  • As a result, the total health care costs of Alzheimer’s patients is higher than the costs of similar non-Alzheimer’s patients


Financial and healthcare impact3
Financial and Healthcare Impact

  • Use of healthcare facilities:

    • Hospital: 3x stays for Medicare patients with Alzheimer’s vs. those without Alzheimer’s

    • Skilled nursing facility: 9x stays for Alzheimer’s patients

    • Home health care: 23% with Alzheimer’s had at least one home health care visit vs. 10% for non-Alzheimer’s beneficiaries


Financial and healthcare impact4
Financial and Healthcare Impact

  • The costs of health care services are higher for those with Alzheimer’s disease

    • Total payments for all health care and long-term care for Medicare beneficiaries with Alzheimer’s were 3 times higher than for those without Alzheimer’s ($44k vs. $14k)

    • 29% of Medicare patients with Alzheimer’s also have Medicaid; 10% of Medicare patients without Alzheimer’s also have Medicaid

    • Medicaid payments for beneficiaries with Alzheimer’s were 19 times higher than for non-Alzheimer’s Medicaid beneficiaries


Financial and healthcare impact5
Financial and Healthcare Impact

  • The high cost of long-term care is a challenge for Alzheimer’s patients and their families

    • 60-70% of older adults with Alzheimer’s disease live in the community vs. 98% of older adults without Alzheimer’s

    • The high cost of long-term care services (assisted living $42k/year and nursing home $79-87k/year) causes patients to spend down their assets which ultimately leads them to become Medicaid beneficiaries


Financial and healthcare impact6
Financial and Healthcare Impact

  • Total payments for health care, long-term care and hospice for people with Alzheimer’s are projected to be $200 billion in 2012

  • Total payments are expected to increase to $1.1 trillion by 2050

  • The increase assumes a six-fold increase in government expenditures under Medicare and Medicaid and a five-fold increase in personal out-of-pocket spending


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