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The Role of Digital Stories in Supporting User Involvement and Participation Quality Services ~ User Views SSRG Event 17 th March 2008 Karen Barrie, ISD Overview What are digital stories? Using digital stories in health and social care Sharing the digital storytelling approach

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The role of digital stories in supporting user involvement and participation l.jpg

The Role of Digital Stories in Supporting User Involvement and Participation

Quality Services ~ User Views

SSRG Event 17th March 2008

Karen Barrie, ISD


Overview l.jpg
Overview and Participation

  • What are digital stories?

  • Using digital stories in health and social care

  • Sharing the digital storytelling approach

  • Viewing a digital story


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What are ‘digital stories’? and Participation

  • Short, powerful, presentations that combine voice, still images and music into a story between 2 and 5minutes in length

  • Told in the storyteller’s own words and voice

  • The storyteller may be helped to shape the story, but ultimately decides what to say

  • And retains editorial control


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Using digital stories in health and social care and Participation

  • The ‘digital story’ is not an attempt to describe what happens in care settings most of the time

  • Rather, it allows the voices of ‘ordinary’ service users and carers to be heard

  • Providing a gentle yet powerfulreminder of what health and social care is all about

  • As a process, ‘digital storytelling’ supports active and meaningful participation

  • And may finding useful applications within user and carer consultation & engagement, education & training, quality assurance, service improvement efforts, informing national debate etc.


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Using digital stories in health and social care and Participation

Adapted from the CHD Collaborative ~ Discovery Interviews 2005


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Using digital stories in health and social care and Participation

  • Good use has been made of digital stories within health care in England, notably through the Patient Voices programme http://www.patientvoices.org.uk

  • Successful, but limited application in Scotland e.g. NHS Lanarkshire stroke service http://www.strokestories.scot.nhs.uk

  • The storytelling approach has served as a somewhat ad hoc means of uncovering the experiences of people who use care service and their carers

  • Identified an opportunity to try to situate digital storytelling within the wider service improvement and quality of care agenda

  • Involvement of JIT = ideal means of doing so


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The ‘ and ParticipationWhose Care, Whose Lives’ Story Collection

  • 18 stories developed with storytellers living in different care settings in Lanarkshire, Moray and Orkney

  • A highly enjoyable experience

  • Providing powerful statements that highlight the impact care services have on the quality of life for the vulnerable

  • Reinforcing the UDSET outcomes

  • (Re-)setting in the context of individual lives


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The ‘ and ParticipationWhose Care, Whose Lives’ Story Collection

  • Collection made widely available on DVD

  • Finding applications in various national and local contexts

  • Causing service providers and decision makers to take a moment to reflect

  • And hopefully to think creatively about how to improve practices, services, outcomes…. . and ultimately people’s lives


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Other Story Collections and Participation

  • Work is currently underway to build on the ‘Whose Care, Whose Lives’ stories

    • UDSET ~ Usage Experiences

    • Intermediate Care

    • Housing

    • Telecare

  • In moving forward, need to think very carefully about how digital stories might be used........... misused, or abused


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Sharing the digital storytelling approach and Participation

  • A short project ‘Digital Storytelling In Health and Social Care’ is supporting the application of the approach in 3 care locations to:

    • Determine the safeguards, teaching methods, facilitation skills and technologies needed to embed the making and effective use of digital stories in local care communities

    • Inform development of a toolkit to support implementation in different contexts

    • Assess the value that digital storytelling adds to the service improvement and quality of care agenda


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Sharing the digital storytelling approach and Participation

  • Initial 3-day training workshop held in November 2007

  • Participants preparing for local use within:

    • Staff awareness raising and training programmes

    • Service evaluation and review

    • Sharing employment experiences of adults with physical disabilities / learning difficulties

  • Follow-up local training and storytelling workshops planned throughout March and April

  • Evaluation of contribution of digital storytelling to service improvement built in



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